jmsmyth replied to the topic Two and a half years in the forum General 11 years, 8 months ago
Dear Eve
I am so sorry that this damn disease has reared it's ugly head again. I know you are a very strong woman and very knowledgeable. You and Slim have been through a very rough time. I don't know what to say to you Eve but my thoughts are with you and Slim and I will pray that there is a treatment for him.
Love Jean xx
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Ann and Vicki
Frank got home – we arrived about 2.00pm. Our sons came round but never brought children or their wives. He watched the Liverpool match and fell asleep. The only thing he had to eat was a yoghurt. He woke at 6 and asked me to take him back. He was exhausted. before we left the hospital the doctor said the calcium had risen…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Vicki and Colin
Has Colin got over the gastroenteritis yet I do hope so. Franks electrolytes still low but have improved a bit. Really don't understand it but this is what is leaking from kidneys. Anyway his consultanstis off for the long weekend and another one has taken over. He seems quite nice. If everything goes to plan he says Frank…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Vicki and Colin
Sorry Colin that you have the dreaded lurgy. Gastroenteritis is such a painful and dibilating thing. I hope you get over it soon.
Frank and I have just did three laps of the Unit. Consultant in and he asked her if he could come off the drip to have a shower and a bit of exercise. He has been let off til 4.30. He was…[Read more]
jmsmyth replied to the topic Happy 1st Birthday to my Stemcells. in the forum General 11 years, 8 months ago
Well done Babs. Happy birthday cells 🙂 and may you have many many more. Franks were born on 5 march. Still in hospital. Some hic cough but hope to get him home soon
Take care have a ball and enjoy your holidays
Love Jean x
jmsmyth replied to the topic Mums's MM and now has breast cancer! in the forum General 11 years, 8 months ago
Hi Sandie
So sorry to hear of your mums news. Life can be so unfair and some get dealt really bad hands i don't really understand about "grades" but your post indicates that it's not the worse kind, but any sort is bad news. My thoughts and prayers are with your mum and your family. Take care and God bless
Love Jean xx
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Megan
It's good to read that other people have the same problem that was rectified. (Boy that sounds weird but hope you know what I mean 🙂 . They were supposed to take the Hickman out yesterday – didn't happen and then they said today. Frank just phoned to day that it would not be happening. The dr told us yesterday that the longer the…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Helen
How was the holiday? Hope you had a ball! 🙂 Lovely hot weather. We were snowed in for days. Fortunately one of the boys has a 4×4 so he could get in to take me to hospital. Then they all came and dug my car out and made a path for me to drive.
On sunday night Frank was feeling weird and they put him on the ECG. They asked if he…[Read more]
jmsmyth replied to the topic Three monthly check-up in the forum General 11 years, 8 months ago
Val very good news. Well done long may it continue 😀
Love Jean x
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Vicki and Colin
Thanks for thinking of us. Things were going good – neutrofills went up to 1.8 so he came out of isolation. Next day dropped to .2 so back to isolation. Today he is feeling better even got a bit of appetite back. I brought him in melon an ice cream and he wolved it down. Antibiotics finished and so have all IV's. he reckons…[Read more]
jmsmyth replied to the topic Gill's Information Bureau in the forum Off topic 11 years, 8 months ago
Hi Eve
I'm so sorry that Slim has had a short remission and has relapsed. My best wishes to Slim and hope they find a treatment that will help
Best wishes to you both
Love Jean x
jmsmyth replied to the topic How long from taking Stem cells out to starting SCT? in the forum Treatment 11 years, 8 months ago
Hi Nikki
My husband had cells harvested on 11 December and had had the transplant on 5 March. It depends on the hospital, I think. We are in Belfast and Belfast City Hospital only has 6 sterile units to service the whole on Northern Ireland and we were told that leukaemia and lymphoma patients get priority. Frank is on day 16. He has had…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Not me Eve. I have a son in Kent who is a sergeant in the Met.
Jean x
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Frank phoned and says he is feeling a little better. Doctor told him this morning that he is doing well. He said that they were keeping him on antibiotic as his kidneys are leaking something. Frank can't remember what it was. Anyone know? Get over one thing and another raises its blo**y head. Damn this illness
Thak you all for your…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
:-S Tom a hedge backwards 😛
jmsmyth replied to the topic Full Remission in the forum Treatment 11 years, 8 months ago
Peter congratulations. That's brilliant news
Love jean x
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
What a day. Day 13. Frank has been feeling terrible all day. Neutrofills – with the help of an injection – are 1.2. Platelets are 8. Decided to give him another platelet transfusion. No sooner in when he came out in the most horrendous itch rash all over his body. The worse is in his groin. Gave him – I think peredon which did nothing and now the…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Tom you old charmer 😛
Love Jean x
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Pat that is great news. I'm sure you are over the moon and of course the proud parents 🙂 Face time is brilliant we do it all the time with grand children in Kent. Only thing is – they face time me at times when I have just finished the house work and look like I have been dragged through a hedge 😀
Cyber hugs and kisses to wee Beatrix.…[Read more]
jmsmyth replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Pete
Great news that Pete is home and having lager no less 🙂 well done you. Am sure you are both over the moon to escape. Frank is forming an escape committee of one 🙁 he can't find anyone else to,join!!! He said earlier that he would give anything for an ice cold Miller. He tells me he will be out of here next week but I dont…[Read more]