[jennalineParticipant]

Sorry that I haven't replied to any of my mail this week but I haven't exactly been feeling too great!!! but on the way back up again. This Wednesday I am back up at Kings college Hosp to have my bloods done, see my specialist and pick up my 4th cycle of my maintenance plan. I soo wish I could go back on Bendamustine as it gave me 2 1/2 years remission. But they have promised me that If the Revlimid and cyclophosphamide doesn't do the trick they will try to get me back on Bendamustine. Fingers x'd. Good luck to all you out there , and as Tom says "onwards and upwards" Jenny xxx my love to all of you.

[jennalineParticipant]

Hi Eva, when I was 1st diagnosed in May 09 I was put on A trial drug, called Bendamustine, because I also have stage 4 kidney failure and it is kinder than some of the other chemo's. I was also given thalidomide, preds and a couple of other medications. It was extremely successful and I had 2 1/2 years remission== when LTM returned I was then given a further cocktail of drugs including Valcade, Cyclophosphomide and Dexamethasone. After my 4th cycle I had a really bad reaction and was sicking up and passing what look like black treacle!!! I was told that as I was now in temporary full remmission to stop all further treatment…..2 months later after a visit to the hosp to check on my bloods I was told that the LTM was returning!!! This is where I am now on the end of my 3rd cycle of the third lot of treatment……I am an extremely strong female and will deal with whatever….. thank you for your concern and imput….Jenny

[jennalineParticipant]

Thanks Tom for your comments, I am at present on the end of my third cycle and I have been told that I should feel better after the 4th cycle====we will see!!!!!===that's if the drugs don't kill me off 1st!!!lol. This is the 3rd time that I have had LT return so I hope its 3rd time lucky. What I hate most of all is the feeling of isolation that this maintenance course makes you feel. In the past when the LTM has showed its ugly head I have gone to the cancer day centre and had my treatment amongst other patients, so one can chat and discuss revalent issues. With this treatment you pick the cocktail of drugs up from the pharmacy at the hospital and the only time you return is once a month to have your bloods done and to speak hopefully to your oncology doctor===pick up the next cycle and go home again….really unsatisfactory…….Jenny

[jennalineParticipant]

thanks Mavis for your good wishes, Jenny

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