Myeloma Forum | jes1965 | Activity https://forum.myeloma.org.uk/members/jes1965/activity/ Activity feed for jes1965. Mon, 13 Apr 2026 10:09:10 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7c0d82e1c67f3c25247b8b1872b4bfd2 jes1965 replied to the topic Coping with pessimistic Consultants in the forum Carers http://www.myeloma.org.uk/forums/topic/coping-with-pessimistic-consultants/#post-124473 Thu, 01 Oct 2015 18:21:43 +0100 Dear cupcake I was saddened to hear your news regarding your husband. My prayers and healing thoughts go out to you xxxxx

]]> 136da4dcad36759d7c4889f5bb082e0f jes1965 replied to the topic Bruising and can't walk in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bruising-and-cant-walk/#post-124286 Mon, 21 Sep 2015 06:29:04 +0100 Thank you for your reply David – he had an X-ray yesterday on his thigh so hopefully we will know more today.

 

X

]]> 58f0a1626d9c50594d216e03a7a3d0ba jes1965 replied to the topic Can't walk and bruised thigh in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cant-walk-and-bruised-thigh/#post-124284 Sun, 20 Sep 2015 19:50:04 +0100 Oooops my partner now can’t walk and finds it hard to stand. Has anyone else had problems with leg movement and painful bruising on the thigh

]]> 3630784c39cb1dcf90ae509a5f276eed jes1965 replied to the topic Can't walk and bruised thigh in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cant-walk-and-bruised-thigh/#post-124284 Sun, 20 Sep 2015 19:50:04 +0100 <span style=”font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; font-size: 13px; line-height: 19.5px; -webkit-text-size-adjust: auto; background-color: #fbfbfb;”>Oooops my partner now can’t walk and finds it hard to stand. Has anyone else had problems with leg movement and painful bruising on the thigh</span>

]]> 30a49b5f8fb3e58bd5674331c3853e5c jes1965 started the topic Can't walk and bruised thigh in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cant-walk-and-bruised-thigh/ Sun, 20 Sep 2015 19:16:17 +0100 <div class=”bbp-reply-author” style=”box-sizing: border-box; margin: 0px; padding: 0px; font-size: 13px; direction: ltr; float: left; text-align: center; width: 115px; font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; line-height: 20px; -webkit-text-size-adjust: auto; background-color: #fbfbfb;”>Profile photo of Jane Scott<br…[Read more]

]]> 03b1171c834e4da88921cb632706da09 jes1965 started the topic Bruising and can't walk in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bruising-and-cant-walk/ Sun, 20 Sep 2015 18:51:02 +0100 my partner now can’t walk and finds it hard to stand. Has anyone else had problems with leg movement and painful bruising on the thigh?

]]> 0416c6ab4acb2f81087968af93082590 jes1965 replied to the topic CANCER DRUG FUND CAMPAIGN - 38 DEGREES - PLEASE SIGN... in the forum General http://www.myeloma.org.uk/forums/topic/cancer-drug-fund-campaign-38-degrees-please-sign/#post-124281 Sun, 20 Sep 2015 18:28:35 +0100 Signed and shared on Face Book x

]]> 2344caea93c9c68f063c571efd013d51 jes1965 replied to the topic Coping with pessimistic Consultants in the forum Carers http://www.myeloma.org.uk/forums/topic/coping-with-pessimistic-consultants/#post-124082 Fri, 11 Sep 2015 07:35:46 +0100 Oh bless your heart. My prayers and thoughts are with you and your husband. X

]]> 7e452c423abf081b96d3357548b64c7f jes1965 replied to the topic Getting my husband to eat! in the forum Carers http://www.myeloma.org.uk/forums/topic/getting-my-husband-to-eat/#post-124075 Fri, 11 Sep 2015 04:28:16 +0100 Oh cupcake I feel for you. I fear I may be facing the same. God bless you and keep you strong through this horrid time x

]]> bc131655b5cda34402e08a85cc279fac jes1965 started the topic Coping with pessimistic Consultants in the forum Carers http://www.myeloma.org.uk/forums/topic/coping-with-pessimistic-consultants/ Thu, 10 Sep 2015 18:06:17 +0100 Just how are you supposed to cope when a consultant tells you that there is little hope of the treatment your partner is receiving working and that there is no other treatment?!?!?!?!

I’m petrified but am trying my best to stay positive – only it feels as if someone is squeezing my heart!

Any tips?

 

]]> b48fed6773dc447597ae337cfef87581 jes1965 replied to the topic DTPACE in the forum Treatment http://www.myeloma.org.uk/forums/topic/dtpace/page/2/#post-123908 Fri, 04 Sep 2015 19:34:24 +0100 And chocolate, don’t forget lots of chocolate.

