jeapal23 started the topic Treatment has started. in the forum Treatment 12 years, 5 months ago
After five years of Mike having myeloma today he was told he need to,start treatment. His paraprotein levels are 55. And the X-rays have shown bone damage. He is. Starting on velcade on the 30tth April, they are going to let us go on a short oil day we have booked.
We are back at the hospital next week to sign forms and ask questions, any…[Read more]
jeapal23 started the topic Advice required. in the forum General 13 years, 7 months ago
I havent posted for a while as Mike has been well. Mike had a stroke 10 years ago and for the last 4 years has had MM prior to this he had MGUS for ten years. although his paraprotien level sits around 50 highest it has been is 70 they have not given him any treatment as he does not have any other systems. This week he has been complaining…[Read more]
jeapal23 replied to the topic Travel insurance in the forum General 13 years, 7 months ago
This worked for my husband last year
http://www.world-first.co.uk/
jeapal23 started the topic Travel Insurance. in the forum General 14 years, 2 months ago
I know that this subject comes up a lot but I would like to share my new find.
World first Insurance http://www.world-first.co.uk
I wanted to go on a cruise but I had a quote from All Clear insurance and they wanted to charge over £1500 I could not pay this therefore did not book the trip. However, Mike has been feeling very low so…[Read more]
jeapal23 replied to the topic Paraprotiens after SCT in the forum General 14 years, 7 months ago
Interesting thread, My husbands paraprotien is around 50 on average has been as high as 69 but he has no treatment. They say because it is not causing damage to the bones or kidneys they are holding off. I find this hard to get my head around, why wait when you can see such differences in the levels after treament, why wait until the…[Read more]
jeapal23 replied to the topic Champagne but no Celebration in the forum General 14 years, 9 months ago
Gill, can I ask what is the high PP levels
jeapal23 replied to the topic When do they start treatment in the forum General 14 years, 10 months ago
Firstly sorry for not putting my name, it is Jean. I had a lot of trouble doing my first post on the new site.
Mike's Paraprotein level tonight was 48 and everything else was fine. He is getting a lot of colds, chest infections and cold sores. He is going back in two months. He has no bone pain apart from arthritis in him lower back, that…[Read more]
jeapal23 started the topic When do they start treatment. in the forum General 14 years, 10 months ago
Firstly I like the new site.
Mike my husband has MM for the past 2 1/2 years, previous to the he had MGUS since 1998. He had a stroke in 2002, so one way in another he has been dealt a bad hand.
He is off to the Hospital on Thursday, and I find the anticipation of whether he is going to start treatment or not over whelming. His…[Read more]