jaylo47 replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 9 months ago
Thanks Graham, for your response. I really appreciate you taking the time to share your experience with me and don’t worry, you haven’t stressed me out at all! I know that my experience is very different to that of someone else in a similar situation, purely because of my postcode. That’s the most frustrating bit about it. I have since had a f…[Read more]
jaylo47 replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 11 months ago
Hi Tony, thank you so much for getting back to me. I have been invited to the next Support Group meeting taking place at the beginning of May so I will go along. I am also seeing my GP again tomorrow to talk things through so will see what he has to say. I have a feeling he will want to wait until my next blood test result in July to see if I…[Read more]
jaylo47 replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 11 months ago
Hi Susie and Tony, thank you both so much for taking the time to reply to my post. I do think I would feel better once I have spoken to a Haematologist, rather than just relying on my GP. I really appreciate your advice and I do hope you are both keeping well. All the best, Jayne
jaylo47 started the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS 8 years, 11 months ago
I am 47 years old and a month ago I was diagnosed with MGUS (or Paraproteinemia as my GP called it). My paraprotein level is 13.5 g/l, which I appreciate is relatively low compared to others. My plasma viscosity was also significantly raised (although on a subsequent test it had gone back to normal). My GP seems very unconcerned with my results…[Read more]
jaylo47 became a registered member 9 years ago