[jennyaParticipant]

Hi

I’ve been having monthly Zometa infusions since I was first diagnosed in December 2022 and I don’t seem to have had any severe side effects.
Occasional niggling headache 3 or 4 days after but nothing too bad, however, everyone is different.

Hope all goes ok.

[jennyaParticipant]

Hi judyg,

After i had my SCT in July 2023 i began to suffer with itchy skin on my face, particularly around my jawline and my forehead. This eased off but when i started cycles 5 & 6 it started again and i am convinced it was the thalidomide.
I had a six week break in November/December and the itching stopped and my skin improved.
I have now started on the maintenance drug, Lenalidomide and the dry itchy skin has started again.
My forehead is growing increasingly sore and i am going to mention this again to my haematology team on Tuesday as i strongly believe it is the Lena that is causing this.
I am sure it has to do with the drugs, but like you, my consultant is not convinced.
Hope this reassures you that you are not alone.

[jennyaParticipant]

Hi Mulberry

Thank you for your reply it is very helpful.

[jennyaParticipant]

Hi Ellen,

Thank you very much for your reply, it is very informative.

I am seeing my specialist tomorrow so hopefully we can get it sorted.

I will try some of the non-medical therapies as I prefer to try these before resorting to medication.

Thank you again

[jennyaParticipant]

Thank you Mulberry – it’s maybe something else then, I’m seeing my consultant on Tuesday I will discuss with them further.

[jennyaParticipant]

Hi 12fern34 & mich05,

Thank you for your replies – that is very helpful.

I’ve got a few more weeks to go yet, Cycle 4 ends 2nd May.

Thank You

[Author]

Posts