Thanks again Nick, I hope you saw my reply back to you . This is a brill site

Jen xx

Dear Paul,

Thank you so much for that information , that really gives me a bit of hope for my dad and I will show him that.  7 miles a day is pretty impressive , my dad would never do yoga or can’t ride a bike sadly but there is always a gym eh and I was thinking about the cycle or even  the running machine for walking and holding onto the sid…[Read more]

Nick,

Thank you for getting back to me, glad to hear your dong well and your bloods and pp at 4.4 is good and stable.  I know this illness seems to effect everybody differently , I guess his age is against him regardless of his previous health.  He is being patient and all we keep saying is give it more time . The doctor did say prob a year f…[Read more]

Hello Paul and anyone else whose been through SCT

How are you doing ?

Can I ask , just before your SCT , how was your mobility and general well being ?

The team have put my dad forward for SCT as although 73 , he was previously a fit strong man with no other illnesses . At the mo 5 months post diagnosis and treatment , he can hardly walk , so…[Read more]

Hello Mike ,

can I say thanks for the hopeful information , 11 years post treatment is amazing ! . Can I ask how was your symptoms before the sct took place ? I’m only asking as my dad who is 73 who was a fit strong builder of a guy before this illness hit him hard this January . The team have put him forward for sct due to his previous health b…[Read more]

Hello Mavis

Thank you for writing to me and welcoming me to the site , which I think is brilliant.  I have looked and responded to some of the other strands and again everyone is so open about what they’re going through, or have been through to which some are very positive and some not so . I appreciate what you said in regards to the staging as…[Read more]

Dear Clover,

i am just emailing as I’m new to this site and found your story and can relate to it. Im very  sorry to hear about your loss, i hope you are coping ok and have other family support around to help pick u up when needed.

I am dreading the day already as my dad was only diagnosed in January (he’s 72) he has had 4 cycles of VTD but t…[Read more]

Hello Paul;

Thank you so much for your reply, it is definitely reassuring to a degree although I know everybody reacts differently but I’ve heard more positive outcomes on this site re STC and how it’s not as bad as one might anticipate . As long as the nurses and docs address any issues right away (which I’m sure they all do ) people get throu…[Read more]

Hi Teresa,

Thank you for getting back to me, this site is fantastic , it gives you a good insight to how it is for some people and how it can be for others with treatment to come.  I’m glad your hubby is doing ok since his SCT and didn’t find it all too traumatic and will still be recovering slowly but surely I take it.

It is also reas…[Read more]

Your welcome Paul ,

Wish you all the best !

Have you had SCT ? If so can I ask how you found it ?

I am asking in regards to my dad you see , just diagnosed in January and hoping to get SCT . Just concerned it’s like equivilant to major  surgery to the body as a manner of speech !

Regards

jennifer

Hi Anne,

Thank you for responding back, it must be a brave thing to start to do research for yourself & I can understand why one might not want to. My dad is not computer literate, and as  I am very interested in his illness and welfare plus I am a nurse I am even more interested in this. Although not in haematology , I can relay info back to my…[Read more]

Dear Paul & everyone

I bought 120 tabs turmeric with bioperine (black pepper ) 95 % curcumin High potency   but each caplet is 500 mg from ‘just vitamins’ website £19.90 which I think is quite good value . As long as it’s 95% curcumin with black pepper to aid absorption , I think there are many suppliers out there.

I have bought these for my…[Read more]

Clarkie,

Can I say well done you on getting your paraprotein don that far and only after 3 cycles . My dad aged 72 diagnosed jan 2018 , has had 4 cycles so far, his paraprotein has got down to 4 so a good partial response . They have stopped his treatment at the mo because he is soo so weak in his legs and can hardly walk.  Can I ask how old you…[Read more]

Dear Emma, Tony and Rebecca

Emma,

hope if you read this your journey of SCT is complete and you have made a great recovery and enjoying life again.  I feel for you at such a young age to have got this illness and hope you get a long remission.

Tony,  You have given me hope for my dad who is 72 and just diagnosed at New year. Considering SCT a…[Read more]

Dear Nick and all who live well with myeloma

I feel a lot more hopeful for my dad after reading these stories . Although he is 72 , he was a strong builder up till the point of diagnosis this New Year’s Day just gone! He should be starting cycle 5 next week of VTD if the doc agrees as he’s having a week off as wasn’t too good , legs very very…[Read more]

Hello Linda,

yes congratulations to you being happy and living life to enjoy with your family.  My dad was diagnosed on New Year’s Day ! so this gives me and my dad great hope for the future, ( and I will show him this forum as he’s not very clued up on the internet ☺️.  He is 72 otherwise well and due to start his 5th cycle of VTD. But these las…[Read more]