Hi Emma

i have my SCT in September 2014 the disease returned within 4 months.  I have since been on various chemo regimes like Velcade etc.  now on lenalidamide maintenance treatment.

Although not ideal I’m only in my early forties just got to keep on going.  There is plenty of treatments out there.  Keep researching and pushing for more ans…[Read more]

Hi Mavis

Many thanks have checked out the JetBlack blog, have a month off of Chemo now as I am to be scanned again at the end of April to see how much myeloma is still lurking behind the scenes, if all ok been told will probably have a couple more months of chemo before the Donor Stem Cell Transplant.  still not 100% sure its the right thing…[Read more]

Hi all, I am new to the site but was diagnosed with multiple myeloma in January 2014.  I am on the myeloma 11 trail had combination chemo for about 6 months then radiotherapy before having a transplant in September (my own stem cells).  Unfortunately for me it hasn’t worked well and for the past 4 months I have now been on chemo again (velcade)  …[Read more]