Kazzam2 posted an update 10 years, 11 months ago
@KarenHemmings Good morning all! 😉 I am finding this new website hard to navigate/get used to 🙁
bandityoga replied to the topic Ian out of hospital in the forum General 10 years, 11 months ago
Helen and Andy
Wound is being reviewed every week in Edinburgh and is healing nicely. Still going every morning to FVRH for antibiotics. Up at am7.30 every morning and feeling tired.
Looking forward to Christmas with the family. My daughter will help with the cooking. Love seeing the granddaughters.
Merry Christmas
Maureen x
bandityoga replied to the topic survival in the forum General 10 years, 11 months ago
My husband takes manuka honey which is good for fighting infection
Maureen
bandityoga replied to the topic Our Dai. in the forum General 10 years, 11 months ago
HI Andy
I was thinking of Dai too. It was a lovely day here and I like to think he is now signing with the angels.
Think of him often and will miss his cheery character.
Maureen
Kazzam2 and Michele are now friends 10 years, 11 months ago
Kazzam2 replied to the topic It's Back in the forum Treatment 10 years, 11 months ago
Hi Tom,
So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉
Thinking of you, good luck
Love and best wishes
Karen
xx
bandityoga replied to the topic It's Back in the forum Treatment 10 years, 11 months ago
Hi Tom
Sorry to hear yeloma has come back but stay positive and hopefully you will have many more years in remission.
As you always say onwards and upwards.
Maureen
bandityoga replied to the topic Will this be my last cycle? in the forum Treatment 10 years, 11 months ago
Hi Andy
Haven’t been to Belgium but like their chocolate.
Hope you have success with cycle 22 and get your pp down low and Christmas will be a good time for all the family.
Maureen
bandityoga replied to the topic introducing myself and Marc in the forum Newcomers 11 years, 6 months ago
Hi Pauline
Sorry to hear your hubby Marc has mm and so young. We all suffer from shock when our loved ones are firstly diagnosed. My husbnad is 57 and has been in hospital for seven months due to late diagnosis which consisted of a compressed spine. We learn to adapt and take each day as it comes. As Andy says each day is a gift.
Take…[Read more]
bandityoga replied to the topic Article on coming treatments for myeloma in the forum General 11 years, 6 months ago
Hi Tom
Thanks for the information. I will save it and refer to it in the future.
Maureen
bandityoga replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
Hi Eve
Sorry that Slim has relapsed, but hope that revlimid works. I think that is Ian's next treatment when he relapses. Enjoy your holiday in France and keep thinking positive.
You must be a romantic to want to get married on 14 February. Ian proposed to me in Rome in a really nice restaurant. Our first holiday was in Bermuda. We were…[Read more]
bandityoga replied to the topic SCT not worked -help in the forum Treatment 11 years, 6 months ago
Hi Christine
My husband Ian has not been offered an SCT as he is not mobile at the moment but consultant said that after looking at all options SCT is not now considedred as first treatment. This is also the opinion in the US as there are other treatments that work without being so invasive.
Hope they can find an alternative for Chris.
Maureen x
bandityoga replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment 11 years, 6 months ago
Hi Scott
Hope the weather has improved and you are sitting in the sun. Hope your wife hasn't spent all the money in the shopping centre
Been really cold here but has improved today and tomorrow will be better. I will be gardening, although I have employed someone to cut the grass as I don't have the time when I am visting Ian in…[Read more]
bandityoga replied to the topic Smelling the bluebells in the forum Off topic 11 years, 6 months ago
Hi Eve
I have been thinking of you and hope that Slim got good results from the consultant today.
I too have hayfever, no bluebells here but lots of daffodils.
It's our anniversary on 30th May, 5 years as it's my second marriage but we have known each other for 10 years. Ian is getting out of hospital to go to a restaurant for lunch.…[Read more]
bandityoga replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Eve
Ian is cycling half a mile a day on the foot pedals and also lifting weights so building up the muscles. It is very hot in the ward just now and he is only allowed 1 hour in the wheelchair or I would take him outside.
Got gardener sorted out, now thinking of getting the ironing done.
Hope Slim's BMB will show a good…[Read more]
bandityoga replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment 11 years, 6 months ago
Hi Scott
Sorry to hear your SCT didn't work. Go to spain and enjoy your holiday. What part of Spain are you going to?
Maureen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)
The sun is out today, which always make one feel better.
hope all is well will you all today.
Karen xx
bandityoga replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Eve
Packs arrived and I will take the to the local gp's and hope it can save someone in the future from late diagnosis.
Ian is getting stronger but still only getting out of bed for 1 hour to let the bed sore heal. He is getting to the gym and cycled for half a mile so it seems promising. His mental state is so much better. I am going…[Read more]
bandityoga replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Tom
I would complain to the consultant you saw privatley and ask why you didn't get an mri scan.
Maureen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)
take care
Karen
x