Myeloma Forum | JefferyCrawford | Activity https://forum.myeloma.org.uk/members/jeff605/activity/ Activity feed for JefferyCrawford. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 864a058dc9204947917a51a76a274d70 JefferyCrawford replied to the topic The best hospital to treat Myeloma??? in the forum General https://www.myeloma.org.uk/forums/topic/the-best-hospital-to-treat-myeloma/#post-135233 Wed, 27 Sep 2017 15:30:38 +0100 Difficult to find information on hospital rankings I found. I attend the Leicester Royal Infirmary, and have found the oncology team there fine. There are a number of consultants and you don’t always see the same one ( I believe you can ask to see the same one, but  I have just seen whichever one I am asigned to) They have always treated me with…[Read more]

]]> 73ae4bac441cc5556a7aa2c85545bc1c JefferyCrawford started the topic Desensitisation of painful feet in the forum Side-effects https://www.myeloma.org.uk/forums/topic/desensitisation-of-painful-feet/ Mon, 14 Aug 2017 13:16:39 +0100

Hi, part of the effects of the neuropathy I have in my legsand feet is extreme sensitivity in my feet, especially the left. It is so sensitive that the slightest brush against anything is painful ( although strange to say, I can trap it under my wheelchair and not know that I have done so and wonder why the chair doesn’t want to move!!)  Has a…

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]]> a818d67f6bd1f56dbd5b0d90db3ca1b2 JefferyCrawford replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-132018 Sun, 26 Feb 2017 23:38:34 +0000 Hi, nice to hear from you.  Sofar I have had acknowledgment of my letter, and no decision yet. Bit irrelevant atm as I can’t drive,  as I’m not mobile enough to get to the car let alone drive it! Glad you have kept your licence,  it really is a trial not being able to drive, makes every thing difficult.  Regards, Jeff

 

]]> b9381fb62657a001c0ead7bd985297c2 JefferyCrawford replied to the topic Sct not an option in the forum General https://www.myeloma.org.uk/forums/topic/sct-not-an-option/#post-131621 Sat, 21 Jan 2017 04:37:02 +0000 Hi Millie12. Yes I know what you mean.  I have just reached remission after some 3 years of treatment without SCT,  how long it will last who knows!  Fingers crossed.  I did post that I almost felt under a death sentence the way the posts seemed to read. Perhaps others who have not had sct could comment or post of their stories to encourage oth…[Read more]

]]> 43c13f2159ec064d17e77e719bed7fc8 JefferyCrawford replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130478 Wed, 16 Nov 2016 09:29:06 +0000 Hi, Andy, thanks for the information,  I will download the form and send it off, I have booked the car in to have hand controls fitted later this month, and bought a scooter lift to make things easier.  I certainly wouldn’t consider continuing to drive the car as I am and it is, the risk of hitting something or someone is far to likely to h…[Read more]

]]> a31b364f9252abb58890d22f4f5d05b7 JefferyCrawford replied to the topic Peripheral neuropathy and the DVLA in the forum Side-effects https://www.myeloma.org.uk/forums/topic/peripheral-neuropathy-and-the-dvla/#post-130448 Sat, 12 Nov 2016 17:36:23 +0000 Hi, haven’t posted for a while, decided to wait and see what would happen after I highlighted my Neuropathy to my consultant group after giving it low rating in importance until I came across this post when having a catch up session. I was concerned about the DVLA aspect. Since then it is having a much more negative effect on my abilities to drive…[Read more]

]]> b385dec8a1a961bbb1722332f60b9468 JefferyCrawford replied to the topic Travel insurance in the forum General https://www.myeloma.org.uk/forums/topic/travel-insurance-6/#post-129694 Thu, 22 Sep 2016 21:16:41 +0100 Hi, I have just got insured through HSBC, £62 For 8 days Malta excluding anything connected with Myeloma,  after a lot of searching.  Jeff

