I lost my ex husband, the father of my 2 youngest children (26/29) on 24th April 2014. No one knew he had Myeloma. He had been diagnosed with crohn’s disease August last year and although with medication he was a lot better, he was still having problems, which the doctors tried to solve with different medication. On 10th April he was so ill, I got him into hospital, where they presumed it was the crohn’s but he got worse, they gave him blood and fluids through a drip but this only went into his tissue not into his veins and he blew up like the Michelin man. They put a tube into his stomache to give him nutrients but this brought on respitary failure and he was put in ICU on a ventilator. They took lots of blood, bone marrow and biopsy from his kidneys but they couldn’t pin point what was wrong and he couldn’t breath properly so was going from oxygen from a nose tube, to a hood ,to a ventilator. On the 23rd April they said there was nothing more they could do and even if they knew exactly what was wrong with him, he was too weak for treatment, he died early hours of the Thursday, less than 2 weeks after being admitted to hospital. It then took a post mortem and an investigation by the coroner to find out it was plasma cell myeloma. Why did they not pick it up before? Is it so difficult to diagnose? To make matters worse for us, my daughter is pregnant with his first grandson and now he won’t see him. Sorry to go on but I needed to write this down and tell someone. To people that have lost family and friends to this disease, I send my thoughts and prayers and love to you
Jane x
