https://forum.myeloma.org.uk/members/ilovemymum/activity/ Activity feed for RachaelKennedy. Mon, 13 Apr 2026 06:44:01 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c8cdce65d10bc1cbb76320fa4fe98b92 http://www.myeloma.org.uk/forums/topic/stephen-has-gone#post-107777 Wed, 12 Sep 2012 14:03:23 +0100 Hi Gill
I'm so sorry that you have lost your husband Stephen. No words can help to ease your pain. I saw this quote today and thought of you both x ?What one carries deep in his heart cannot be lost by death" I know he is not here with you anymore but he will always be in your heart and nobody can take that away from you.
Lots of love
Rachael…

]]> c103b1e9df4dc564b5bd20968a690851 http://www.myeloma.org.uk/forums/topic/velcade-and-side-effects#post-93491 Mon, 10 Sep 2012 18:11:48 +0100 Hi Newbie
My name is Rachael and its my mum who has mm. My mum is having velcade as a first treatment as she is 72 there is no talk of sct so its just going to be managed through the drug route. The first cycle of mums velcade (subcut) was the hardest she suffered with really bad sickness and no appetite and a funny taste in her mouth. Since then…[Read more]

]]> 66b658866f00cd05538affdead8ee5e7 http://www.myeloma.org.uk/forums/topic/never-realised-that-the-end-would-be-like-this#post-107761 Sun, 09 Sep 2012 23:07:23 +0100 Hi gill I'm so sorry I don't know what to say but wanted you to know someone is listening I keep checking in to see how everyone is doing and I can't believe you and Stephen are having to go through this so soon x x please don't be alone is there someone you can call? Lots of love Rachael x x x

]]> 87a8aae02d651c3bd74642000348cea4 http://www.myeloma.org.uk/forums/topic/good-news#post-93395 Sun, 02 Sep 2012 18:22:25 +0100 Wonderful news x x x x x

]]> f830675869122305709dc0c90543207a http://www.myeloma.org.uk/forums/topic/not-looking-good/page/2/#post-107744 Sun, 02 Sep 2012 13:03:40 +0100 Dear gill and Stephen just to say am thinking about you both and sending lots of love and hope x x x x

]]> bc0ac2ced7c974bbc54508cfb23abff7 http://www.myeloma.org.uk/forums/topic/someone-to-talk-to#post-86455 Fri, 17 Aug 2012 13:40:44 +0100 Hi Kerrie
Just wanted to let you know, my mum is 72 and was diagnosed in May this year, the first 5-6 weeks were the worst then things have got alot better. My mum is on velcade and dex and is just on her 3rd cycle, she was quite poorly on the 1st cycle but her kidneys were quite bad and I think this is why, since then she has come on in leaps…[Read more]

]]> 0657b55996fbdad0238199af275ebee3 http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure#post-105671 Tue, 14 Aug 2012 20:42:56 +0100 Hi Dee, my mum is tired quite alot too, they have to listen to their bodies and go and lie down when it tells them too. My mum is doing really well Dee which was hard to imagine in the beginning I hope it will give you some hope x Her kidneys were only functioning at 20% I think when she was admitted and have now just gone back into the normal…[Read more]

]]> 10dda73b3ca091a58c71fc45a09147bd http://www.myeloma.org.uk/forums/topic/my-lovely-mum-some-positive-news#post-93350 Tue, 14 Aug 2012 20:31:05 +0100 Thanks Gill xx How is Stephen? xxx

]]> 2917c65894639d6e0ed950d61046e975 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-some-positive-news#post-93347 Mon, 13 Aug 2012 19:42:12 +0100 Thanks Tom x I'm not sure about the pp levels and the meanings but they did say they expect them to plateaux at about 6 that was a few weeks ago when they were 12 but to already of dropped to 7 seems good and she is not even half way through the 6 cycles yet!
Love reading all your positive posts and seeing your smiling face!!
Rachael x

]]> 31ea4b242a7f54fae3dc1657cbad14e4 http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure#post-105669 Mon, 13 Aug 2012 18:10:41 +0100 Hi Dee
How is your Dad?? How are you?
Love Rachael x

]]> d775ab9a974a94665a8ed0a38315bf4b http://www.myeloma.org.uk/forums/topic/my-lovely-mum-some-positive-news Mon, 13 Aug 2012 18:07:48 +0100 Hi All,
Haven't been on for a few weeks have been on hols but back now and all caught up I think!
Well just wanted to spread some positivity my mum has just started her 3rd Cycle on Velcade, she has some steroids aswell which we thought they had stopped on the 1st Cycle but they appeared again with the 2nd Cycle one of them is the dex one I have…[Read more]

]]> 2fd8ac39ed533cb9a69532c73a436a83 http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85984 Fri, 06 Jul 2012 11:00:05 +0100 Hi Dee
My mum is having velcade on its own once a week injected subcutaneously, she does 4 weeks on then 1 week off, this is classed as one cycle. She has been told she will have 6 cycles so that will be about 7 months altogether. I hope this helps and you are okay and staying strong x x Love Rachael x

