jackie0503 replied to the topic MM/LPL and Kidney Failure. in the forum Related conditions 12 years ago
Hi Martin
Hope you don't mind me sending you a message?
My mum has been diagnosed with mm and she has got kidney failure. She has dialysis 3 times a week. Am I right in thinking that your kidneys have gotten better over a long period of time? I keep seeing that people are told to drink plenty of fluids but my mum has been told to only drink a…[Read more]
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi
No ive not been to a group yet but I am hoping to soon. My family and I have booked on one of the info days with myeloma uk so hoping to get more info then.
Good to hear from you
Best wishes
Jackie
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi Jane
Do you know what treatment you will be having?
Have you got any children? good to hear you have a supportive family.
My husband has been really patient and I have 2 beautiful girls who are 5 and 2. I have got to stay strong for them as well as my mum. Had a lovely mothers day with her and the girls yesterday, although mum has been…[Read more]
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi Phil
What is the myeloma x1 trial?
Jackie
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi Mavis
Thank you for your message it really is appreciated.
Kind regards
Jackie x
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi Phil
Good to hear you are doing so well. Its very encouraging to hear. Are you having dialysis? mum is having it 3 times a week. She has only had one chemo injection at the moment as it affected her liver. They are hoping to restart treatment this week if her bloods are ok.
Thank you for your message xx
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hello Jane
Thank you for your message and so sorry to hear about your diagnosis.
How are you getting on with the treatment?
Kind regards
Jackie
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hello Tony thank u for your message. I hope it finds you well and you get a good result from the sct. We are also in Leicestershire. Is the support group at Helen webb house? Is your cancer nurse specialist Jenny?
Mum is not having any treatment at the moment as it affected her kidneys. Hoping she can restart next week if the bloods are a little…[Read more]
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Hi Emma
Fortunately mum has got no problems with her bones at the moment. She has only had one injection of chemo so far as they have had to stop it as it was affecting her liver. Hopefully they will be able to restart it next week. She has been fainting a lot as her blood pressure has now gotten really low. Its so hard seeing her so poorly and…[Read more]
jackie0503 replied to the topic my mum in the forum Newcomers 12 years ago
Thank you jean for your message. I hope your husband is doing well
Kind regards
Jackie x
jackie0503 started the topic my mum. in the forum Newcomers 12 years, 1 month ago
Hello my name is Jackie and on the 14th feb my world fell apart.
My mum has been diagnosed with mm and acute kidney failure.
She is having dialysis 3 times a week and chemo twice a week.
Would love some words of encouragement and advice. My mum is staying really strong and says she is going to fight it all the way I just hope she can keep up…[Read more]