jennaline replied to the topic light chain myeloma in the forum Newcomers 12 years, 2 months ago
Sorry that I haven't replied to any of my mail this week but I haven't exactly been feeling too great!!! but on the way back up again. This Wednesday I am back up at Kings college Hosp to have my bloods done, see my specialist and pick up my 4th cycle of my maintenance plan. I soo wish I could go back on Bendamustine as it gave me 2 1/2 years…[Read more]
jennaline started the topic light chain myeloma. in the forum Newcomers 12 years, 3 months ago
Hi again, having gone through a lot of the posts I feel as though I am the only one on here that is suffering from Light Chain Myeloma===am I right?===if not perhaps you can make yourself known and swap knowledge.===Jenny
jennaline replied to the topic light chain myeloma in the forum Newcomers 12 years, 3 months ago
Hi Eva, when I was 1st diagnosed in May 09 I was put on A trial drug, called Bendamustine, because I also have stage 4 kidney failure and it is kinder than some of the other chemo's. I was also given thalidomide, preds and a couple of other medications. It was extremely successful and I had 2 1/2 years remission== when LTM returned I was then…[Read more]
jennaline replied to the topic light chain myeloma in the forum Newcomers 12 years, 3 months ago
Thanks Tom for your comments, I am at present on the end of my third cycle and I have been told that I should feel better after the 4th cycle====we will see!!!!!===that's if the drugs don't kill me off 1st!!!lol. This is the 3rd time that I have had LT return so I hope its 3rd time lucky. What I hate most of all is the feeling of isolation…[Read more]
jennaline replied to the topic light chain myeloma in the forum Newcomers 12 years, 3 months ago
thanks Mavis for your good wishes, Jenny
jennaline started the topic light chain myeloma. in the forum Newcomers 12 years, 3 months ago
Hi, I was diagnosed with light chain myeloma in May 09 I have been fighting it on and off since. I am at present on a maintenance course of Revlamid and cyclophosphamide, plus Dexamethasone. It is my 3rd cycle and am having some pretty horrible side affects. ie cramps in hands feet and back of ribs, hot sweats,hardly any sleep, aching…[Read more]
