Hi Ali,

Hope you had a great birthday. Wondered how your mum was doing? Colin has had a rough day following his cyclo priming, but is eating quite well so I'm happy 🙂

Vicki and Colin x

Hey thats great news for your mum, and you Jill,

This mm thing is hard at any age but your mum at 83. What a fighter. Keep on going and keep well x

Vicki and Colin x

Hi Scott

I really hope this drug works for you. Like you say this condition is a real roller coaster. I am pleased to hear you can still play golf. Colin used to play and awful lot of gold so this will give him some heart that it's still possible to play golf with mm!

Good luck to you

Vicki and Colin x

Hi Tom,

Thanks for the support, will pass on your best to Colin. Well he's home, said he felt washed out and a bit swim my and like he wasn't here if that makes sense. Just packed him off to bed with sickness tablet and some other ones to do with the bladder. Then I can wake him up with another sicky type table at 9pm and another one we are…[Read more]

Well what a blinking day so far!

Went to hospital 0930am today. Appointment 10am. Colin went in at 1115, and they did obs(I assume blood test stuff!). We then found out that his neutrophil count at the hospital last Monday had been 0.6, so there a possibility no chemo today. That's the first up and down of the roller coaster. THEN, neutrophils…[Read more]

Good luck dai,

Hope they can sort it and beat it into submission. That infection has had it's fun for long enough

Vicki and Colin

Hi Tina,

Hope you enjoy your break. Colin had his Hickman line fitted recently and he has got on ok with it. We had a bit of a false start with the stem cell harvest, first one failed, but apparently very common that happens. He is having cyclphosmhide cycle priming today and ready for gcsf injections next week. Then harvest again 3/4…[Read more]

Ali

Thanks so much. No he is just in for the day we are told. Fingers crossed, and thanks for thinking of us. Not sure what he is dreading most….the chemo or me doing some DIY painting the porch (not my strongest skill, wanting it all done yesterday is my problem!).

Hope you have a great day and your mums doing well, will keep you…[Read more]

Happy birthday Ali,

Hope you have a great day and your mums feeling good to enjoy it too xxxx

Vicki and Colin

Hi Pete and ann,

Glad the appointment went well and the blood counts playing ball. Like you say if they don't seem too worried about the swelling then I'd try to reassure yourself that it's ok. I hope they can do something for Peres back pain. Colin does get it occasionally,even with the painkillers. Colin was a bit fed up as when they measured…[Read more]

Hello Craig and etta,

Very best of luck to you both. Really hope that etta feels better soon….and for you Craig the disappearance of the sweetcorn!. That sickness must be really tough. I am sure I read on Ali's post about her mum not tom wait until you even feel sick but get the anti sickness pills on the go ASAP. Hope I'm right?

Best…[Read more]

Hi Ali,

Welcome! My partner Colin was diagnosed in October 2011 following a random blood test and a bad back. Colin and I were completely shocked because until that time we had never heard of this condition!. He was 55 then and I am 45. The good news once we came to terms a little bit with what we had heard was 7 cycles of cyclophpmasmahide,…[Read more]

Hi all,

Firstly, Tom you are right Got the date wrong….it is Friday 24th…….so happy birthday for Friday Ali. You got an early birthday present with you mum coming home. Hope she is doing well.

We have both been looking at all of your comments and we are so grateful and buoyed up by the words of encouragement and support. We just need…[Read more]

Blimey Dai,

I can't believe I missed this whole thread and you feeling so rubbish! Glad you are on the up again now…..these medics always seems to have medicine for something. One thing for sure…..your mantra of whatever it tales. You are surely sticking to it!

Good man,…..and Janet!

Vicki and Colin

Hi liz and kev,

Sorry it has been rough few weeks….and the bone problems, let a hope they can do something to give the old back some support. This treatment is a battle isn't it! As you say trying to keep positive but it's hard sometimes isn't it.

Keep your chins up and infections away!

Vick and Colin x

Hi chloe and dad,

Welcome, sorry i can't help you with detail re mini transplant but can tell you this forum is a godsend. There is always someone that can offer advice and support 🙂

Vicki and Colin x

Hi angie,

Hope your SCT goes well. My partner was diagnosed in October 2011, and we have a date for SCT. Like you he and I am apprehensive, but the medical teams really do know their stuff. Colins first harvest failed so we are hoping this next go works…..re your hip replacement not sure how it works when myeloma is involved but my uncle, who…[Read more]

Hi Ali,

Just catching up to see how your all doing. Sorry to hear about your mums thrombosis but hey….she's home, and even been doing a little bit of lunch. Wow.it's at least in her own familiar environment. Bet your dads pleased too.

It's easy to forget those who was watching this, and you having a young family to bring up as well. Still…[Read more]

Wendy

Just caught up with the thread! Result, so pleased for you……when is the marathon going to be then! Get on with that holiday now then. No apologies for over reactions necessary……you haven't seen my ones, and I'm doing those on behalf of Colin. There has been times when he's needed to get ME under control LOL

Vicki