Myeloma Forum | JanJobson | Activity https://forum.myeloma.org.uk/members/jellybabyjan/activity/ Activity feed for JanJobson. Tue, 14 Apr 2026 16:56:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 494eca809a87e66352ae29522823d05a JanJobson replied to the topic Fit due to low blood pressure in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/fit-due-to-low-blood-pressure/#post-118646 Mon, 06 Oct 2014 19:07:40 +0100 Hi Eve

Thank you for your wise words. Mike is doing very well since I last wrote. He has very few low BP incidents now and the wheelchair is redundant. We feel like a miracle has happened! We know it is probably down to ‘no chemo’ and he will have to go on another one soon, but we are enjoying the moment. We are making the most of each day and…[Read more]

]]> 232c050f2d34682d3c0d1d5cfe555f5a JanJobson replied to the topic Fit due to low blood pressure in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/fit-due-to-low-blood-pressure/#post-118336 Wed, 24 Sep 2014 16:36:58 +0100 Hi Karen

Things have got worse since Sun. We’ve now been told by his consultant that this could happen any time and we might not be ‘so lucky’. Prepare for the worse, hope for the best. They have contacted our local hospice. His BP tablets have been doubled and we now have a wheelchair. So far so good. We are shadowing his every move and ‘hoping…[Read more]

]]> fc2d26d2af551cc42b501134afedae1f JanJobson started the topic Fit due to low blood pressure in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/fit-due-to-low-blood-pressure/ Wed, 17 Sep 2014 20:44:05 +0100 Hi
We had a nasty shock on Sun night when my husband Mike had a fit due to low BP. He stopped breathing and I had to give him CPR for about 4mins until the paramedics arrived. Thankfully I got him breathing again but it has scared us shitless! (sorry). Thery’re seems to be no quick fix as Amyloid has damaged his nervous system. Every time he g…[Read more]

]]> 784fcb7b47489c205e1280ca5a69deb4 jellybabyjan posted an update: Hi We had a nasty shock on Sun night when my husband Mike […] https://forum.myeloma.org.uk/activity/p/28143/ Wed, 17 Sep 2014 19:19:04 +0100 Hi

We had a nasty shock on Sun night when my husband Mike had a fit due to low BP. He stopped breathing and I had to give him CPR for about 4mins until the paramedics arrived. Thankfully I got him breathing again but it has scared us shitless! (sorry). Thery’re seems to be no quick fix as Amyloid has damaged his nervous system. Every time he goes…[Read more]

]]> 0 b6d5deca873e2833cb41e5a04b4a271b JanJobson replied to the topic Stem Cell Transplant in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-4/#post-115370 Mon, 26 May 2014 20:50:07 +0100 Will do. Thanks.

Jan

]]> fdd7cea4b11997627b44bf55540362b1 JanJobson started the topic Stem Cell Transplant in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-4/ Mon, 26 May 2014 15:47:36 +0100 Hi

My husband Mike has been in remission since Jan but his Amyloidosdis has come back bad. They are talking of a SCT if his heart is fit enough. He has stage 3 Cardiac Amyloidosis and is on Peritoneal Diaylsis. They have told us it’s a very serious and risky operation but is his best chance of a long remission. The other option is chemo for 18+…[Read more]

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