Jackie2026

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  • #152194

    jackie2026
    Participant

    I saw the private Consultant today who happens to do some NHS work as well.
    The Consultation was the difference between night and day.
    He explained everything in great detail including the importance of the biopsy.
    He also is organising a full body MRI within two weeks.
    My spine one shows lesions, but not serious in terms of the structure.
    He said he has many patients who he looks after they have lived about 12 years plus.
    Plus he spoke about his RADAR trials.

    #152175

    jackie2026
    Participant

    Hello again

    Thank you for all of your replies, it is very reassuring that others are in the same boat.
    My Consultant said that I have four years left, which I thought was very harsh.
    I have an MRI on Wednesday for my spine only for now, even though my Sternum seems to be my main issue.
    My symptoms seem very progressive from doing my parents shopping last year until now.
    I have got a private consultation on Wednesday, which I am hoping will be more positive.

    Jackie

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