Myeloma Forum | JeanPalmer | Activity https://forum.myeloma.org.uk/members/jeapal23/activity/ Activity feed for JeanPalmer. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 8ac75688742b60d6cda9b22192e6e900 JeanPalmer started the topic Update on Mikes treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-on-mikes-treatment/ Sun, 06 Sep 2015 12:29:25 +0100 I have not been on the site for a while just been busy starting a new job. However, we have been on holiday, an 18 day cruise, Mike took pomaladimide whilst he was away. He was okay with it but was getting very tired towards the end of the holiday. He also developed a small cough, he is still a smoker. We got back on the 298th August. I…[Read more]

]]> d1cb9652c7b42489449bf5a5bd8000ef JeanPalmer replied to the topic Update of Michaels treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-of-michaels-treatment/#post-120875 Mon, 16 Feb 2015 17:59:33 +0000 Mike had tried velcade pomalidomide and revlemed. Only every had three or four cycles of any of them.

Mike is a fighter. He had had quite a few chest infections the worse being last year when he was in hospital for 28 day. 11 of them in intensive care. They thought he would pull through from that infection. They never did work…[Read more]

]]> 159f57ab073257539b1d0d612cc1330a JeanPalmer started the topic Update of Michaels treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-of-michaels-treatment/ Sun, 15 Feb 2015 16:30:23 +0000 Well Michael has had a second chest infection since he has been on pomalidamide. An infection after the first cycle and now an infection after the third cycle. They said that they would stop treatment after the first cycle if Michaels PP hand not reduced by 50% that would make his PP 19. well at best after the third cycle which I argued for as…[Read more]

]]> b7c364a5baa47e0711d10c500ce886c4 JeanPalmer replied to the topic Pomalidomide in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-2/#post-120113 Sun, 28 Dec 2014 16:43:02 +0000 Well after Mikes first cycle he got a very bad chest infection. He was given a 10 day bacterial antibiotics to take and I’m pleased to say got rid of the infection. His Pp level went to 29 from 38 but jumped back up to 33. He is now in the third week of cycle 2 if his PP Level does not come down to 19 they will stop treatment. Pray for a miracle…[Read more]

]]> 608810744103dfa41768ac191ae778a1 JeanPalmer replied to the topic Pomalidomide in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-2/#post-119427 Wed, 12 Nov 2014 13:56:05 +0000 Hi Andy, No Michael is not on a trial, he is very tired on this treatment at the moment, this is his first week. He is back at the hospital tomorrow for bloods.

Michael had a stroke 12 years ago so I think this plays a part in the treatment, they held off for a long time not treating Michael. His PP level has been as high as 70 but at the…[Read more]

]]> 00acc38910c673256f50fb72337e9557 JeanPalmer started the topic Pomalidomide in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-2/ Tue, 11 Nov 2014 15:49:35 +0000 Well not been around for a bit. Mike was getting over his near death experience in April, we have been on a great cruise to Norway and I gave up my job, I had just had enough, handed my notice in and left all within a week. I am waiting to get my pension from the BBC and I have a nice part time job 15 to 20 hours a week. So life is getting…[Read more]

]]> 9879b713d2300fba1dacf90e71c3d884 JeanPalmer started the topic Just checking in in the forum General http://www.myeloma.org.uk/forums/topic/just-checking-in-2/ Thu, 29 May 2014 17:31:15 +0100 I haven’t posted for a bit, well since Mike was in hospital very poorly. Glad to say he came home and has done really well. He is back to normal, well as normal as he can be. He is gaining strength and started to get out and about. All treatment is on hold at the moment. His PP level is 28 at its best it has only got down to 25 so they are…[Read more]

]]> 0c8400f1e0942f93a6477023dd06848b JeanPalmer replied to the topic Goodnews in the forum General http://www.myeloma.org.uk/forums/topic/goodnews/#post-114496 Sat, 12 Apr 2014 14:42:15 +0100 Maureen, how did you get a grant for a wet room. I could be doing with a toilet downstairs right now.

]]> 09ca2c5c94e3d2e543e9dba18cb3c260 JeanPalmer replied to the topic Goodnews in the forum General http://www.myeloma.org.uk/forums/topic/goodnews/#post-114439 Fri, 11 Apr 2014 09:36:33 +0100 Michael had a follow up appointment yesterday. they are going to leave him alone on the Myeloma front as his lungs need to recovery. He will have a follow up CT scan on his chest in 2 months. They are going to let him recover and build up his strength and then he will have a bone marrow test to see how the myeloma is doing and from there we…[Read more]

]]> 87183bd2667f42f58aa0a6ea126e7b9f JeanPalmer started the topic Goodnews in the forum General http://www.myeloma.org.uk/forums/topic/goodnews/ Tue, 08 Apr 2014 13:39:03 +0100 Michael is home, he came home yesterday early evening after spending 26 days in hospital 9 day of that where in ICU. He is very tired and weak but with my help and love I will get him back on his feet.

