Myeloma Forum | JacquiReeks | Activity https://forum.myeloma.org.uk/members/jacksprat/activity/ Activity feed for JacquiReeks. Thu, 23 Apr 2026 14:56:49 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 478ed642eca42bce4e1261190ff93104 JacquiReeks replied to the topic velcade in the forum Newcomers http://www.myeloma.org.uk/forums/topic/velcade#post-86814 Fri, 19 Oct 2012 23:47:54 +0100 Hello Michael, my name is Jacqui.

Like Josephine I had initial treatment with oral CDT and I was very fortunate to achieve a complete response in 3 months. I went on to have STC and I am now on a clinical trial with weekly treatment with velcade.

It was explained to me that it is usually used for patients who have already had at least one…[Read more]

]]> 952d402e78d1fc396bb25822de952cf4 JacquiReeks replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/6/#post-100248 Sat, 22 Sep 2012 00:30:46 +0100 Hi Ali & Vicki. I am now 4 months post SCT and no one has mentioned immunisations. My next appointment is next week so I will ask then. My holiday aspirations are a little closer to home and I am really hoping to have a holiday to the Greek island with extended family next summer. Missed out last year so fingers crossed all will be well for next…[Read more]

]]> a461b12b9c26e30bb156bbc5038069de JacquiReeks replied to the topic My dad... in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-dad1346884470/page/2/#post-100465 Sat, 22 Sep 2012 00:18:03 +0100 Hi Joanne. I am sorry that your dad is going through a tough time and I can imagine it is very difficult for you.

I started on Velcade 3 weeks ago so I am no expert but just wanted to let you know that so far I am feeling very good. I am working 3 days a week and also running around like a headless chicken with my daughters.

I have it once…[Read more]

]]> 5ead1d64aea2a07720353a1fbbcad61b JacquiReeks replied to the topic ASPARTAME??? in the forum General http://www.myeloma.org.uk/forums/topic/aspartame#post-93482 Sun, 09 Sep 2012 23:54:11 +0100 Thank you Dai & Helen
I don't really know why I went onto that thinking. Probably because I am curious as to why MM was not historically common in women and especially not young women yet it seems to be quite increasingly evident lately.
Anyway, I think I need to stop quizzing and just accept it, but I've always have an enquiring mind, even as a…[Read more]

]]> 77874ae4ae3cc8e995adb7fe25378c1b JacquiReeks replied to the topic ASPARTAME??? in the forum General http://www.myeloma.org.uk/forums/topic/aspartame#post-93478 Fri, 07 Sep 2012 09:00:46 +0100 Hi Michele

Thank you for your reply.

Yes, same here. I will not let my children drink diet drinks and avoid anything that says "no added sugar" as I have found this usually means aspartame is present. Before you became aware of it's toxicity did you buy products with aspartame?

Looking at your profile you seem to be very similar to me. I…[Read more]

]]> b52c41e827c7ad913fdd167060218d68 JacquiReeks started the topic ASPARTAME???. in the forum General http://www.myeloma.org.uk/forums/topic/aspartame Thu, 06 Sep 2012 23:28:53 +0100 In my puzzling as to why so many younger women are developing MM, I was questioning my somewhat excessive use of the artificial sweetner Aspartame in my quest to lose weight (for many years).

This lead me to think that dieting is generally more of an issue for women (plse dont think i am being sexist) and got to thinking how many would be…[Read more]

]]> bc8fa1e42216e2fb64c1a68f4eee6e2a JacquiReeks replied to the topic My dad... in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-dad1346884470#post-100451 Thu, 06 Sep 2012 23:16:52 +0100 Hello Joanne
I had my stem cell transplant in May of this year, just under 4 months ago. Like your dad I had previously been treated with chemo, steroid and Thalidomide. The worst part of that for me was the steroids but apart from that it wasnt too troublesome, although looking back I realise I was far from the person that I was prior to the…[Read more]

]]> 54d9b595543af76a6371fc8d5518f1b9 JacquiReeks replied to the topic Hello again to all in the forum Treatment http://www.myeloma.org.uk/forums/topic/hello-again-to-all#post-100374 Tue, 04 Sep 2012 20:11:56 +0100 Thanks Tom

Aim is to see if weekly Velcade given within 4 mnths of SCT extends remission. Thing is I can't really see how they will know but hey ho I'll give it a try.

