https://forum.myeloma.org.uk/members/jdisoddyahoo-com/activity/ Activity feed for jdisodd@yahoo.com. Thu, 16 Apr 2026 07:43:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7480900d24c57c634355db99f2d27dcd https://forum.myeloma.org.uk/activity/p/145098/#acomment-145101 Fri, 17 Mar 2023 20:06:36 +0000 thanks, thats quite reassuring. im trying to match up the many positive posts from people post SCT before maintenance, the doomsday statistics that give you 20 months before relapse on the median , the 40 months with lenalidomide which doesnt reflect dvtd new treatment and compromises the best part of your relapse period.
I’ve been able to stick…[Read more]

In reply to - jdisoddyahoo-com posted an update @kh0305 hi i saw your answer about your dad and im trying to work out whether to start lenalidomide or not as a first line maintenance therapy. i hope hes found an effective […] ]]> 634e25e69081eb53d61eca23fe8d1330 https://forum.myeloma.org.uk/activity/p/145098/ Fri, 17 Mar 2023 19:35:02 +0000 @kh0305
hi i saw your answer about your dad and im trying to work out whether to start lenalidomide or not as a first line maintenance therapy. i hope hes found an effective treatment. i thought the nhs only gave out lenalidomide as first time maintenance recently. was that his first remission, and did he have side effects and infections?

]]> 4 52c5055d10bd91a8304d8e63e712462d https://forum.myeloma.org.uk/activity/p/145097/ Fri, 17 Mar 2023 19:15:54 +0000 0