[jaylo47Participant]

Thanks Graham, for your response.  I really appreciate you taking the time to share your experience with me and don’t worry, you haven’t stressed me out at all!  I know that my experience is very different to that of someone else in a similar situation, purely because of my postcode.  That’s the most frustrating bit about it.  I have since had a further blood test which has shown a rise in my paraprotein levels and my IgG level is 19.4 g/l.  I know from my research that if I lived in Leicestershire or Derby that would be enough to send me to see a consultant, but here in Devon it is not.  I think perhaps I need to be a little more assertive with my GP.

Wishing you all the best and hoping you are keeping well.

[jaylo47Participant]

Hi Tony, thank you so much for getting back to me.  I have been invited to the next Support Group meeting taking place at the beginning of May so I will go along.  I am also seeing my GP again tomorrow to talk things through so will see what he has to say.  I have a feeling he will want to wait until my next blood test result in July to see if I have reached the “trigger” point of 15 g/l (which appears to be the referral criteria for our area).  Unfortunately I live in a county that has a very high elderly population so the local Trust have devised a system where anyone presenting with MGUS under 15 g/l is put on a spreadsheet and monitored regularly.  They are only referred once they reach 15 g/l.  The sad reality is if I lived somewhere else (such as East Kent or Leicestershire) because of my age I would be referred automatically.  But I will see what tomorrow brings.  Thanks again for your support and kind words, it is very much appreciated. Best wishes, Jayne xx

[jaylo47Participant]

Hi Susie and Tony, thank you both so much for taking the time to reply to my post.  I do think I would feel better once I have spoken to a Haematologist, rather than just relying on my GP. I really appreciate your advice and I do hope you are both keeping well.  All the best, Jayne

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