Tom and all

Thanks so much. He has read these posts and I think it has helped. He was actually singing in the bathroom! , not a good sound LOL, but it's nice to hear him sounding a bit happy.

I can t tell you have much this is helping both of us. Stephen has also done some brilliant posts re harvest etc and we will reply to him too…[Read more]

Hi Andy,debs,helen, gill,eve,

Thanks very much for your positive responses and honest comments. Its so good to hear that it made a difference. I can tell that it is very much on colins mind at the minute. I am sure we will go over this a lot in the next few weeks. I have shared your positive thoughts with him and he appreciates it greatly. We…[Read more]

Oh dear,

I spent a lot of time thinking about you yesterday. It's really rubbish isn't it. It would be almost a relief if it was just! mM wouldn't it and who would have thought any of us would say that. Not sleeping does not help with the lack of energy that all the worry takes out of you doesn't it. I really hope your mum is feeling a bit…[Read more]

Hi dee,

Hey glad to hear the treatment has started and I am sure soon the mountain which looked like everest will soon look a bit more like Ben Nevis! The averages you talk about are the same as we were told. I asked about those as it didn't seem long. It was explained that some people live 20 years or more with this condition and others sadly…[Read more]

Tom,

Thanks so much:-) , positive as ever. Thanks for the positive, honest thoughts. Glad to hear things are going so well,enjoy your weekend, even if the weathers rubbish. Good excuse for some good hearty food and a couple of glasses of the red stuff……or vodka for you I seem to recall from your previous posts.?

Thanks for the good…[Read more]

Hi ann,

Hope Peter is feeling a bit better and some food is starting to taste good. Colins latest is best of british, roasts, cauliflower cheese etc, and moved away from cake and a little less on the milk shakes!

See my post on treatment, the next stage is starting we think. Stem cell harvest next. No more treatment on cycles for 4-6 weeks.…[Read more]

Hello only me,

I am so sorry to hear your news. I can only imagine what you and your family are going through. My mum is my best friend, confidante and stabilising influence. My heart goes out to you and your family. I know these are only words and will do little to help but I hope they will help in some small way. I hope the medical teams can…[Read more]

Hi Stephen,

Wishing you all the very best with your SCT. We too live in the west country (Gloucestershire) and will be visiting south mead soon too, your summaries have been extremely useful. I hope it all goes well for you. If you are well enough to give any further updates that would be great. We have been told today that Colin is going forth…[Read more]

Hi dee,

I'm really sorry to hear that your dad is going through it at the moment. You don't say how old you are but I can assure you it doesn't matter, young or old, when you see someone you love in pain or Ill it is a real worry and we are all the same. It is frightening especially when you don't know anything about the condition. We didn't…[Read more]

Hi both,

Not sure about the tummy issue but I see Ali's mum had something similar so it must be ok. Re the constipation thing, I get the impression from our consultant meetings that they are always interested in whether they are going too much or not enough! We've tested a couple of different types of laxatives but I reckon the one in an orange…[Read more]

Hi Rachael,

Glad your mum has made some progress and she is feeling a little brighter. Whilst dealing with this condition as a family member doesn't get much easier, for me anyway, it always helps when you can see the patient getting a bit brighter! Don't worry about having 'moments', I have them a lot and go from being really positive to mrs…[Read more]

Hello siobhan

I have read some of your mums posts and although never corresponded with her I can see from all of our friends on this site that she was held in very high regard. I cannot begin to imagine what you are going through, coping with helping someone through is hard but suffering this loss I cannot and do not want to imagine. Your mum…[Read more]

Hi Alison

Just a quick note. Firstly wondering how your mum is doing and has she started SCT or any tests yet?

Also on a lighter note I assume you are an auntie again by now ………:-)

Vicki

Hi Rachael,

Welcome to the forum:-) My partner Colin was diagnosed at 55(up to now realised I have aged him a year! Lol). it was a real bolt out of the blue. He has had 7 cycles of treatment crd (cyclophosmahide, revlimid and dexamethasone) and thankfully up to now all worked well. He had one bone lesion in his back which was treated with…[Read more]

Roy,Anne and family,

This is an inspirational story and your wife has clearly battled and is winning. Good on her!

I know what you mean about this mm thing being unknown! My partner Colin was diagnosed in 2011 October and it hit us like a steam train. We are battling on too and hopefully nearing an SCT shortly. One or two cycles more we…[Read more]

Hi ann,

First things first you are right about the weather it is tipping down here and I think it's forecast for tomorrow as well! Turkey must seem a very long way away at the moment!

I can understand you might be worried about going to Spain but read the posts from perkeymite David either on your string or mine. He gave some really useful…[Read more]

Hi ann and Peter,

How is it going for you guys, not seen any posts so a bit concerned?

A bit of good news for once. Colin and I went to see the consultant today. They have delayed his treatment one more week, neutrophils still low at 0.54. They are considering options to reduce his revlimid dose next month so we shall see, another…[Read more]

Hi Jean,

I don't understand what your consultant means about the protein, I thought that it was good that the paraprotein levels come down. In our case colins pp level has come down consistently each month, and our consultant seems very pleased with that. I thought the pp level is the cancer marker measure so I would have thought that it was…[Read more]

Hello Wendy and Helen

I'd just like to say I found both of your posts quite heartening. You Wendy for doing a 10k run and you Helen for the trip to NZ. Colin and I love to travel so all of that seems miles away for us at the minute. Helen it's great to see that these things might be possible. Wendy also I was so pleased to see that activity is…[Read more]