]]> 9e57b735a3a2ef7ca48cbdd002a73040 http://www.myeloma.org.uk/forums/topic/channel-4-documentary1340628165#post-104542 Mon, 25 Jun 2012 20:34:34 +0100 🙂 🙂 x x x

]]> 93cd23fbafe2af77e0c549f9f76bd71b http://www.myeloma.org.uk/forums/topic/channel-4-documentary1340628165#post-104539 Mon, 25 Jun 2012 18:07:17 +0100 Eve and Tom, I have to say your posts just made me chuckle:-) I had seen this post on the Treatment section and have to say it disturbed me a bit!! Now I have seen your comments I'm smiling x x x x

]]> edd18e67e51eabffecce3bcc1046b2e8 http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/9/#post-85978 Sat, 23 Jun 2012 14:44:55 +0100 Aah Alison I just got tears in my eyes reading your post x I do feel that its all I talk about with my mum and dad and am trying to make a conscious effort to talk about other stuff.Hopefully over time (its only been 4 weeks) we will get back to normal. This whole business has made me feel that we cannot take anyone for granted as I really thought…[Read more]

]]> b0199c0c3f98e69250c36bf42ccf0334 http://www.myeloma.org.uk/forums/topic/hospitals#post-99554 Sat, 23 Jun 2012 14:34:36 +0100 Hi Liz, thank you for responding. I think this group is fantastic and I hope you will be able to get some answers to your concerns on here x We are only half an hour from Addenbrookes which is really helpful are you local to the Hospital? I hope your STC went well and you are doing well from it. My mum goes onto E10 for her Velcade injections and…[Read more]

]]> 15d4cae4af5c0ef5f28984d3568faa12 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-has-been-diagnosed-with-multiple-myeloma/page/2/#post-86197 Sat, 23 Jun 2012 14:30:31 +0100 Hi everyone, many thanks again for your comments its so helpful. Eve I wouldn't have known that the kidneys could clear so thats good to know x That sunshine didn't last long so hopefully slim won't be needing his factor 50 at the moment! I didn't realise the chemo affects your sun tolerance, mum hasn't been out much apart from the hospital…[Read more]

]]> 4bc6ddb56bb5a6d8efe053e755058fd8 http://www.myeloma.org.uk/forums/topic/hospitals Thu, 21 Jun 2012 12:10:07 +0100 Hi, just wondering if anyone else is being treated at Addenbrookes Hospital in Cambridge. Thats where my lovely mum is being treated, they seem fantastic at the moment and haven't seen any mentions yet of anyone on here being in this region!
Love and Best Wishes Rachael (newbie to the forum)

]]> 55c77f7eb16b92af33f65d343d7ec669 http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/8/#post-85968 Thu, 21 Jun 2012 12:06:34 +0100 Hi Dee,
My name is Rachael, my mum was recently diagnosed and I understand its very scary. If you ever want to ask anything (although I am only just learning it all myself) feel free, I have shed bucket loads of tears some days then feel really positive on other days. Keep strong and look after yourself as this is the best way we can help our…[Read more]

]]> b3f36b5ec0a24dd5cef11023b2add293 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-has-been-diagnosed-with-multiple-myeloma#post-86193 Wed, 20 Jun 2012 10:50:57 +0100 Morning all of you lovely people x Eve, they did put my mum on a course of antibiotics and sent her home with them x she had a renal appointment yesterday and although they confirmed the myeloma is in her kidneys they are pleased because her kidney function is no worse than when she was first diagnosed (hopefully it means the treatment is having…[Read more]

]]> 64295d52ec9f85b92d9427297cbb8446 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-has-been-diagnosed-with-multiple-myeloma#post-86190 Tue, 19 Jun 2012 12:32:24 +0100 Morning All, Thank you so much for all your responses x my mum came home late last night (she insisted) after antibiotics and fluids and they had got her temperature down just as you said! They ended up giving her a blood transfusion as she is anaemic.She was very upset this morning think it may have hit home a bit now, I have tried to convince…[Read more]

]]> 4b746df6c73944901f853d7f5ab35df8 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-has-been-diagnosed-with-multiple-myeloma#post-86186 Mon, 18 Jun 2012 09:50:08 +0100 Morning, thank you all for your welcome to the group x its so lovely to be able to come on here. Thanks for your advice it really helps. Had to take my mum to hospital shortly after writing this post last night as she had developed a temperature, they have kept her in and given her some more anti sickness drugs etc. I have to say the Hospital are…[Read more]

]]> 93a6d84ee0254b69a3c2994d90314b15 http://www.myeloma.org.uk/forums/topic/my-lovely-mum-has-been-diagnosed-with-multiple-myeloma Sun, 17 Jun 2012 20:29:34 +0100 Hi Everyone
I have been reading on this discussion forum for a couple of weeks now and have now decided to join. My mum was diagnosed with MM on the 29th May this year. After complaining (not loud enough really bless her) of back and rib pain and repeated visits to the drs (at 71 I think they thought it was wear and tear)she was given pain relief…[Read more]

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