Andy

Thats wonderful news. You should have more sunny holidays and then those pps will be dropping again. So glad to hear that despite the cough and cold etc on your return.

We are back on the treadmill. Gcsf injections started yesterday, prelixafor Tuesday night and then we are down to Bristol on Wednesday for another gomat harvesting. I'm…[Read more]

Mary

Just picked up in the thread. You and Charlie are having a really rough time! Gosh there has been some eventful situations for you both to say the least…..no more shed roofing for either of you 🙂

I can't offer any help with the blood clot but I can offer you my experience about stress in supporting my partner. There were days when I…[Read more]

Hi Joanne

Sorry I'mjust catching up with posts too. I'm really sorry your dad had to go through that and you all are going through it with him! There is certainly no easy route through tis myeloma but we've all (watchers and sufferers) go to believe that it is do able, slim, Tom,david, debs, Helen, Ali's mum. I just go through the list every…[Read more]

Mari

Just wondering how things are going, and to say hi and hope all is well:-)

Vicki

Thanks very much Joanne

Then date for harvest is getting closer….injections start Saturday. :-). We are holding our breath and everything crossed. That's quite hard to do LOL 🙂

Vicki and Colin x

Eve,

That's wonderful news and really encouraging for us who are on your coat tails! Best of all though it's great for you gys after all you've been through.

🙂

Enjoy whatever you have planned next

Vicki and Colin x

Hi Mary

Sorry to hear about stans collapse. That must have been very frightening for both of you! It seems a long time not to have more information…..push them for some !, Colin always tells me I'm too pushy, but knowledge and an understanding of what's going on, for both your sakes is really important.

You take care of yourself too. I…[Read more]

Hi Nicola,

Just catching up with your posts. My parter Colin was diagnosed in October 2011. During his initial treatment, 7 cycles of cyclophosphamide, dex and revlimid, he got very very tired and could fall asleep at the drop of a hat. He had short bursts of energy and then al of a sudden would just disappear and he'd have to have a rest. On…[Read more]

Hi all,

Tom, firstly your kind words make us feel humble….it's lovely to know there is such support x. We will have that shoulder charge in our minds eye at every turn! :-).

We have had a lovely day today….Colin has had really good energy, and has said he feels hungry which is great to hear.
He's looking pretty cool at the moment,…[Read more]

Hi ann and Jean,

Ann, re peters numb extremities and the swollen ankles. Can't help on the swollen ankles but i am sure I have read about a lot of people mentioning slight numbness……is that the peripheral neuropathy thing?, if so I think there is a leaflet on the site here somewhere. I think it is quite common but I did not hear Colin…[Read more]

Hi Pia,

Welcome to the forum! You will find so much information, care and support from friends on this site. No question too small. Best wishes to your mother in law, and success from the treatment. It's a hard, individual road but one worth taking xx

Vicki and Colin x

Hi Mari,

Just sending some best wishes and here's hoping you and Stephen are ok…..:-) love and hugs from this end!

Vicki and Colin x

Hi Andy and steph,

Hope the hols are going well, from the southern softies, with the central heating on :-), still not as warm as kefalonia!

Vicki and colin x

Hi and welcome to the forum,

You will find lots of information, friendly support and banter on here. It really does help. No question too small to be responded to,

Take care 🙂

Vicki and Colin x

Hi Ali and Tom 🙂

We are still here, and good to know you are thinking of us!. All well with the SCT nurse yesterday. Again very helpful and informative. Getting our heads around it again…..we almost know those consent forms off by heart! I am still not going to put those dates down, as I don't want to tempt fate, but god willing when those…[Read more]

Emma

Just wanted to say hi and that you are a real star in dealing with this from such a very young age. Wishing you all the luck in the world with your treatment. Will have a look at your blog. My partner Colin was diagnosed age 55 is on myeloma 11 trial and waiting for an SCT.

Keep your chin up 🙂

Vicki and Colin x

Hi Mari,

Just been catching up on Stevens progress! It does seem like he is going through the mill, and it's amazing how the memory dulls the angst that was probably there the first time round! We really hope that Stephen will soon be on the up, and those neutrophils shoot right back up. It must be so hard to watch someone you love feeling so…[Read more]

Hi all,

We've just been catching up with all the posts. Ali, first of all it's no problem to hear your updates……nothing is ever a moan. It's so good to know that there is life after SCT! With this weather anywhere would be great wouldn't it!

Andy, it's so great to hear that you and steph have got away…abroad as well. Very brave but so…[Read more]

Hi Tina,

Well done on those cells 😉

Colin had one big dose of RT. He said it made him feel tired, a bit breathless and a bit sicky but not too bad. It was the tiredness more than anything and we had to put cream on the RT site to make sure the skin stayed soft. Other than a brown mark where the RT went in. No visible or ongoing…[Read more]

Sarah and Henry

That's wonderful news for you both"….long may it continue. Relax and enjoy 😉

Vicki and Colin x