Hi
<p style=”text-align: left;”>thought I’d reply as your situation sounds fairly similar to myself although I have now progressed from mgus to myeloma. Like yourself I was fairly fit – played football, went to gym and play golf. Was diagnosised with mgus 6 years ago, protein levels high, bone marrow levels elevated, no bone pain, fatigue present. Was breathless as well (couldn’t play football without thinking my heart was pounding out of my chest and felt like it might explode) and this has got much worse over past 18 months. Doctors didn’t pay much attention to breathless but I consistently mentioned it and recently they have done more tests. Specifically the tests were EEG, echogram, cardiac blood tests. From doing these tests and seeing a specialist they discovered I have pulmonary hypertension (artery narrowing between hear and lungs). At present there is no conclusive link that having myeloma caused this as it isn’t a usual symptom or complication from having myeloma. The heart and lung specialist is fairly certain there is a link as they couldn’t find any other reason. And he said he has seen it in other blood disorders though rare. The haematologist is more sceptical and on plus side has run more tests looking down different avenues, unfortunately had lots of tests. I have started on medication that has helped with breathless and now have a clear idea of way forward. Sorry for the novel!, not wanting to alarm you with all this info but would advise you to keep on at your doctor until they find the cause of breathlessness. I knew myself something wasn’t right for a long time but Didn’t push hard enough at the time until it got really bad.</p>
<p style=”text-align: left;”>Need any further info let me know. It’s quite difficult to summarise it all.</p>
<p style=”text-align: left;”>best of luck</p>
<p style=”text-align: left;”>Jason</p>
