Hi Gill
I'm so sorry that you have lost your husband Stephen. No words can help to ease your pain. I saw this quote today and thought of you both x ?What one carries deep in his heart cannot be lost by death" I know he is not here with you anymore but he will always be in your heart and nobody can take that away from you.
Lots of love
Rachael…

Hi Newbie
My name is Rachael and its my mum who has mm. My mum is having velcade as a first treatment as she is 72 there is no talk of sct so its just going to be managed through the drug route. The first cycle of mums velcade (subcut) was the hardest she suffered with really bad sickness and no appetite and a funny taste in her mouth. Since then…[Read more]

Hi gill I'm so sorry I don't know what to say but wanted you to know someone is listening I keep checking in to see how everyone is doing and I can't believe you and Stephen are having to go through this so soon x x please don't be alone is there someone you can call? Lots of love Rachael x x x

Wonderful news x x x x x

Dear gill and Stephen just to say am thinking about you both and sending lots of love and hope x x x x

Hi Kerrie
Just wanted to let you know, my mum is 72 and was diagnosed in May this year, the first 5-6 weeks were the worst then things have got alot better. My mum is on velcade and dex and is just on her 3rd cycle, she was quite poorly on the 1st cycle but her kidneys were quite bad and I think this is why, since then she has come on in leaps…[Read more]

Hi Dee, my mum is tired quite alot too, they have to listen to their bodies and go and lie down when it tells them too. My mum is doing really well Dee which was hard to imagine in the beginning I hope it will give you some hope x Her kidneys were only functioning at 20% I think when she was admitted and have now just gone back into the normal…[Read more]

Thanks Gill xx How is Stephen? xxx

Thanks Tom x I'm not sure about the pp levels and the meanings but they did say they expect them to plateaux at about 6 that was a few weeks ago when they were 12 but to already of dropped to 7 seems good and she is not even half way through the 6 cycles yet!
Love reading all your positive posts and seeing your smiling face!!
Rachael x

Hi Dee
How is your Dad?? How are you?
Love Rachael x

Hi Dee
My mum is having velcade on its own once a week injected subcutaneously, she does 4 weeks on then 1 week off, this is classed as one cycle. She has been told she will have 6 cycles so that will be about 7 months altogether. I hope this helps and you are okay and staying strong x x Love Rachael x

🙂 🙂 x x x

Eve and Tom, I have to say your posts just made me chuckle:-) I had seen this post on the Treatment section and have to say it disturbed me a bit!! Now I have seen your comments I'm smiling x x x x

Aah Alison I just got tears in my eyes reading your post x I do feel that its all I talk about with my mum and dad and am trying to make a conscious effort to talk about other stuff.Hopefully over time (its only been 4 weeks) we will get back to normal. This whole business has made me feel that we cannot take anyone for granted as I really thought…[Read more]

Hi Liz, thank you for responding. I think this group is fantastic and I hope you will be able to get some answers to your concerns on here x We are only half an hour from Addenbrookes which is really helpful are you local to the Hospital? I hope your STC went well and you are doing well from it. My mum goes onto E10 for her Velcade injections and…[Read more]

Hi everyone, many thanks again for your comments its so helpful. Eve I wouldn't have known that the kidneys could clear so thats good to know x That sunshine didn't last long so hopefully slim won't be needing his factor 50 at the moment! I didn't realise the chemo affects your sun tolerance, mum hasn't been out much apart from the hospital…[Read more]

Hi Dee,
My name is Rachael, my mum was recently diagnosed and I understand its very scary. If you ever want to ask anything (although I am only just learning it all myself) feel free, I have shed bucket loads of tears some days then feel really positive on other days. Keep strong and look after yourself as this is the best way we can help our…[Read more]

Morning all of you lovely people x Eve, they did put my mum on a course of antibiotics and sent her home with them x she had a renal appointment yesterday and although they confirmed the myeloma is in her kidneys they are pleased because her kidney function is no worse than when she was first diagnosed (hopefully it means the treatment is having…[Read more]