https://forum.myeloma.org.uk/members/jillspikesmum/activity/ Activity feed for Jill. Wed, 29 Apr 2026 06:46:49 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 9b4fcea8c174ba428c3aba564bc566b1 https://forum.myeloma.org.uk/activity/p/139660/ Mon, 27 Sep 2021 06:12:03 +0100 Hi all. To cut a long story short, my remission has ended and I’m back on Carfilzomub. While I eas in remission I got annual travel insurance, so booked a cruise. My insurer now says I have no cover and they won’t insure me. I stand to lose 60% of holiday costs if I cancel in next 5 days! Has anyone managed to get holiday insurance while on tre…[Read more]

]]> 0 2e649d6be9c2d3a4900bf5998c7288cb https://forum.myeloma.org.uk/activity/p/137556/ Sat, 09 Jan 2021 15:45:03 +0000 Happy New Year to you all, hope you are all coping with the COVID lockdown the best you can. I was diagnosed with Bence Jones Myloma 2 yrs ago, and it 2 yrs to get light chains down to a level for a Stem Cell Transplant to be viable, as I was told my Myloma was ‘aggressive’. I was told on 23rd Dec I have had ,very good partial response, to the…[Read more]

]]> 0 ec59c7d14022c0a9dc2ddf6cdf10cb4c https://forum.myeloma.org.uk/activity/p/137131/#acomment-137133 Tue, 01 Sep 2020 18:11:45 +0100 Hi Kayleigh, welcome to the Forum. I was diagnosed 20 months ago – a complete shock I’m 60 yes old. . Was helping husband on a property development,, digging drains etc. Thought I had Flu coming and had somehow bruised my rib, when the other side ribs started hurting too I went to GP. Admitted 2 days later, A week later I was on chemo! NHS at i…[Read more]

In reply to - kayle became a registered member ]]> 8058c9a6a007f943b9191d271cd81cf1 https://forum.myeloma.org.uk/activity/p/137093/#acomment-137132 Tue, 01 Sep 2020 14:57:37 +0100 Hello, sorry to read your husbands smouldering MGUS has tipped over to Myloma. We keep reading that Myloma is very individual, but my experience may help. I have been on 4 different drug treatments (Including Lenalidomide) over the last 20 months, hoping to get my Myloma under control in order to have a Stem Cell Transplant. My side effects,…[Read more]

In reply to - dollydream became a registered member ]]> 647654386c118a0c4e1f113c07ec6017 https://forum.myeloma.org.uk/activity/p/137125/ Mon, 31 Aug 2020 11:11:52 +0100 0 fa747064b30771510f66357a9e046604 https://forum.myeloma.org.uk/activity/p/136192/#acomment-136548 Thu, 02 Jan 2020 09:44:43 +0000 Val, I’m new to this Forum and not sure if im doing this correctly, I’m trying to respond to your request regarding switching from Lenalidomide to something else.
I’m 59 and was first diagnosed late December 2018, just before Xmas.
Was on VDT for many months and light chain levels came down, but then stopped dropping and neuropathy in my fee was…[Read more]

In reply to - val72 became a registered member ]]> a0639b36917e99b6fc4164bd0e9f664d https://forum.myeloma.org.uk/activity/p/136292/ Tue, 20 Aug 2019 09:20:01 +0100 0