[jeapal23Participant]

Much shorter Pat, in at 9am out at 4pm. mikes just tired. im sure the grumpy man will appear tomorrow 100mg of dex. OMG

[jeapal23Participant]

mike is in the day unit getting his 2nd daratumumab. he will be reviewed in 8 weeks to see if its working, fingers crossed

[jeapal23Participant]

Hi Pat. Mike’s first treatment went well. they split it over 2 days 10 hours each day. He had no reactions at all. Next weeks will be done in clinic. he came home yesterday. we where waiting for a care package to be reinstated but it was taking ages so I told him I was taking him home regardless, well surprise surprise they got there act together and someone came out last night. im so glad to have him moaning. x

[jeapal23Participant]

Hi Pat, well I’m pleased to say after a fortnight of being in hospital he is back on plan, Picc line today and treatment given over 2 days starting tomorrow. hope your husband is doing ok.

[jeapal23Participant]

Hi Pat. Mike is still in hospital. hopefully cdiff has gone. he is getting Picc line tomorrow and maybe treatment on 1st Jan.

[jeapal23Participant]

Turns out my hubby has C Diff.

[jeapal23Participant]

My Husband went back into hospital with high temperature last night. Seems his chest is clear. im hoping this doesn’t put a spanner in the works

[jeapal23Participant]

good to hear that you are doing great. I think the reason Mike was told last line was because the toxicity from chemo is doing him no good and infections will kill him. twice I have been told to prepare for the worse. Fingers crossed this helps. xxx

[jeapal23Participant]

Mike had tried velcade pomalidomide and revlemed. Only every had three or four cycles of any of them.

Mike is a fighter. He had had quite a few chest infections the worse being last year when he was in hospital for 28 day. 11 of them in intensive care. They thought he would pull through from that infection. They never did work out what it was.

[jeapal23Participant]

Well after Mikes first cycle he got a very bad chest infection. He was given a 10 day bacterial antibiotics to take and I’m pleased to say got rid of the infection. His Pp level went to 29 from 38 but jumped back up to 33. He is now in the third week of cycle 2 if his PP Level does not come down to 19 they will stop treatment. Pray for a miracle mikes level have never been that low with any treatment.

[jeapal23Participant]

Hi Andy, No Michael is not on a trial, he is very tired on this treatment at the moment, this is his first week. He is back at the hospital tomorrow for bloods.

Michael had a stroke 12 years ago so I think this plays a part in the treatment, they held off for a long time not treating Michael. His PP level has been as high as 70 but at the time he had no other issues they left it along. they only started treating when the lesions started. Hope he does alright on this im just a bit protective at the moment about germs.

I am glad I stepped away from my stressful job and doing a little part time one now.

[jeapal23Participant]

Maureen, how did you get a grant for a wet room. I could be doing with a toilet downstairs right now.

[jeapal23Participant]

Michael had a follow up appointment yesterday. they are going to leave him alone on the Myeloma front as his lungs need to recovery. He will have a follow up CT scan on his chest in 2 months. They are going to let him recover and build up his strength and then he will have a bone marrow test to see how the myeloma is doing and from there we will decide on the next step. He is making good slow progress. We have a temporary wheelchair for him and the Occupational Therapy team came up with the equipment needed.

Back in clinic in 2 weeks. I have another 2 weeks off work and I will see where I go from there.

Thank you for all the support
Jean

[jeapal23Participant]

Michael is making progress they are reducing the oxgyen every day. It is great to see light at the end of a tunnel and u can see a future. I told him he can’t give up I’m planning my retirement and I want to get old with him. Thank you for all the responses is good to be the stories

[jeapal23Participant]

Michael moved up to the ward late Friday. He is still on the oxgyen and he looks so much better. They have said it will be a long process and wheelchairs have been mentioned. We also have to make the decision that if he goes down hill not to do any intervention. I’m finding that very hard to deal with. Seeing the doctors this afternoon see what they have to say.Eve does slim have treatment

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