Jean

]]> a6409acdd4c5f67f0191b0552e2e9050 JeanPalmer replied to the topic Michael Update in the forum General http://www.myeloma.org.uk/forums/topic/michael-update/#post-114158 Mon, 31 Mar 2014 19:14:29 +0100 Michael is making progress they are reducing the oxgyen every day. It is great to see light at the end of a tunnel and u can see a future. I told him he can’t give up I’m planning my retirement and I want to get old with him. Thank you for all the responses is good to be the stories

]]> e3f391425955f6154b86ee9d18508ac8 JeanPalmer replied to the topic Michael Update in the forum General http://www.myeloma.org.uk/forums/topic/michael-update/#post-114138 Mon, 31 Mar 2014 07:01:05 +0100 Michael moved up to the ward late Friday. He is still on the oxgyen and he looks so much better. They have said it will be a long process and wheelchairs have been mentioned. We also have to make the decision that if he goes down hill not to do any intervention. I’m finding that very hard to deal with. Seeing the doctors this afternoon see what t…[Read more]

]]> 41402c0ef8c9f697146f3333dee656f9 jeapal23 posted an update: Michael moved up to the ward late Friday. He is still on […] https://forum.myeloma.org.uk/activity/p/1782/ Mon, 31 Mar 2014 06:53:51 +0100 Michael moved up to the ward late Friday. He is still on the oxgyen and he looks so much better. They have said it will be a long process and wheelchairs have been mentioned. We also have to make the decision that if he goes down hill not to do any intervention. I’m finding that very hard to deal with. Seeing the doctors this afternoon see…[Read more]

]]> 0 77b5911124f8874446f9b531a1a948c5 JeanPalmer replied to the topic Michael Update in the forum General http://www.myeloma.org.uk/forums/topic/michael-update/#post-114010 Wed, 26 Mar 2014 08:09:22 +0000 Eve, I am still working but my GP signed me off for two weeks if that is not enough I will have some more time out. I have felt so worn out and exhausted with all the emotional strain. I am due to be made redundant later this year and will be taking retirement. If necessary I will see if we can bring it forward.
Mike went all day without the…[Read more]

]]> 6defe471a5f1019520e3b684f1ffaecf JeanPalmer replied to the topic Good Remission after 5 years- do not give up in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-remission-after-5-do-not-give-up/#post-113949 Mon, 24 Mar 2014 14:43:54 +0000 Good news, as you say never give up

]]> f4c63ce8aa50c9a8d9c221bf1f50f415 JeanPalmer started the topic Michael Update in the forum General http://www.myeloma.org.uk/forums/topic/michael-update/ Mon, 24 Mar 2014 14:40:27 +0000 I haven’t posted for a while, what a roller coaster Mike has been on. He started Revlimid in November. January he was in hospital with an infection, February he was ill over half term week and started antibiotics for sever cold sores. His PP levels dropped from 38 to 25 at best. They where going to try him on another 2 cycles and see what…[Read more]

]]> fa310e40c0906062d9859239ec9784b1 JeanPalmer started the topic Update from hospital appointment today. in the forum Treatment http://www.myeloma.org.uk/forums/topic/update-from-hospital-appointment-today Thu, 18 Apr 2013 20:50:52 +0100 Well I got to see Mikes X-rays, he has lesions on his humorous, rib, which has broken and spine. These are the places Mike gets pain. They have said he is 2nd stage myeloma. Came away from the hospital with all the drugs for the first cycle of chemo on the 29th. I'm feeling better about things as we have to fit this and stop crying into…[Read more]

]]> 01479becdeaed3b813cc62b7b210488f JeanPalmer replied to the topic My Velcade Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-velcade-journey#post-102383 Thu, 18 Apr 2013 20:46:44 +0100 David, good to here all is well. Mike starts this on the 29th

]]> 760bad4b482e3666cf8aab5d4311a3e1 JeanPalmer replied to the topic Treatment has started in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-has-started#post-102337 Mon, 15 Apr 2013 07:17:23 +0100 Yes, Eve. Mike has had X-rays several times before also bone marrow testing.

