Myeloma Forum | jellytot | Favourites https://forum.myeloma.org.uk/members/jellytot/activity/favorites/ Activity feed of jellytot's favourites. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 38bc1e3bc165b58ee2cf9e06dab48a58 IanG replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/3/#post-123707 Fri, 21 Aug 2015 23:38:29 +0100 Hi All

> Dawn, it’s good to hear your pp has responded well to CTD. I’m not sure about the implications of high FLCs on their own, it’s not something I’ve explored. MM has so many variations. Sorry to hear about your continuing side effects. I recollect having painful thigh muscles for a while but I think it was when I was on Velcade + Dex, not…[Read more]

]]> 111e60c2ec5f3324900ad91dac4fc42a IanG replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/#post-121008 Thu, 26 Feb 2015 15:37:35 +0000 Hi Peter

Being a person with myeloma rather than a myeloma patient is a good way of putting it. I think that’s how I tend to feel. Actually, I tend to forget I’ve got myeloma a lot of the time, though not for long periods inevitably if you’re still taking medication for it.

I’m sorry to hear the Velcade treatment is not having a dramatic effect,…[Read more]

]]>