Hi Suzette Good to meet you. I too am in constant around my back and ribs so I’m sending good wishes to you for it to get better soon. I was diagnosed July last year and put on CDT immediately. I had radiotherapy to C5 in August, vertebroplasty to C5 in September and Autologous SCT in January 2015 and have been in remission since late May this year. I had 2 other fractures in my thoracic spine which I’m told have now started to heal so they cannot give me another vertebroplasty and have a fracture in my lumbar spine but have no pain from this. I have a curve in my spine which makes me seem overly round shouldered. I am on Fentanyl 37mg patches every 3 days (cut down from 50mg 3 months ago) and 150mg of Pregablyn each day. I also take the maximum amount of paracetamol daily. On the first day of new patch day (I put them on in the evenings) I feel alert and can live life much like I did before diagnosis, on the second day I feel similar (unless I overdo it) and on the third day I am absolutely exhausted to the point of not being able to speak (I sound drunk!). Do you take any other pain medication and do you notice a difference in the way you feel on the third day of your patches? I’m extremely glad to be alive and am so grateful for the amazing treatment I have received to get the Myeloma under control, but find it difficult to come to terms with the fact that I will always be in pain – I am 57. I see Dr Vora, Pain Consultant, at Weston Park in Sheffield every 3 to 6 weeks who seems to be puzzled by the way I feel on the third day of my patch. Do you notice such a pronounced difference and are you on any other pain meds?