]]> dd391c5b2755f7fe7ae17bc862d8d0d5 JefferyCrawford replied to the topic Lenalidomide/dexamethasone in the forum Side-effects https://www.myeloma.org.uk/forums/topic/lenalidomidedexamethasone/#post-128940 Mon, 25 Jul 2016 15:17:19 +0100 Hi Lennie, I recognise these symptoms only too well.I have been on Revlimid for some 2 years, and the lack of taste is a real downer, together with as you describe a burnt feel to the tongue. I think about what I would like to eat, sit down to it and don’t want it, usually steuggle through most of it. Thank goodness puddings aren’t affected so…[Read more]

]]> 3a41a6d2a4f4a994c89aaf2566b1624d JefferyCrawford replied to the topic Holidays in the forum General https://www.myeloma.org.uk/forums/topic/holidays-2/#post-128617 Tue, 28 Jun 2016 13:18:57 +0100 Susie, I am in the same situation, cant get insurance while taking meds, talked to the consultant about it, if I am well enough will be able to have a drugs holiday for a month or so and should then be able to get insured. but won’t know until close to holiday so have taken a chance and paid!! Might lose it, I did try several insurers but always…[Read more]

]]> c3c506ce8edf1d42275fffe9a50a947b JefferyCrawford replied to the topic Blue Badge in the forum General https://www.myeloma.org.uk/forums/topic/blue-badge-2/#post-127809 Sun, 01 May 2016 20:51:07 +0100 Hi Susie Afraid that feeling comes to us all, I hate having to use a walking stick, but needs must!! I think we have enough to deal with,anything that makes it easier is welcome Take care Jeff xx

]]> 14b6a1a4cbf34cdcdccb9379e7c4f187 JefferyCrawford replied to the topic Blue Badge in the forum General https://www.myeloma.org.uk/forums/topic/blue-badge-2/#post-127803 Sun, 01 May 2016 08:51:55 +0100 Contact MacMillan, they sorted mine out initially, there is I think some arrangements for terminal cancer patients Good luck Jeff

]]> 8144a6d2e4bbbafb20bdcd946c289ffa JefferyCrawford replied to the topic Lenalidomide/dexamethasone in the forum Side-effects http://www.myeloma.org.uk/forums/topic/lenalidomidedexamethasone/#post-127476 Thu, 31 Mar 2016 09:30:39 +0100 Wow Pennie, what a breath of fresh air at just the right time for me. Andie’s story is so similar to mine, except I am only 5 years down the line as against Andie’s 16, even to an emergency op resulting in an ileostomy! On the same treatment too. I am in a bit of a down just now mainly due to a painful back problem, and this post has cheered me…[Read more]

]]> 0b9fbddc411949b0e7ed8b16d4c9460b JefferyCrawford replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-127457 Wed, 30 Mar 2016 07:47:55 +0100 Quick update :- back now a lot better,after a very difficult MRI scan no evidence of cancer or new damage which was a big relief. I decided to live with a bit of pain and reduced my morphine dosage as the heavy dose the GP recommended wiped me out, sleepy and dreamy all day, so am now seeing how it settles down, if possible will reduce it…[Read more]

]]> 6ceb2d939cb06ece359572953d1ee69e JefferyCrawford started the topic Mirtazapine in the forum General http://www.myeloma.org.uk/forums/topic/mirtazapine/ Thu, 24 Mar 2016 19:10:41 +0000 Hi all, I am going through quite a down spell at present, caused by a series of not nice events that have caused me to struggle to maintain my usual positive attitude. My GP,a good family doctor ( he spotted my Myeloma early on) wants me to start a course of Mirtazapine tablets. I am concerned about side effects ( we all have enough of those…[Read more]

]]> bf8ad51d88a2e155c057c4d70e328b14 JefferyCrawford replied to the topic Sis back in hospital in the forum General http://www.myeloma.org.uk/forums/topic/sis-back-in-hospital/#post-127373 Mon, 21 Mar 2016 20:30:41 +0000 Ahh, Nippy, sorry to hear about the latest news, hope it gets sorted ok. Best wishes xx

]]> a8dfd001f229f5176bf658550ce84dc8 JefferyCrawford replied to the topic Sis back in hospital in the forum General http://www.myeloma.org.uk/forums/topic/sis-back-in-hospital/#post-127257 Sun, 20 Mar 2016 19:24:00 +0000 Nippy, chest infections seem to be the bane of chemo drugs, I’ve had several, and have even been given antibiotics to keep at home in case I start developing one! Hope sis recovers quickly, they do drag you down

