I’m replying to the most recent post (2 months ago) from someone who is suffering from Tinnitus, but I haven’t found a way of replying to his post.  Just to say that tinnitus is not a big problem for me, but increasing deafness is, and it has been suggested that I see a specialist but so far no appointment has been made.

Action on hearing loss…[Read more]

Perhaps this is something Myeloma UK could look into? Hopefully someone from the organisation reads these posts.

I’ve been increasingly aware of the impact of the stem cell transplant on my nervous system generally.  Recently a (private) audiologist checked my hearing and said that the deterioration in the hearing in my left ear was related to the auditory nerve, which was probably affected by the chemotherapy.

I was given antibiotics at the time of the…[Read more]

I’ve only just joined the forum so apologies if this is too late, but Marks and Spencer will cover myeloma in their travel insurance for one off trips – not annual insurance.  Also not sure about countries – I only wanted Europe.