Hi Andy,

Thanks for your encouragement. I have read your posts and see your pps aren't moving…..yet!. Colin was told that his mm was more indicative from the bence jones light chains number, although from what I can see so far I'm the only one to mention these so far!,

I hope you get some progress soon,

Best of luck.

Vicki

Hi Ali

Hi Alison

Thanks for your reply. It looks like your mum is in a similar position to Colin. I know what you mean about reading stuff. I want to know and then catch sight of something that then makes me worry a bit. Colin is still responding and waiting to start cycle 7-delayed a week due to blood count too low!

It is really scary…[Read more]

Carol,

Thank you-it's very encouraging to hear of your activity after a SCT and that you can do normal things again.

Question I have for the medical teams though is-with the SCT how close are they for developing a process to clean totally the own stem cells returned to the patient rather than leaving a 'residue' . That would give longer…[Read more]

Tom,

Thank you. I hope you and your 'young bride' are both doing well. Thanks for the encouragement. You are right about caret word-nice to be cared for but not wanting to make our partners feel helpless!

Vicki

Ann, that would be great. It's good to know there are others out there with the same concerns!

This forum along with the medical teams can keep us buoyed up:-)

Vicki

Hi Ann,thanks so much for this. Funny but Colin loves his golf too-before the lower back pain!,

I know what you mean about the tablets and feel the same as you-guilty about posting but all the same exhausted from the worry of it. I only discovered this site yesterday and plucked up the courage to put something on today. I read a lot of the…[Read more]

Hi, thanks for your reply.:-)

Colin is currently on a 3 weekly cycle of cyclophosmahide. (sorry about spelling!), dexamethasone and revlimid (lenolidomide) with the various extras of bone protection, stomach protection etc. We can't really see a pattern on the good & bad days although the steroids make him a bit hyper.

we know this is an…[Read more]