Hi Dai,

Sorry to hear of the waiting, we too have to wait and now expect it. We are gobsmacked if we are even within half and hour of appointment. That said Colin has elected for no maintenance treatment, due to wanting quality of life so our next appointment is in two months time!

You made me laugh about Janet's baking, that was hilarious…[Read more]

Jean

I hope the Hickman line went ok…. The hospital was really good. When Colin was in isolation they let me stay through from one visiting time to another. It was usually 3 to 430 and then again at 6 til 8. I just stayed there all the time, quiet in the corner, and they'd probably say asking lots of questions, :-). I gave the nurses some…[Read more]

Great blog Tom, and yes this treat,net doesn't come cheap!

Keep going it will be worth it!

Vicki and Colin x

Hi trish

The waiting is so hard isn't it! Hope the results are as good as they can be. Plenty of reassurance and then knock the mm thing into touch x

Vicki and Colin x

Maureen

I hope Ian is home soon, it's so hard isn't it. The other half is just that! Physio will be good and with perseverance , not always easy, things will come good 🙂

Vicki and Colin x

Dear all

Thank you so much for your kind words and support. It's been a funny old week really, and we still can't get our heads around it! Being normal is a lot harder than we thought! The extra good news was that there was a possibility I might have been made redundant (Vicki) and had to compete for my job…..heard yesterday that I got it…[Read more]

Hi David

Sorry to hear your mm is on the move….on a positive point as Keith said, it's not a huge leap. Hope the MRI scan doesn't reveal anything untoward, keep strong and as Tom says, on wards and upwards xxx

Vicki and Colin x

Hi frank and jean

The chemo that Colin had lasted about 35 minutes! Before the high dose chemo he had lots of other meds/ fluids. I was there when he had the chemo….I was amazed that a little bag for such a short time, could do so much damage! In a good way! There is no doubt it's scary, in different ways for both you and frank but when the…[Read more]

Hey Ann and Pete,

How did I miss the start of your sct! Ann, keep us posted…..keep your chin up and tell Pete he will soon be swinging that golf club again. It is a hard road but boy it's worth it!

Take care and if there is anything we can help with let us know

Vicki and Colin xx

Hi all,

Thanks so much for your support. It's so good to know there are people out there who understand. Tom your a show off with the drink, I have one glass and start to swim, two don't go there and three are hangovers are us!

Ali, sorry to hear your mum has had a rough time, I often think of you all as she was our benchmark. I don't know…[Read more]

Jean and frank,

Firstly what a lovely picture, is that a grandchild there :-). So lovely. Time to put the Vicki head on and get someone to be a bit organised……question when and where's the bed. It's giving frank too much time to think and you too…..we have a friend of the family who was due to have sct same time as Colin but due to one…[Read more]

Hi Dai,

Well what a mixed bag…..these light chains, never know where you are with them but at least they've gone down a bit even though they were higher than you'd first thought….does that make sense?

What a great win Wales had against France…….France for the wooden spoon, is that possible. Next is myeloma beaten into touch and a…[Read more]

Helen,

When I read your post I could've screamed, bugger! You can't be…..could it be a blip! Damn this mm, but you can put it back into its box. It's a blow but you can do it. Enjoy your Barcelona trip, relax and one positive……no cough! 🙂

Vicki and Colin x

Well done pat, I can relate to achieving the small little milestones as that what Colin says. But they're not small they are whacking great achievements, keep going 🙂 good on ya x

Tom,

When We read this…..hooray hooray hooray hooray. That's so so brilliant. You and young bride up the club now I bet. 🙂 now what's in that vodka. Must be something special. What a brilliant result and you deserve it after all the support you give the rest of us 🙂

Onwards and even more upwards :-)))

Vicki and Colin x

Hope you guys never need them 🙂

At lest you have them in the bag though 🙁

Vicki and Colin x

Hi jean and frank,

Try not to think of the pps! The consultant never mentioned what Colin's was before we went for sct so we had no idea! Megan is right about the cleansing, we couldn't get our heads around the fact that they were putting old infected cells back in. When we saw the stem cells nurse she explained to us. Firstly there is the…[Read more]

Trish

Just wanted to say sorry to hear of the relapse…..I do believe this velcade is a very positive drug. Still I can understand how fed up you both must feel. One year isn't long enough 🙁

Thoughts are with you, on a positive note these drugs are getting better and better!

Vicki and Colin x