Hi bubble,
I was diagnosed with high risk smouldering myeloma in 2009 which progressed in August 2023 to multiple myeloma. I jumped at the opportunity of the RADAR trial, I had my stem cell transplant in February this year and I am now in the process of consolidation treatment. Next step is maintenance treatment which will mean hospital visits every two weeks until disease progression or drug intolerance. Currently I am thankfully in remission.
The trial will mean more hospital visits for tests and treatment, which you will need to consider. I am being treated in Derriford Hospital in Plymouth where the care I have received is amazing and I am so grateful to all the wonderful staff there. I have driven myself to the hospital for all my chemo as it is only 25 minutes from my home and I felt well enough to do so. As per most myeloma patients, I have had issues but all have been dealt with incredibly quickly. I felt for me that the trial offered me the best possible treatment available currently. I would suggest talking to your consultant and their team in depth to help you to make the right decision based on your personal needs.
