I feel in a similar position to you two. I’m 70, had MGUS for 8 years but light chain ratio went up in the summer and some lytic lesions appeared on MRI scan. I too go to the gym a lot and so to be told treatment was needed was a shock. My first reaction was to say ‘no’ because i feel so fit but then the prognosis without treatment was pointed out to me! I had my first treatment on Monday which was mixed. I had a reaction to Dara but that was managed well (I had vomiting, diarrhoea and back pain). I also woke with a rash around the velcade site on Tuesday morning! The lovely 83 year old man next to me had no side effects at all! I was just unlucky I think. The bag of pills I brought home was a bit of a shock so it has all felt a bit overwhelming emotionally and physically. However, I’m feeling okay and think that now I know what might happen I can deal with it! I managed two gym classes this week and a 5 mile walk. Hoping to get a swim in the sea on Saturday if the weather improves. Good luck to you both.
