Hi heather,

Welcome. My partner Colin was diagnosed in October 2011, it was like a miserable bolt out of the blue! And like you we were shocked to the core. However he has had several months of revlimid, cyclophosmahide and dexamethasone resulting in a stem cell transplant this last October 2012. He has been out of hospital nearly 6 weeks and…[Read more]

Keith,

Just a quick note to say we hope your treatment is starting to pay dividends. You've gone through the mill, but some of those latest numbers have shown an improvement haven't they? We hope so for you, so come on, gird your loins and make 2013 a gud un! 🙂

Vicki and Colin x

Hi Dai and Janet, and you onwards and upwards Tom,

Firstly happy new year to you all 🙂

Good luck with this treatment Dai, you deserve it, especially after your battles with amongst other things, the c-diff!. You will do it!

Vicki and Colin x

Hi all,

Yep lets all celebrate big and little things…..we've come to the conclusion any excuse to celebrate, and make the most of everything! Colin is still happy to be home, even though I nag him(not much :-)), to slow down! Helen it's great to hear good news stories, they sure helped, and still help us now. It's good to be part of others…[Read more]

Hi Megan, frank,jean and Tom,

Firstly Megan so pleased to hear that phils neutrophils are on the way up. It's such a good feeling when that happens isn't it!, for you and Phil both. The medical teams are so thorough with watching the infections. Colin and I were both extremely worried about that but we could see that the hospitals have an…[Read more]

Hi Dai and Janet,

Glad you had an uneventful time, less poor little alfie! We hope he feels better soon and was able to still enjoy santas visit!. We spent christmas eve at the hospital.. Colin got a virus, now on tamiflu and antibiotics!. Thankfully his bloods were well up before to cope…..but now they are down to the basics! So fingers…[Read more]

Hi Megan Jane

We did think about you over Christmas. It must be so hard dealing with it at a festive time when others are jollying it up! Still as others have said, the more days that go by, the closer it is to getting Phil home. It really is such and individual journey. Colin did not have much sickness but he had the tummy upset. His was more…[Read more]

David

Very best of luck….no need for coffins. Will just be a blip. You are an inspiration to us with your cheery spirit, so no relapses allowed here 🙂

Have a great Christmas and new year!

Vicki and Colin x

Hi Megan and Phil,

Just tuning in to see how things are going and wishing you both well. Don't underestimate how hard it is for you too Megan. I was and am exactly the same as you…..worrying whilst your there, and when you are away as you can't see what it going on, are they doing it right?, are they looking after him etc etc :-(, I feel like…[Read more]

Megan,

So pleased Phil got his own room, I was telling Colin about the shared situation this morning. I know I would've had meltdown as I'd have been convinced Colin would have caught something off someone else! You just want the best for Phil and I'm pretty sure I'd just be keeping a close eye on what's going on! (bet they were glad to see the…[Read more]

Hi steve,

Welcome :-), to the group no one would prefer to be in! My partner Colin was diagnosed at 55, having had no symptoms except a bad back, which he's had on and off for years so it seemed no different. Bottom line was he was diagnosed with mm October 2011 and went through induction treatment and had his SCT October 2012, so we are in the…[Read more]

Well done Andy,

A very merry Christmas to you and steph 🙂

Vicki and Colin x

Ps Colin in bed with what seems like the start of a cold. Pound to a penny we'll be up to the hospital tomorrow….bet ya! Still 🙂

Hey Megan,

I remember that sweetcorn smell, and was always very polite to say to Colin I could hardly smell it (little White lie as it would waft in and out!), for a number of days I could smell it long before I even got to the door to his room!

Reading your posts certainly takes us both back to a very trying time. I can remember crying when…[Read more]

Ho ho ho Dai and Janet,

Home for Christmas:-) and we hope top gun Janet did not get a speeding ticket lol!

You guys have a peaceful and healthy christmas and new year 🙂

Vicki and Colin x

Hi all,

Thanks very much for good wishes etc. It was s real shock for Colin as whilst his dad had been in hospital for pneumonia which in itself was serious we did not expect cancer and for him to pass away within a week of being told about it! The hard bit as you say chris is dealing with it all. We went to Stratford where colins parents live…[Read more]

Hi Tina,

Glad you are feeling a bit better and turning that corner.. Colin also drank the milk shake by the bucket load!

Keep the good progress going. Happy Christmas

Vicki and Colin x

Hey Helen,

Congratulations and keep posting the good news….it's encouraging and shows that there is a good life after SCT :-). So pleased for you and your family. You need to keep going to see the hobbit series now :-). and you look like a 45 year old so that's a great move too…..I reckon it's all those new young stem cells!

Happy…[Read more]

Hi Jean and Frank,

7.2 million, gosh that's a massive score……in the back of the net ha ha 🙂

Result that man, no pain no gain was right. Always good when those pains prove dividends.

Happy christmas to you both!

Ali…. Hope your mums doing well 🙂 fingers crossed

Ann and pete, any news on what your next steps are?

Best to…[Read more]

Oh Dai

Now I see why you are in hospital. How things can change in such a short space of time!. And still that flipping c diff reared it's ugly head!

Fingers crossed for you and janet for a lovely Christmas

Vicki and Colin x

Hi ann and pete,

Sorry to hear you had a disappointing day……been there done that and got the t shirt!. It's he'll isn't it! Waiting for those blood results to see if they are going to collect is a bugger! Colin did not even get on the machine the first attempt, or the second attempt. It was only when they hot the plerixafor that he just…[Read more]