]]> 03a2170eb59dc0f9d22e92b0e8061fa2 JefferyCrawford replied to the topic GP letters in the forum General http://www.myeloma.org.uk/forums/topic/gp-letters-2/#post-127253 Sat, 19 Mar 2016 17:07:04 +0000 I know a while ago someone on the forum was having great difficulty with the Leicester Royal Infirmary oncology unit getting letters passed on to him and had to demand them through – I think it was – the pals network, and had to pay a fee. It was a long time ago so not sure of the details, but you are evidently entitled to this information. Since…[Read more]

]]> e83da5b87930625a28fc85b9db4810e7 JefferyCrawford replied to the topic GP letters in the forum General http://www.myeloma.org.uk/forums/topic/gp-letters-2/#post-127250 Fri, 18 Mar 2016 22:35:55 +0000 Hi Susie the Leicester Royal Infirmary oncology unit now always sends copies of the Doctor’s letters, weren’t so good in the past, usually about 2 weeks after the event. As you say, a useful reference to check back on events and dates, and the consultant’s remarks.
All the best xx

]]> 8bad72248e0bccc6e5394b8a7fed7156 JefferyCrawford replied to the topic Bone pain in the forum General http://www.myeloma.org.uk/forums/topic/bone-pain-5/#post-127175 Sun, 13 Mar 2016 16:22:28 +0000 Hi Peter, I would be inclined to take action tomorrow rather than wait for the consultant meeting as it is a fair while away, and things can change quickly. Also you may be able to find help with the pain, even if it’s only to lessen it to a degree, as happened to me with my back problem. Don’t worry about being a nuisance, that’s what the system…[Read more]

]]> d9baefd8a07fab97e7106dc67aafb7a8 JefferyCrawford replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-127017 Sun, 28 Feb 2016 11:59:27 +0000 Hallo Nick, done it again came off this page lost a long script! Try again!
Nick, sorry to hear things haven’t improved much for you. The lack of mobility is so limiting,and constant pain drags you down mentally as well as physically as we both know. I have many of the problems that you have, tiredness and fatigue in particular. I hope things…[Read more]

]]> bf016e306c64681262c2b56f1ef1ac4f JefferyCrawford replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-127017 Sun, 28 Feb 2016 11:59:27 +0000 Hallo Nick, done it again came off this page lost a long script! Try again!
Nick, sorry to hear things haven’t improved much for you. The lack of mobility is so limiting,and constant pain drags you down mentally as well as physically as we both know. I have many of the problems that you have, tiredness and fatigue in particular. I hope things…[Read more]

]]> 65a65b3bd0f3e71bff45323759cceae9 JefferyCrawford replied to the topic Hello All in the forum General http://www.myeloma.org.uk/forums/topic/hello-all-2/#post-126889 Sat, 13 Feb 2016 11:28:33 +0000 Hi, Vicki. Just a quick one regarding the ball, where will it be held? Need to know how far away from me it will be before thinking about it.
Thanks, Jeff

]]> 7c0a4eb515c9d83c9e2f8055598c9236 JefferyCrawford replied to the topic Lenalidomide/dexamethasone in the forum Side-effects http://www.myeloma.org.uk/forums/topic/lenalidomidedexamethasone/#post-126887 Sat, 13 Feb 2016 10:12:25 +0000 Margaret, I have been – cycle 23 – of Dex and Revlimid for nearly two years. The symptoms you have described about sums up mine! Get all of those to varying degrees. This morning I can just about support myself standing up and walking, this will last for an hour or two. Breathless is getting worse, any activity causes it now.Interesting that…[Read more]

]]> 96eb250b46af9532acc7d52318e8519c JefferyCrawford replied to the topic 5 Years Ago Today in the forum General http://www.myeloma.org.uk/forums/topic/5-years-ago-today/#post-125898 Wed, 20 Jan 2016 10:17:52 +0000 Hi, Phil, good to hear your good news,long may it last, gives all of us struggling on hope. Best wishes for a long future, Jeff

