Hi Robert,

I have Myeloma and Amyloidosis, both in their early stages with no symptoms at present. Following initial treatment Oct – Dec 2013, I’m in complete remission and have had no fractures for over a year. In May I travelled to Italy for 5 days and got insurance with Staysure for £4.74 (staysure.co.uk) by excluding my conditions. I saw…[Read more]

Hi Jeff,

That’s amazing that you can access your medical results online. Can you tell me which hospital you attend? Wouldn’t that solve a lot of problems if we all could do that!

Regards

Janet

Hello and thanks for all your information. I’ve since learned that the report sent to my GP does not contain Free light chain or M-protein measurements, so that route for me to get my results isn’t available. I got a message to my Consultant 9 days ago, and despite calling a few times to follow-up, I still do not know my latest results. I’m…[Read more]

The way the service is delivered at your hospital Jill sounds very sensible. I did ask some time ago if separate appointments could be given for taking blood and consultations, but was told no. On that occasion I asked a Nurse but I might try asking my consultant, but it would mean significant change to how appointments are scheduled so I am…[Read more]

Hello,

I am so indebted to you all for your responses. It is sadly good to know that I’m not alone. I will take the advice on-board, especially regarding using my GP. Carol, your sentiments describe my feelings precisely!

At this moment I’m waiting to hear what my consultant feeds back from the hospital board, in terms of what is right regarding…[Read more]