[jk118Participant]

Hello, yes I chose to go on the new Blenrep treatment that has just been approved by NICE in June. Unfortunately this didn’t work for me so I am now on a salvage treatment called DT-Pace before I need to choose another line of treatment in 3 months.
It is making these decisions that feels so huge but we can only take advice and do the best we can.
When first diagnosed the shock of it all is tremendous and the more I learn the more pressure I feel to make an informed decisions.
Listen to your team but remember that literally no two people will go down the same road, there are so many good treatment options out there now.
I felt so well on RADAR, I only wish it had kept me in remission longer, as other people have.
I feel supported by a wonderful consultant and specialist nurse team.

[jk118Participant]

Hello, I don’t go on here often mainly because I have no idea how it works!
I did have an email tho with your question.
Yes I was on the RADAR trial right from when I was diagnosed. I felt so closely monitored and the specialist team were absolutely brilliant. I had my transplant Sept 23 and then after the 100days continued on maintenance. Life felt pretty normal for about a year.
Then I was told in June 25 that my numbers had been rising for the previous 3 months and so I’d relapsed and had to come off the trial.
I have to add that I was on the high risk pathway of the trial.
I guess I decided on the trial as I wanted to get the very latest available treatment and I sensed that my consultant and team really thought this was best for me.
It’s so hard isn’t it to make such a decision when you’re still reeling from the shock. I think I went along with what I thought sounded the most promising, and I’d read of people with very long remissions.
I would still join a trial given the opportunity

[jk118Participant]

Yes as I had so much pain in my sternum.
This actually improved tremendously after SCT but I did have to buy an automatic car.
The pain has gone now and I in remission.
I will always be on maintenance as I’m high risk but am feeling good

[jk118Participant]

Hello,
I was diagnosed completely out of the blue in March 23. No real symptoms other than pain in my sternum that I attributed to cleaning windows and blood tests to check why I was anaemic.
I never considered not having treatment as I was diagnosed high risk from the outset and began treatment within 3 weeks.
I am on the RADAR trial.
The induction phase took getting used to, the side effects did get better, and I had SCT in Sept 23.
I have to say that that for me the shock was way worse than the reality (so far)
I was in hospital for for 25 days and then stayed home for a few weeks.
I went back to work 2 days a week in Jan 24.
My treatment has just gone from 2 weekly to 4 weekly and it is so liberating, life is good. I’ve just booked my dream holiday to South Africa on Feb 5.
This cancer is so individual and no two people go through it the same way.
I’m so good at forgetting tough times and I know there were a few but so many more good times than bad.
Good luck, I firmly believe that being on the RADAR trial means I get excellent treatment and care

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