 

pleased things are looking good x

]]> 2b656057ba6ac5b9eb2f785527eddf70 jes1965 replied to the topic Frightened and feeling hopeless to help in the forum Treatment http://www.myeloma.org.uk/forums/topic/frightened-and-feeling-hopeless-to-help/#post-123887 Thu, 03 Sep 2015 12:43:56 +0100 Thank you Michelle.

He is just so very tired today and he just doesn’t feel like drinking and I can’t make him –  I do tell him how important it is however and try to encourage where I can without stressing him.

I think all he wants to do today is sleep bless him and the consultant has just said don’t crack the whip – obviously I will if he d…[Read more]

]]> 5c9963f5adc6d9cc8b3766f8e2eccfaf jes1965 replied to the topic Frightened and feeling hopeless to help in the forum Treatment http://www.myeloma.org.uk/forums/topic/frightened-and-feeling-hopeless-to-help/#post-123880 Thu, 03 Sep 2015 09:59:23 +0100 Thank you Peter and hope all goes well with your treatment xx

]]> 77322fa0c1f743aca83e7cde7cb53a10 jes1965 started the topic Frightened and feeling hopeless to help in the forum Treatment http://www.myeloma.org.uk/forums/topic/frightened-and-feeling-hopeless-to-help/ Thu, 03 Sep 2015 07:38:34 +0100 My partner had 4 cycles of VTD chemo and then found it stopped working at the beginning of the 5th. The consultant tells me he has a low chance of the new chemo working which is Revlimid, Cyclosphamide and Dex.

I get told he should drink 2 to 3 litres a day and to eat to keep his strength up but he is so tired he just doesn’t want to do either.…[Read more]

]]> ff0eeaa138e219cd8dc198dc280f5035 jes1965 replied to the topic DTPACE in the forum Treatment http://www.myeloma.org.uk/forums/topic/dtpace/#post-123872 Thu, 03 Sep 2015 07:32:16 +0100 Good Luck…. to you both

 

]]> 05badd8d494294c354f4a9d03c846afa jes1965 replied to the topic Getting my husband to eat! in the forum Carers http://www.myeloma.org.uk/forums/topic/getting-my-husband-to-eat/#post-123865 Wed, 02 Sep 2015 19:57:18 +0100 Hi all my partner has just started Revlamid High dose Dex and Another horrid one beginning with C – his appetite has gone and I struggle getting him to eat. Things he will eat are wee tannic with warm milk, ice cream, chicken soup (sometimes), trifle, anything smooth really but not highly flavoured. It’s frightening watching someone suffer but I…[Read more]

]]> 07addb225787e57975c5a9ad853aada8 jes1965 replied to the topic Fluid Intake in the forum Carers http://www.myeloma.org.uk/forums/topic/fluid-intake/#post-123864 Wed, 02 Sep 2015 19:41:23 +0100 Good evening – it’s really hard isn’t it. I know my partner is incredibly frustrated as the side effects are horrid- hoarse voice, blurred vision, no appetite, difficulty walking and muscle wasting as s result of the steroids, bruising etc bless him it’s so hard to watch and be strong. This forum is a god send as it helps you realise you are not…[Read more]

]]> 8463107d18a8b70e06927bc89ceb221c jes1965 replied to the topic Fluid Intake in the forum Carers http://www.myeloma.org.uk/forums/topic/fluid-intake/#post-123798 Thu, 27 Aug 2015 19:51:10 +0100 Thank you Rebecca, I’ve tried the bottle thing and doing it so that he drinks 200ml every hour but there are days when he is so whacked that he can’t seem to do anything at all let alone drink.

I will keep pushing him though and the warm drinks rather than cold sound like a good idea.

 

Best Wishes

 

Jane

 

]]> 5406ec540aee977e75bb81cc491d04f1 jes1965 started the topic Fluid Intake in the forum Carers http://www.myeloma.org.uk/forums/topic/fluid-intake/ Wed, 26 Aug 2015 19:46:00 +0100 My partner was diagnosed with non secretary myeloma in March and after an initial good result from 4 cycles of VTD it seemed to stop working and he is now started RCD.

He is whacked all the time bless him, just wants to sleep, doesn’t eat much and I’ve been told to try to keep my partners fluid intake up to 2 or 3 litres a day but he finds this…[Read more]

]]> add797b6f18d217a20a5732e9f1f3694 jes1965 became a registered member https://forum.myeloma.org.uk/activity/p/40506/ Wed, 26 Aug 2015 19:33:14 +0100 0