Hello Jen,

Fatigue thing is very common. Colin could sleep on a clothes line, i am sure!. Really glad your dad is responding and hope your boys are better soon. Always better safe than sorry. I am sure my new name is Mrs Dettox because I disinfect anything within an inch of it's life to keep the bugs at bay!:-)

Vicki x

Hi Beverley

Welcome! My partner Colin was diagnosed with mm last october 2011 and did not have smouldering myeloma. (well as far as we are aware!). I can't really offer any advice other than to agree with the others and be supporting andnencouraging when you need it:-) The friends on this site are well known for it!

Colin has finished his…[Read more]

Hi etta

Just been keeping up with your posts and stem cell harvest. Good luck with the rest of the SCT. Colin is a bit behind you and harvest is due 25/26july. Fingers crossed and best of luck

Vicki and Colin x

Dear all 🙂

We just wanted to say thanks for all of the support, information and guidance. It is so good to know that we are not alone. We've had a couple of wobbles today in terms of worry and anxiety, gone through the do we really need to do SCT thing, and recognising that this is the best option. Our provisional dates are :

Line in…[Read more]

Hi theresa

Colin had terrible back pain but ironically not at the point where he had the vertebrae fracture. This was love down at the bottom left of his back. Before diagnosis for mm Colin has always had back problems and had surgery about 10 or so years ago. So the pain relief was more about the lower back and we were told that the MRI was…[Read more]

Hi Dai,

You even make being I'll sound entertaining. Hope you are feeling better soon 🙂 🙂

Vicki and Colin x

Hi ann and Peter

Sorry to hear about your travel insurance. They get you all ways with feeble reasons!. Poor Pete.

We bit the bullet and went to Cornwall for two days to so e friends, Colin did really well considering we had a little temperature visit to the hospital on tuesday last and he's on antibiotics now! Sorry to hear they are being…[Read more]

Hi Andy and steph,

Just catching up. We bit the bullet and went away to Cornwall for two days, weather rubbish but good to get away.

At least you know where you are with the mm now, and it sounds like you have the top man on your case. Mavis is right re the back pain, it took ages to get the right does for Colin, they sent us to the…[Read more]

Hi Stephen and all,

Just catching up. Colin and I bit the bullet and went to Cornwall for a couple of days break! First time we've been away since he was diagnosed last October. A bit nervous before we went as he seems to pick up infections all the time, but it was worth it (weather rubbish!). Glad things are goin ok for you Stephen, we were…[Read more]

Hi Andy and wife (sorry what is her name?),

Thanks for your kind words….don't know how we cope with it really, but we are both stubborn ha ha, and don't like something to beat us!. We have tried to keep a bit of humour as well, though that's not easy. We said we were going to treat it like a project, needless to say I ended up demoted as…[Read more]

Hello only me,

We are sorry to hear your sad news. As I hear and know, there is no one like your mum. Our thoughts are with you and your family at this sad time.

Vicki and Colin x

Hi Alethea

Welcome 🙂 My partner Colin was diagnosed in October 2011. it was a complete bolt out of the blue. We have certainly been on a roller coaster….lots of hospital visits …..even today for a temperature and he has been off treatment for 4 wks now waiting SCT! The positive of what I'm saying is the medical teams are great at…[Read more]

Hi Andy,
🙂 🙂
We are with Dai and David. We asked the hard question at the beginning. How long and got told the 5 year average. We were then met by the trial nurse and I cried from one end of the hospital to the other…..that's not me to cry in public. That said we knew that worst, however it's become the challenge to avoid. Our catch…[Read more]

Hi Alison,

Just wanted to wish your Mum all the best with this next stage. We have an appt to see the specialist nurse on 9th July so not too far behind. Hope all goes well, keep us posted if you can.

Vicki and Colin x:-)

Hi helen,

Just a quick line to say we hope you are feeling better after your gastro trouble. I get the impression it's best to take your time on this recovery trail. By they way Tom is right about the hair, it looks good. Still can't persuade Colin to go blond after SCT!

Vicki and Colin x

Hi only me,

We just wanted to drop you a quick line to say we are thinking of you, your Mum and family. Our thoughts and prayers are with you

Vicki and Colin

Hi Keith,

I have asked Colin how he was on revlimid. He had 7 cycles of it along with dex and cyclphosmhide. The first cycle he was very very tired and spent a couple of days in bed at one point. He went though peaks and troughs of having energy and being able to go to work on and off, but then completely wiped out by six thirty at night. There…[Read more]

Hi penny

Will try and work out your blog, but best wishes for tomorrow and onwards xxxx

Vicki and Colin

Stephen

Best wishes for tomorrow xxx

Vicki and Colin xx