Jacqui

]]> 3bd6e97b675544227f576d8358a9c5c0 JacquiReeks replied to the topic Hello again to all in the forum Treatment http://www.myeloma.org.uk/forums/topic/hello-again-to-all#post-100372 Tue, 04 Sep 2012 19:32:14 +0100 Hi Paul

Good Luck with the Allo. When you say you have been offered clinical trial for that – do you mean the same one as me or for your allo?

Getting my first dose on Thursday. Will keep the updates on "TREATMENT" part of the forum.

Jacqui

]]> ea2f1639bb9d35b11c7fecdb4a3cc2cd JacquiReeks replied to the topic Hello again to all in the forum Treatment http://www.myeloma.org.uk/forums/topic/hello-again-to-all#post-100368 Tue, 04 Sep 2012 18:46:42 +0100 04-09-2012 at 6:44 PM
Hi Tracey

I have posted a general reply to my original post but just wanted to say that I am also being treated at The Royal Free.

Like you, I tend to look on here according to my moods. Not because I don't care about others, but because for me I find it easier to keep my spirits high if I do not focus too much on my…[Read more]

]]> 4e259cb3e4109ee449645387a36a52cc JacquiReeks replied to the topic Hello again to all in the forum Treatment http://www.myeloma.org.uk/forums/topic/hello-again-to-all#post-100370 Tue, 04 Sep 2012 18:39:55 +0100 Thank you all so much for replying. I finally got to the bottom of my questions and basically it is something to do with a chromosome abnormality known as 4:14 trans-location ????

I don't really understand what that means but just understand that is the "aggressive" bit that my consultant is talking about.

After over 2 weeks of swinging…[Read more]

]]> adb30d20db0e8263106244619fac1f93 JacquiReeks replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100419 Tue, 04 Sep 2012 18:19:53 +0100 Hello Catlyn

My name is Jacqui and I am almost 4 months post SCT.

A bit of history :- I was diagnosed in November 2011 aged 51.

Following surgery to fix a lesion in my right femur which was picked up on diagnosis of MM, I started on CTD. 3 cycles of treatment resulted in 0 detectable paraprotein. I then had one more cycle until end of…[Read more]

]]> 9a3360b64376c3a61a80aff741454d6e JacquiReeks replied to the topic Feeling Useless in the forum Newcomers http://www.myeloma.org.uk/forums/topic/feeling-useless#post-86614 Sun, 02 Sep 2012 21:54:04 +0100 Hello Maxine. My name is Jacqui. I am 52 and was diagnosed with MM in Nov 2011. I live in London and I am under the Royal Free Hospital. I don't post on here as often as I would like to because I always seem to be so busy with my 2 daughters (aged 19 & 12), but whenever I do people are always kind enough to reply so I am sure you will get plenty…[Read more]

]]> acd4837a47c98a4ceec7d50a77792594 JacquiReeks started the topic Hello again to all. in the forum Treatment http://www.myeloma.org.uk/forums/topic/hello-again-to-all Fri, 24 Aug 2012 21:14:39 +0100 Hi everyone. I haven't posted for a while as been quite busy getting on with life with the children before they go back to school and university. I am sorry to seem to be only posting now that I need something and I hope you all don't mind.