]]> 4301d67a54025c98be43641ef417e327 JefferyCrawford replied to the topic Loose bowels & occassional dizzy spells in the forum Side-effects http://www.myeloma.org.uk/forums/topic/loose-bowels-occassional-dizzy-spells/#post-125859 Mon, 18 Jan 2016 17:49:59 +0000 Hi Eric, I am just coming up to my Revlimid free week, I shall monitor it carefully and see how I feel day by day, and get back to you Jeff

]]> 9371a914be07c4d5ad14faac154abc20 JefferyCrawford replied to the topic Tiredness in the forum Newcomers http://www.myeloma.org.uk/forums/topic/tiredness-2/#post-125852 Mon, 18 Jan 2016 14:43:41 +0000 Hi Mavis, thanks so much for your kind thoughts, it means more than you realise for me to know that there are people out there who care. I am fortunate in that I have a close family near to me who are supportive, but I don’t like to put too much on them, they have their own lives to live and way to make. My way of dealing with things is to get up…[Read more]

]]> a89ce702d0baa7bbeb5b42360c29ad73 JefferyCrawford replied to the topic Loose bowels & occassional dizzy spells in the forum Side-effects http://www.myeloma.org.uk/forums/topic/loose-bowels-occassional-dizzy-spells/#post-125683 Tue, 12 Jan 2016 00:56:47 +0000 Hallo Eric, I was drifting through the posts on a steroid night and found yours. I am in about the same position as yourself with results, haven’t had a SCT, and am on the 21 cycle of Revlimid ( same dose and frequency ) and Dex.
I was interested in you saying about your fatigue, I have hit a real high level of this, really tired out, falling…[Read more]

]]> 1e88356b1391d131b4d015c15bb0a3c4 JefferyCrawford replied to the topic Thank you.. in the forum Off topic http://www.myeloma.org.uk/forums/topic/thank-you-2/#post-125570 Sun, 03 Jan 2016 18:19:03 +0000 Hi Tony,happy new year to you and all our readers,let’s hope for many more years of them. Well said in your post, it’s easy to forget all that’s done for us when we are sitting in the waiting room at LRI with appointments running 2 hours late!! It really is an interesting time, there is such a lot of research in so many directions, several sound…[Read more]

]]> 288fa478239fbd4bdc650fa96cd4e41e JefferyCrawford replied to the topic Tiredness in the forum Newcomers http://www.myeloma.org.uk/forums/topic/tiredness-2/#post-125567 Sat, 02 Jan 2016 21:36:32 +0000 Hallo, all, I haven’t posted for a while, my middle daughter who I have mentioned before (she suffered a brain bleed a while ago unfortunately was finally overcome by the long term effects of her ongoing problems and passed away at the end of November, which although not a complete surprise wasn’t expected and needless to say was a big shock.…[Read more]

]]> 540617cbd26aa10308b6de25775f9a78 JefferyCrawford replied to the topic Tiredness in the forum Newcomers http://www.myeloma.org.uk/forums/topic/tiredness-2/#post-125567 Sat, 02 Jan 2016 21:36:32 +0000 Hallo, all, I haven’t posted for a while, mypmiddle daughter who I have mentioned before (she suffered a brain bleed a while agounfortunately was finally overcome by the long term effects of her ongoing problems and passed away at the end of November, which although not a complete surprise wasn’t expected and needless to say was a big shock. Life…[Read more]

]]> c97cfd207696fa3ca94aae89cee003d0 JefferyCrawford replied to the topic CURCUMIN in the forum General http://www.myeloma.org.uk/forums/topic/curcumin1379683671/page/3/#post-125004 Mon, 16 Nov 2015 11:10:56 +0000 I took curcumin for many months while smouldering. When my wife died I sort of went to pieces and stopped several things, such as buying newspapers, watching Tv, and also taking curcumin. Within 2 months my Myeloma became active and I started chemotherapy. Coincidence? Who knows. Jeff

]]> 03c8d577e060f2118bf7e67a0db953e3 JefferyCrawford replied to the topic Criteria for Remission in the forum Treatment http://www.myeloma.org.uk/forums/topic/criteria-for-remission/page/2/#post-124894 Tue, 10 Nov 2015 01:08:29 +0000 Hi, an interesting Post. I am in the situation of hopefully being offered a reversal of a stoma I ended up with after an emergency operation last year. My myeloma is in partial remission, and stable at the moment. To have this operation I shall need to come off Dex for a month or so, the surgeon flatly refuses to carry out the operation while I am…[Read more]

