[jackie0503Participant]

Hi Martin
Hope you don't mind me sending you a message?
My mum has been diagnosed with mm and she has got kidney failure. She has dialysis 3 times a week. Am I right in thinking that your kidneys have gotten better over a long period of time? I keep seeing that people are told to drink plenty of fluids but my mum has been told to only drink a maximum of a litre a day???
Thanking you in advance for your reply
Kind regards
Jackie

[jackie0503Participant]

Hi
No ive not been to a group yet but I am hoping to soon. My family and I have booked on one of the info days with myeloma uk so hoping to get more info then.
Good to hear from you
Best wishes
Jackie

[jackie0503Participant]

Hi Jane
Do you know what treatment you will be having?
Have you got any children? good to hear you have a supportive family.
My husband has been really patient and I have 2 beautiful girls who are 5 and 2. I have got to stay strong for them as well as my mum. Had a lovely mothers day with her and the girls yesterday, although mum has been struggling with blood pressure and had a funny turn in the morning. She was much better after a sleep.
What symptoms do you have at the moment?
Best wishes Jackie xx

[jackie0503Participant]

Hi Phil
What is the myeloma x1 trial?
Jackie

[jackie0503Participant]

Hi Mavis
Thank you for your message it really is appreciated.
Kind regards
Jackie x

[jackie0503Participant]

Hi Phil
Good to hear you are doing so well. Its very encouraging to hear. Are you having dialysis? mum is having it 3 times a week. She has only had one chemo injection at the moment as it affected her liver. They are hoping to restart treatment this week if her bloods are ok.
Thank you for your message xx

[jackie0503Participant]

Hello Jane
Thank you for your message and so sorry to hear about your diagnosis.
How are you getting on with the treatment?
Kind regards
Jackie

[jackie0503Participant]

Hello Tony thank u for your message. I hope it finds you well and you get a good result from the sct. We are also in Leicestershire. Is the support group at Helen webb house? Is your cancer nurse specialist Jenny?
Mum is not having any treatment at the moment as it affected her kidneys. Hoping she can restart next week if the bloods are a little better.
Kind regards Jackie

[jackie0503Participant]

Hi Emma
Fortunately mum has got no problems with her bones at the moment. She has only had one injection of chemo so far as they have had to stop it as it was affecting her liver. Hopefully they will be able to restart it next week. She has been fainting a lot as her blood pressure has now gotten really low. Its so hard seeing her so poorly and feel so hopeless. Hope your mum is doing well and you have had a nice mothers day. We have had a lovely day with mum, just hope we get many more with her.
Jackie xx

[jackie0503Participant]

Thank you jean for your message. I hope your husband is doing well
Kind regards
Jackie x

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