David, I hope your treatment goes well today. Mike is getting injections into his stomach and they will carry out the treatment at home, it is something new they have started at our hospital which is the Queen Elizabeth Hospital in Birmingham.

I have calmed down…[Read more]

]]> 3fb4cfe9bc4481cd25e434be9bfaf054 JeanPalmer replied to the topic Treatment has started in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-has-started#post-102334 Sat, 13 Apr 2013 09:34:11 +0100 Mike has not had a relapse he never has had treatment before. His paraprotien levels have been high for a long time the highest being 70 but they had been sitting around 45, they never gave him treatment because he was having no other symptons but now he gets bone pain and infections; they did xrays and have now decided treatment is necessary.…[Read more]

]]> 283c36f48f806d1748c8200bbf7f3b39 JeanPalmer started the topic Treatment has started. in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-has-started Thu, 11 Apr 2013 18:53:56 +0100 After five years of Mike having myeloma today he was told he need to,start treatment. His paraprotein levels are 55. And the X-rays have shown bone damage. He is. Starting on velcade on the 30tth April, they are going to let us go on a short oil day we have booked.

We are back at the hospital next week to sign forms and ask questions, any…[Read more]

]]> bac67b50752c88944ff8b6ef182149aa JeanPalmer started the topic Advice required. in the forum General http://www.myeloma.org.uk/forums/topic/advice-required Thu, 23 Feb 2012 20:35:38 +0000 I havent posted for a while as Mike has been well. Mike had a stroke 10 years ago and for the last 4 years has had MM prior to this he had MGUS for ten years. although his paraprotien level sits around 50 highest it has been is 70 they have not given him any treatment as he does not have any other systems. This week he has been complaining…[Read more]

]]> 9143832ef6cad8c141c09dfff01dfe6f JeanPalmer replied to the topic Travel insurance in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance1327064755/page/2/#post-92083 Tue, 14 Feb 2012 22:21:48 +0000 This worked for my husband last year
http://www.world-first.co.uk/

]]> 539dd0614de2f95967ec15dac7bdc3a7 JeanPalmer started the topic Travel Insurance. in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance Mon, 11 Jul 2011 22:36:00 +0100 I know that this subject comes up a lot but I would like to share my new find.

World first Insurance http://www.world-first.co.uk

I wanted to go on a cruise but I had a quote from All Clear insurance and they wanted to charge over £1500 I could not pay this therefore did not book the trip. However, Mike has been feeling very low so…[Read more]

]]> 688e2348bd0f8325a325b705306d06ee JeanPalmer replied to the topic Paraprotiens after SCT in the forum General http://www.myeloma.org.uk/forums/topic/paraprotiens-after-sct/page/2/#post-89779 Fri, 04 Feb 2011 17:10:05 +0000 Interesting thread, My husbands paraprotien is around 50 on average has been as high as 69 but he has no treatment. They say because it is not causing damage to the bones or kidneys they are holding off. I find this hard to get my head around, why wait when you can see such differences in the levels after treament, why wait until the…[Read more]

]]> b4194b0e7d88c4bf1fcd22bdfc428f0c JeanPalmer replied to the topic Champagne but no Celebration in the forum General http://www.myeloma.org.uk/forums/topic/champagne-but-no-celebration#post-89143 Wed, 08 Dec 2010 22:35:55 +0000 Gill, can I ask what is the high PP levels

]]> 61da8467acbb0f90c6a59eb042c7c005 JeanPalmer replied to the topic When do they start treatment in the forum General http://www.myeloma.org.uk/forums/topic/when-do-they-start-treatment#post-88805 Thu, 11 Nov 2010 17:29:23 +0000 Firstly sorry for not putting my name, it is Jean. I had a lot of trouble doing my first post on the new site.

Mike's Paraprotein level tonight was 48 and everything else was fine. He is getting a lot of colds, chest infections and cold sores. He is going back in two months. He has no bone pain apart from arthritis in him lower back, that…[Read more]

]]> 18c2c61055fb95c447a9e32bd22aba5f JeanPalmer started the topic When do they start treatment. in the forum General http://www.myeloma.org.uk/forums/topic/when-do-they-start-treatment Tue, 09 Nov 2010 21:35:44 +0000 Firstly I like the new site.

Mike my husband has MM for the past 2 1/2 years, previous to the he had MGUS since 1998. He had a stroke in 2002, so one way in another he has been dealt a bad hand.

He is off to the Hospital on Thursday, and I find the anticipation of whether he is going to start treatment or not over whelming. His…[Read more]

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