]]> 91a7a326b9b9cc8f77ad493fc83a03c0 JefferyCrawford replied to the topic Just a little update on my progress. in the forum General http://www.myeloma.org.uk/forums/topic/just-a-little-update-on-my-progress/#post-124766 Thu, 29 Oct 2015 10:52:13 +0000 Hi, Andy, so pleased to hear of your progress, and your recovery from your hospitalisation. I had a similar ” out of it ” session while in I.T.U. following an emergency admission. On recovery, I was about to put pen to paper to write to the newspapers asking why our hospital was being run by a private concern, when I had to revisit the I.T.U. and…[Read more]

]]> 4eb2ff116d74564c5bdb6bc2cca20bfd JefferyCrawford replied to the topic What a fourth myeloma anniversary in the forum General http://www.myeloma.org.uk/forums/topic/what-a-fourth-myeloma-anniversary/#post-124554 Thu, 08 Oct 2015 12:42:14 +0100 Hallo Andy, sorry to hear about your experiences, no doubt you met them with your usual resilience. Very pleased to hear of your recovery, I hope it’s not too slow, I know only too well the frustration continued tiredness brings with it.
Just keep taking it one day at a time, and as you say, each one we get through is a gift Best wishes,Jeff

]]> 1a49bc04fb9cbda4e5846a01bfc51808 JefferyCrawford replied to the topic Vaccination in the forum General http://www.myeloma.org.uk/forums/topic/vaccination/#post-124517 Mon, 05 Oct 2015 16:06:09 +0100 Hi Susie, had a slight reaction to the first years jab, bit feverish and felt rough for a day or two, but since then have had no significant reaction at all Had this year’s last week. So maybe it’s one of these things that seems so common with Myeloma where we are all different, but I would go with the consultant’s wishes, mine was the same,…[Read more]

]]> be407cdd51feb65b158e543fea8844de JefferyCrawford replied to the topic CANCER DRUG FUND CAMPAIGN - 38 DEGREES - PLEASE SIGN... in the forum General http://www.myeloma.org.uk/forums/topic/cancer-drug-fund-campaign-38-degrees-please-sign/#post-124307 Tue, 22 Sep 2015 08:53:18 +0100 Rebecca,found the 38degrees petitions on the drugs and signed them all!!! Best wishes Jef

]]> 8a94c48b5719ca98e2ac10355ed88323 JefferyCrawford replied to the topic one week (and a bit) in in the forum Treatment http://www.myeloma.org.uk/forums/topic/one-week-and-a-bit-in/#post-124306 Tue, 22 Sep 2015 08:50:51 +0100 Nick, what a struggle you have had! I sympathise as I have endured back problems with two vertebrae more or less disappeared together with 5 1/2″ in height Have you lost any height? I had a vertobroplasty over a year ago which has lessened the pain and I can now walk a few hundred yards – big improvement so hang on in there! I have been very…[Read more]

]]> 94773a5c0a21ef01d7613a7ffa144719 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/4/#post-124148 Tue, 15 Sep 2015 08:54:45 +0100 Dusk, I think you are right about a campaign across all the
Cancer groups , it would be that more a powerful representation. I would suggest a petition similar to those set up by 38 Degrees, which have wide veiwing on the internet.( Ive signed several). These attract attention from those not directly involved too. Unfortunately due to family…[Read more]

]]> 3d5da873869d22382ab6ccaea93d2f64 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124144 Tue, 15 Sep 2015 00:17:02 +0100 Point taken, letter to Sir Allan Duncan to be composed and sent forthwith!! I shall wait until steroids wear off though.

