jane-wrench replied to the topic New to forum in the forum Newcomers 10 years, 2 months ago
Hi coasti, yes it was a strange time the second time. In hindsight, I probably didn’t need the second SCT. I had had 5 years of partial remission and was very happy with it, no symptoms. But I developed a terrible pain in my shoulder which I thought was a trapped nerve but was referred back to Marsden who put me on carbamazepine – a nerve pain…[Read more]
jane-wrench started the topic New to forum in the forum Newcomers 10 years, 2 months ago
Hi there – I’m new to the forum – but sadly not new to myeloma! I was diagnosed with myeloma and amyloidosis in 1996 at the age of 45- but thought it might give you newly diagnosed people hope as I’m still here 18 years later! I’ve had 2 stem cell transplants, one gave me 5 yrs partial remission and the next gave me 10 years full remission – I’d…[Read more]
jane-wrench changed their profile picture 10 years, 2 months ago
People like you are giving me so much inspiration at this time thought Is as doing w e ‘ll 6weeks in to chemo but back pain and a bit of a flu bug knocking me b back a bit today forgot how bad the back was ha x x