Myeloma Forum | IvanWarwick | Activity https://forum.myeloma.org.uk/members/ivanwarwick/activity/ Activity feed for IvanWarwick. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 08287ecfc015678ac279d59cd3ad5b8b IvanWarwick replied to the topic New to forum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-forum-4/#post-125681 Mon, 11 Jan 2016 12:21:19 +0000 Hi Karen

I have had a stem cell transplant, unfortunately my kidneys failed during transplant so I’m on dialysis. That happened in 2012. My advice would be to drink plenty of water during transplant and use corsodyl as your mouth wash they won’t supply they give a cheaper version.

I not going to lie to you it’s a tough journey but there is…[Read more]

]]> 93e850bdd9281ac40e4c599888766283 IvanWarwick replied to the topic Count has dropped in the forum General http://www.myeloma.org.uk/forums/topic/count-has-dropped#post-91268 Sun, 18 Sep 2011 08:37:51 +0100 They took me off CTD because I was getting small blood vessel clots on my right leg. Thanks Dave, Eve and Helen for your comments, it's much appreciated. I obviously have a lot to learn about this MM however I'm feeling positive at the moment and I do take much encouragement for positive results like the paraproteine count.
Ivan

]]> 8ea62efd1ec203a0ee1526ae4fdf42fb IvanWarwick replied to the topic Sore toe and leg in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-toe-and-leg#post-104141 Sat, 17 Sep 2011 08:39:13 +0100 It looks like it was the small blood vessels on the leg was getting blocked. They increased my clexane injection from 40mg to 150mg and I was told to stop all chemo medication until this leg cleared up. Well the leg did improve, the big toe is still not completely better but they have taken me off CTD and started me on Velcade. Had my first…[Read more]

]]> 37bbb974c8b92444f3ea5e619723b349 IvanWarwick started the topic Count has dropped. in the forum General http://www.myeloma.org.uk/forums/topic/count-has-dropped Sat, 17 Sep 2011 08:14:06 +0100 My consultant tells me that my paraprotein cells have dropped from 17 to 6 which I believe is fantastic however what does this mean. I take it if I get to zero I will be in remission and what does 17 mean is it 17 parts per 100 or what does anyone know.
Ivan

]]> 6a2ab8da5f65c98c20666fde2655b953 IvanWarwick replied to the topic Sore toe and leg in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-toe-and-leg#post-104137 Tue, 23 Aug 2011 17:38:31 +0100 I rang the unit and the nurse told me to come on in. The Dr tested me for Sciatica and told me it was not that. She thinks it may be a trapped nerve and the big toe issue was more than likely peripheral neuropathy which can be a side affect of the Thalidomide. She has given me Pregabalin Cap to take twice daily. I can't walk any further than…[Read more]

]]> 166f1701e37f2219e347069f99211495 IvanWarwick replied to the topic Sore toe and leg in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-toe-and-leg#post-104134 Tue, 23 Aug 2011 00:05:52 +0100 I did ring the unit today and they told me to go see my GP. I have no evening number to ring, I will ring the myeloma.org.UK nurse tomorrow.

Thanks for all the advice.
Ivan

]]> 8d2371eb04dc91170c30cfb2376d6e01 IvanWarwick replied to the topic Sore toe and leg in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-toe-and-leg#post-104131 Mon, 22 Aug 2011 22:49:38 +0100 I do wish I had been drinking, thanks that's a good idea I'll ring tomorrow.
Ivan

]]> 5463378d7f32c5866772593db888e24d IvanWarwick started the topic Sore toe and leg. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sore-toe-and-leg Mon, 22 Aug 2011 21:10:29 +0100 Hi I'm still on CDT or is it CTD I can never remember anyhow I have been having problems these past few days firstly with a very sore big toe and then with a pain down the same leg when I walk. First I'll tell you about the big toe, it started a couple of days ago after walking about 4 miles or so around shops etc. That evening it started to…[Read more]

]]> dcd7f4462fd50e73eccc4312b57a32d7 IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma/page/3/#post-84830 Fri, 05 Aug 2011 03:27:24 +0100 Firstly I would like to thank everyone who has left me comments and advice they are all much appreciated and I have to say, Jet you page is fantastic keep it up I'll be reading it regularly.