]]> ecc2a2e32b2d4deeebd02f8cd3ca5967 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124142 Mon, 14 Sep 2015 22:11:11 +0100 Alex, please don’t think that I unaware of the political aspect of these problems. However I do feel that blaming/accusing individual politicians is a waste of effort, which hopefully can be better applied. What political party has ever carried out what they promised when seeking power. I would add that I am actively supporting the campaign…[Read more]

]]> f093996becd0591fbf34c8bf08bcc75d JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124136 Mon, 14 Sep 2015 18:08:18 +0100 Can I suggest that we don’t get involved in political personal slurs however well intentioned, I can’t see the value to the campaign against the actions being taken concerning the withdrawal of the drugs Jeff

]]> 89bcbc27230585db0524f61a97399f3b JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124135 Mon, 14 Sep 2015 18:01:40 +0100 Hi, talked about this with my consultant last Thursday -good news was p/ps down another point now at 1.7!- saying how concerned we all are. She was – and she is one I trust – not to be worried, they were confident that they could deal with remissions and saw no real cause for concern. She is not one to mince her words, she tells you as it is.…[Read more]

]]> 8b84867620061e6e84d22521b24ee088 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124005 Tue, 08 Sep 2015 18:18:04 +0100 Hi Ellen thanks for the information, looks like we just have to hang on and hope for the best. If there is anything we can do to help influence the decision making please let us forum users know. Jeff

]]> 7c902a85a9d953f2d4d9c06082f370ef JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General https://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/2/#post-123946 Sat, 05 Sep 2015 20:57:34 +0100 Hi All, well this has really stirred things up hasn’t it? I’ve contacted Myeloma UK and asked them if they can explain exactly where we stand in the light of these decisions, as I for one am not fully conversant with whats been decided – I just know it’s not good news. I will feedback any answer and information I get. Try not to get too down over…[Read more]

]]> 59c013af88c780c117211f47ddd63e67 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/#post-123924 Sat, 05 Sep 2015 10:35:34 +0100 I don’t know if Myeloma UK could give us some guidance on how these decisions will affect our future treatment, it is certainly very disturbing information with huge implications on our future treatment and survival. I will look at contacting Myeloma UK to request further details. Jeff

]]> d11609764bc0e4438f8b1a25186b6c76 JefferyCrawford replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/#post-123919 Sat, 05 Sep 2015 08:11:05 +0100 Hi Tom, I am in the same position as as yourself, on Revlimid and Dex, which is working well at present. As you say, devastating that what is probably the last fall – back drug has been put out of reach to us. It has kept a friend of mine going for several months although it has now ceased to work for him. It’s even more annoying that this is a…[Read more]

]]> bd4efea1416669480b1e386c457baa07 JefferyCrawford replied to the topic Colin in the forum General http://www.myeloma.org.uk/forums/topic/colin/#post-123569 Sat, 15 Aug 2015 08:28:50 +0100 So sorry to hear of Colin’s passing, as I know even when you expect it it’s still. so hard. Jeff

]]> a73810a929e472e6475ffe5c12e43c6b JefferyCrawford replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123338 Sun, 26 Jul 2015 09:10:12 +0100 Hi, Ben.When I was diagnosed the S.C.T.cut off point was just past my age although I was told I could still have one ( this age has since changed I believe). I had researched the procedure, realised how arduous and lenghty it would be, talked it over with the consultant and family,and decided it wasn’t for me. History has proved it to be probably…[Read more]

]]> f2b3f04633f5b1411a5d38540141347c JefferyCrawford replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123330 Sat, 25 Jul 2015 02:17:41 +0100 Interesting subject and one I have wondered about. At Leicester I see one of 5 consultants, and occasionally a registrar, these vary, this so far hasn’t been a problem. The consultants are all pretty good – although I do have favourites – and seem to have a good knowledge of my case and my problems. I believe they have a case conference the day…[Read more]

]]> e943325a6c6757d2407234b86ec9a068 JefferyCrawford replied to the topic Whacked out days in the forum General http://www.myeloma.org.uk/forums/topic/whacked-out-days/#post-122809 Sat, 27 Jun 2015 09:00:41 +0100 Hi Capeltor, thank you for taking the trouble to reply, I am so sorry to hear of the loss of your husband. What you say is very interesting,I have noticed of late that I seem to be drinking more than previously, which is another sign of possible diabetes I have been told.I shall call in at Lloyds Chemists and get myself checked. Steroid induced…[Read more]

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