Myeloma Forum | ianb | Activity https://forum.myeloma.org.uk/members/ianb/activity/ Activity feed for ianb. Sat, 11 Apr 2026 20:02:04 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 8b55778edef600cc5de9b1543899a683 ianb replied to the topic Daratumumab in the forum Newcomers https://www.myeloma.org.uk/forums/topic/daratumumab-3/page/2/#post-137466 Sat, 24 Mar 2018 13:20:30 +0000 Hi Gerry, sorry to hear things are not too good.

Also sorry to see that your consultant said that only 1/3rd of patients have a successful outcome, that concerns me no end. The drug info sheet rates the success rate at nearer 61% as a mono treatment. When used as a combination treatment this increases to 83%-93% depending on your starting…[Read more]

]]> 624e7a0c62b1ef12413d583a85dafeb2 ianb replied to the topic Daratumumab in the forum Newcomers https://www.myeloma.org.uk/forums/topic/daratumumab-3/#post-137463 Sat, 24 Mar 2018 11:00:27 +0000 Hi I am picking up a few sigs and shares and will keep sharing where I can. This could so easily have been me.

Has there been any thought in taking this injustice and what can only be described as moraly wrong to the media to try and get this story more public?

Ian.

]]> 855c6d218530c3e738a1cbd0ce313b19 ianb replied to the topic Daratumumab in the forum Newcomers https://www.myeloma.org.uk/forums/topic/daratumumab-3/#post-137456 Fri, 23 Mar 2018 18:10:53 +0000 Potition signed and shared on my FB page for more sigs.

Ian.

]]> 79b5cc6ebb6f48eaedb59df1f64b985b ianb replied to the topic Daratumumab in the forum Newcomers https://www.myeloma.org.uk/forums/topic/daratumumab-3/#post-137455 Fri, 23 Mar 2018 18:01:45 +0000 Hi, I am starting Daratumumab on Monday as a 4th stage treatment as per the Nice approval, based on the phase II level tests. All well and good, until you find out that most of Europe including Scotland  have approved it for use as a combination drug based on the results of the phase III level tests, which show are huge increase in success. Nice…[Read more]

]]> 8961b80132f20113dacff8f1406cdc39 ianb replied to the topic SCT at Southampton. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/sct-at-southampton/#post-124323 Wed, 23 Sep 2015 11:21:46 +0100 Thanks to everyone who has commented back, i really appreciate it.  I’ve got to be honest, i am a little bit on the fence here.  Having had a really good response on Lenalidomide and the lack of data on staying on a maint dose of Lenalidomide against having SCT is niggling me a bit.  I know the history behind the SCT but my consultant said that th…[Read more]

]]> e9c2b00c1523e39e41d125894c85911c ianb started the topic SCT at Southampton. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/sct-at-southampton/ Tue, 15 Sep 2015 18:25:55 +0100 Hi everyone, I am not new to Myeloma but new to this forum so I hope i am posting this in the correct place.  So, like i said, HI.  I am  52 year old male who was 1st diagnosed with MM back in Feb 2009 and initially had a horrendous time between diagnosis and getting home from hospital 5 months later. I was not allowed to move for the 1st 3 mo…[Read more]

]]> 6231cc8e798bbb7fdeae5ddc4691eeac ianb became a registered member https://forum.myeloma.org.uk/activity/p/40854/ Thu, 10 Sep 2015 09:28:54 +0100 0