As you know from my previous posts I had my SCT on 18th May. Now recovered and getting ready to return…[Read more]

]]> f1911134c112416888060041ebb9fd6c JacquiReeks replied to the topic getting ready for stem cell tranceplant in the forum Newcomers http://www.myeloma.org.uk/forums/topic/getting-ready-for-stem-cell-tranceplant#post-86495 Fri, 24 Aug 2012 20:59:17 +0100 Hello Angela

I am Jacqui, aged 52 and diagnosed with MM in November 2011. We are very similar in our situation as on diagnosis I presented with a fractured hip. I immediately had an operation where a pin was put in my right leg to support the hip. All quite straight forward but I appreciate is was not a hip replacement so not quite the same as…[Read more]

]]> 2cb08e4f25d5b3fe4b523fc22b7c435d JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all/page/2/#post-85678 Tue, 05 Jun 2012 08:21:35 +0100 Good Morning All. Just a quick update to let u all know that I came home.on Saturday following my SCT. So how was it for me? Well the results.show that I am in complete remisssion with no trace of paraprotein 🙂
I have to be honest and say it was certainly not plain sailing but i dont want to dwell on that because it is behind be now and…[Read more]

]]> aa69995436a39a390c6749fd7271ae89 JacquiReeks replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-monday-at-only-39/page/2/#post-86094 Sun, 20 May 2012 20:03:46 +0100 Dear Antionette. My heartfelt thoughts to you especially in relation to you having such young children. Although i am older than you and my children are older than yours, i truly understand how you must be feeling right now. You know it does sometimes seem so unfair but the raw fact is that we cant change what we have. The only way I can deal with…[Read more]

]]> 1a1d8286279fd7f0bf80d6556d402e3b JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all/page/2/#post-85669 Wed, 16 May 2012 22:04:44 +0100 Hi Vicki & Colin
My treatment so far has been ok. My main problems came from Dexamethasone with tremors and general weakness being at the worst 2 days after stopping each cycle. I have tried to be positive about this as there is nothing I can do to change my affair with Myeloma. On just a few occasions it has been hard and I have sobbed but i…[Read more]

]]> 0e31bc7739ae3a8b1495b29758d55920 JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all/page/2/#post-85665 Wed, 16 May 2012 07:53:57 +0100 Thanyou Dai for your positive and understanding message. I have just posted a brief update below. Jacqui

]]> 381f053d3202faf7b6d3531398accc11 JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all/page/2/#post-85667 Wed, 16 May 2012 07:52:21 +0100 Hello again. Just a quick update. Now in hospital waiting to have my hickman line put in and then high dose melphalan. Mixed emotions as children left in tears yesterday but doing my best to keep thinking positive thoughts. Jacqui x

]]> c3cda710e323ace6764d5d4f9608c528 JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all#post-85663 Thu, 03 May 2012 21:53:28 +0100 Hi Ali
My harvesting was a breeze. No problems at all and they got everything they needed and more 🙂

My Children are just 18 and 12. They both started their own new journeys in September last year, just before my diagnosis in November. The eldest started university and the youngest started secondary school.

I was immediately admitted…[Read more]

]]> d5848a20728cb6572d13e897f87f0769 JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all#post-85660 Tue, 01 May 2012 22:11:03 +0100 Hi again. I can see i will have to get used to understanding how the threads work. I have now managed to find your original post and i see that your mum has been on treatment so I apologise for my question about it.
Jacqui x

]]> 224045f6044c7bd5f85dba934bf0d3b8 JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all#post-85659 Tue, 01 May 2012 22:03:03 +0100 Hi Alison. Not entirely sure how the replying system works but hopefully you can see my updated news which gives my treatment regimen. Please ask if you want more details such as dosage etc. Has your mum started treatment yet?

Jacqui

]]> ab4c567f2a2cd651964c9d9bd08510af JacquiReeks replied to the topic Hello to All in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all#post-85653 Tue, 01 May 2012 21:56:20 +0100 Many thanks to all of you for the warm welcome. I am afraid all the terminology is still quite new to me but I will attempt to tell you where I am with my journey.
I was diagnosed with stage 2 IgA MM and multiple lytic lesions. I had been limping around all summer having been told I had mild osteo-arthritis. In fact, I had a fractured hip which…[Read more]

]]> f8cccc34452bea85cc97b44612e47582 JacquiReeks started the topic Hello to All. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-to-all Mon, 30 Apr 2012 18:51:39 +0100 Hi Everyone 🙂 I am new to the forum and i am afraid I don't really have anything specific to say at the moment but just wanted to introduce myself. I am a 52 year old mother of 2 beautiful girls and was diagnosed with MM in November 2011.

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