Its 3:30 in the morning and I'm not sleeping as I'm a little angry and upset so I thought I would drop on here and view my comments cos I know you all…[Read more]

]]> c73c3633da798d904d10ef35656cb522 IvanWarwick replied to the topic Starting Chemo in the forum General http://www.myeloma.org.uk/forums/topic/starting-chemo#post-90858 Tue, 02 Aug 2011 08:48:35 +0100 Thanks for that Carol I may just take you up on that if i feel grumpy.

]]> 2c22089a65eeb49f281565947bb681a1 IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma/page/2/#post-84823 Tue, 02 Aug 2011 08:45:33 +0100 Thanks Carol

That is great information most encouraging, I'm on my third day of CDT and still not reaction to any of the tablets thank goodness although It's still early days, the only thing I'm getting is the hiccups and if that's the only side effect I'll be so glad. Did you get treatment in 2005 if so what treatment did you…[Read more]

]]> 8ae17f45f8cbba8e90d37e92fbc86e1f IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma/page/2/#post-84819 Sun, 31 Jul 2011 10:39:09 +0100 I have just started CDT today so I'm on my way. Well I have started CD and will be taking the T at bedtime. Now its a waiting game. Very informative Eliz about your experience I'm not sure how I will react to any of this however I'm optimistic. I cant believe that I have just taken that many table I normally don't let a tablet pass my lips. Boy…[Read more]

]]> 3706638bc34f7c9a21576eea10c9442e IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma/page/2/#post-84816 Sat, 30 Jul 2011 12:36:34 +0100 Eliz

Thanks for that, how did your SCT go in August and how have you been since.

Ivan

]]> 0761dd741460075f797db917af3c3e8f IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma/page/2/#post-84814 Sat, 30 Jul 2011 12:31:27 +0100 Eve

Yes they did give me all the information about taking the tablets. I'm most impressed with the nurses and my Consultant at my hospital in Antrim N.Ireland (Laurel House), I'm luck in that's its only about 10 minutes from my house.

I'm at my caravan right now in Portrush (north coast of N.Ireland) its my retreat and I have decided to…[Read more]

]]> 8d5a11168ef5dde3403b3f5a84dd794c IvanWarwick started the topic Starting Chemo. in the forum General http://www.myeloma.org.uk/forums/topic/starting-chemo Sat, 30 Jul 2011 06:34:44 +0100 I'm suppose to start chemo treatment today. I have all the tablets and injections to start my chemotherapy in one big bag. Its a simple process I take 10 cyclophosphamide chemo tablets at once along with a 4 day course of steroids and a thalidomide tablet and a blood thinning injection. Then another 10 tablets again in a weeks time etc for 6…[Read more]

]]> 677bc04c1aabc64b21ad961dc02bc344 IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma#post-84811 Sat, 30 Jul 2011 05:53:32 +0100 It was a 3 hour consultancy where we talked about everything on my list and she was so impressed by my health that she asked if I wanted to start treatment right away as I was in good condition to fight it. So guess what I'm about to start treatment in a couple of hours for now. I have all the tablets and injections to start my chemotherapy in…[Read more]

]]> fa4bbd68820b9066cce4be4b95e46704 IvanWarwick replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma#post-84803 Thu, 28 Jul 2011 23:33:47 +0100 Thanks for all your reply?s its much appreciated, it?s good to know that I?m not alone. I?m going to the doctors tomorrow with the list of questions and my partner Cathy is coming with me, I think 4 ears are better than 2 in this instance. Like you Helen I?m thinking they may have the wrong name on the test tubes. I went into hospital for tests…[Read more]

]]> 9d8139de94eb9959a850c15252c9bffe IvanWarwick started the topic Only Found out 3 days ago I got Myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/only-found-out-3-days-ago-i-got-myeloma Thu, 28 Jul 2011 02:55:10 +0100 I'm 52 and have found out 4 days ago I got Myeloma. I believe I'm still in shock, the problem is I feel fine at the moment the only symptoms I have are swollen legs and tiredness / lack of energy. I have broke the news to my partner, daughter 23, son 20, mum and sister which was a very difficult thing to do. I have cried along with them all, we…[Read more]

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