Hi Richard

I also had a SCT that didn’t work. That was in Sept 2014. My pp was 18 g/L 6 weeks before the SCT, and 24 g/L 9 weeks after. It rose steadily to 34 g/L in April 2015 with no treatment. I was then put on Rev/Dex (25mg/20mg), which halted the increasing pp. The Revlimid dose was reduced to 15mg after two cycles because of blood counts…[Read more]

Cooked fruit and veg should be ok. Wash salads and raw fruit thoroughly. Avoid pre packed salads. The Myeloma UK Infosheet ‘Diet and Nutrition in Myeloma’ lists some foods to avoid while you are still neutropenic. Hospitals also issue lists of foods to avoid, you can find some of them by searching online. The list in the Christie document ‘Going…[Read more]

I guess the question is do you have two unrelated conditions, i.e. MGUS and something else that’s causing your symptoms, or just MGUS. Presumably your GP is assuming initially that you have two conditions, and he is giving you pain killers to treat the pain. Antidepressants can be used to treat chronic pain by the way, they don’t necessarily…[Read more]

There is an informative Myeloma UK Infosheet about MGUS:

Monoclonal Gammopathy of Undetermined Significance (MGUS) Infosheet

Or

https://www.myeloma.org.uk/wp-content/uploads/2014/05/Myeloma-UK-MGUS-Infosheet.pdf

(I’ve given 2 links in case one of them…[Read more]

Patents give drug developers 20 years protection with the possibility of another 5 years in some countries if a developer meets certain requirements.

NICE try to balance cost against benefit but I’m not convinced they’ve got it right in the case of pomalidomide. It is very expensive but there seem to be plenty of examples of people being treated…[Read more]

Myeloma can affect your eyes (and your brain), but only at high serum paraprotein levels (>50g/L if IgG, >40g/L if IgA). The increased concentration of protein can increase blood viscosity (thickness). Hyperviscosity can affect blood flow in the small arteries feeding your eyes, causing blurred vision, and in small arteries feeding your brain,…[Read more]

Myeloma can affect your eyes (and your brain), but only at high serum paraprotein levels (>50g/L if IgG, >40g/L if IgA). The increased concentration of protein can increase blood viscosity (thickness). Hyperviscosity can affect blood flow in the small arteries feeding your eyes, causing blurred vision, and small arteries feeding your brain,…[Read more]

She tried at our local Boots without success then tried the pharmacy that’s attached to our GP’s surgery and they ordered one for her. Googling Limbo Elbow Protector shows they seem to be much more readily available online now, including from Amazon.

This is the LimbO UK website:
https://limboproducts.co.uk/

You can see a photo of the Limbo M75…[Read more]

<div style=”color: rgba(0, 0, 0, 0.701961); font-family: ed well for

I don’t believe it, to coin a phrase. I think it was because I was still in visual mode.

Try again in text mode…

<div style=”color: rgba(0, 0, 0, 0.701961); font-family: ed well for

I don’t believe it, to coin a phrase. I think it was because I was still in visual mode.

Try again in text mode…

<div style=”color: rgba(0, 0, 0, 0.701961); font-family: ed well for

<div style=”color: rgba(0, 0, 0, 0.701961); font-family: UICTFontTextStyleBody; font-size: 17px; line-height: normal; -webkit-composition-fill-color: rgba(130, 98, 83, 0.0980392); text-decoration: -webkit-letterpress;”>She tried at our local Boots without success then tried the pharmacy that’s attached to our GP’s surgery and they ordered one for…[Read more]

<div style=”color: rgba(0, 0, 0, 0.701961); font-family, etc, etc, etc

What a mess. I tried to include a photo of the M75 and it seemed to work but it created a mess when I submitted it. I’ve deleted most of it, loads of code like the little bit I’ve left above.

Try again, without the photo…

<div style=”color: rgba(0, 0, 0, 0.701961); font-family, etc, etc, etc

What a mess. I tried to include a photo of the M75 and it seemed to work but it created a mess when I submitted it.

Try again, without the photo.

<div style=”color: rgba(0, 0, 0, 0.701961); font-family

<div style=”color: rgba(0, 0, 0, 0.701961); font-family: UICTFontTextStyleBody; font-size: 17px; line-height: normal; -webkit-composition-fill-color: rgba(130, 98, 83, 0.0980392); text-decoration: -webkit-letterpress;”>She tried at our local Boots without success then tried the pharmacy that’s attached to our GP’s surgery and they ordered one for…[Read more]

Hi Jan

It wasn’t very recent but I had my SCT at Barts two years ago. I was admitted to Bodley Scott ward, which was in the East Wing then, but it has since been moved into the extensively redeveloped KGV building. The staff were excellent, the food wasn’t brilliant but I managed to eat it. The main difficulty was boredom and counting the…[Read more]

Hi Steve

I had my stem cell transplant in September 2014. Like Richard, mine didn’t work, my pp was higher afterwards and kept on rising until I was put on Lenalidomide (Revlimid).

I posted a long description of my experience when it was still fresh in my memory. I’m not sure if you can create a link to a single post on here, but this this…[Read more]

Hi Steve

I had my stem cell transplant in September 2014. Like Richard, mine didn’t work, my pp was higher afterwards and kept on rising until I was put on Lenalidomide (Revlimid).

I posted a long description of my experience when it was still fresh in my memory. I’m not sure if you can create a link to a single post on here, but this this…[Read more]

Hi James

I had my stem cell transplant in September 2014. Like Richard, mine didn’t work, my pp was higher afterwards and kept on rising until I was put on Lenalidomide (Revlimid).

I posted a long description of my experience when it was still fresh in my memory. I’m not sure if you can create a link to a single post on here, but this this…[Read more]