Hi Grayham

Welcome from me to. You will get great support here. My husband was diagnosed with smouldering myeloma in 2006 and only started treatment in June. Hew was on 6 months of CDT. They had to reduce the Dex as he didn't tolerate it very well. He had stem cell harvest in beginning December and they got 7 .6 million first time. He is…[Read more]

Hi Vikki and Colin
A
Thank you for your thoughts for us. We saw registrar yesterday (we both think consultant is avoiding us). Bloods were ok PPs still at 2 but still no bed. Wouldn't have been able to admit him any way as he has a terrible cold. He keeps saying "IF I have SCT". As I said to John he has had too much time to think about it. I…[Read more]

Hi Ozzy

Yes franks voice was very hoarse when he was on CDT and always worse while on Dex. Hope it eases up soon
Best wishes
Jean x

Hi John

Boy that was great about the SCT and back at work ???? well done you. Frank smouldered for 6 years and then started CDT in June. He doesn't come on the forum and there as his attitude is that his consultant will tell him anything he needs to know. He's not like me I need to know everything that I can about this awful illness. We are…[Read more]

Hi John and welcome to the club that I'm sure you don't want to be in. You are in the right place for advice and support from a great bunch of knowledgeable people. What part of the country are you in? Have you had SCT or waiting? My hubby is waiting for a date for SCT.

Best wishes to you
Love Jean

Dear Jaqui

I am so very sorry to read of Glenn's passing. Nothing that I can say will ease your pain. My deepest sympathy to you and The family. I hope the love and support of family and friends helps you through this terrible time

Love Jean x

Hi David

Sorry that you may be relapsing and I can't give any adviceoin other treatments. Frank is 70 in Aptil and waiting for date for SCT. Consultant told hm that they would not give him another because of his age. The harvested 7,6 million cells.
On news few weeks at Macmillan were confronting the government saying they were denying…[Read more]

Hi Tina

Great to hear about the PPs. It is always encouraging to read positive things. Good luck for the trial everything crossed for a loooooong remission 🙂

Love Jean x

Tom I got from MMUK I think it was Ellen that I emailed. It got very tattered so I got another one. I find it very useful it has 10 different section, some examples are key myeloma terms, appointments, questions to ask your doctor and for me blood tests results. It gives you what the normal readings on and has a section where you record your…[Read more]

Hi Keith

I like everyone else hope that this is a blip and that you get good news from the doctor today. Good luck and keep strong, you have so much support here.

Love Jean x

Hi Lisa

Sorry your hubby is not feeling so good and hope he starts to improve soon. When Frank was on CDT for the whole time he had the most horrendous rash in his groin. They tried everything g to get rid of it. It did not go totally away but eased a bit, and then went away when he finished meds. I know it took him some time for him to feel…[Read more]

Hi Deborah

Welcome to a place where no one wants to be I remembered a post of yours some months ago you were smouldering? My husband Frank smouldered for 6 years and in June started six months of CDT and few weeks ago had a stem cell harvest. He's just waiting for a bed for the transplant. As Kerry said it is so hard to get your head round…[Read more]

Hi Sarah Jane

Have you asked for the MM diary. I think it was Ellen (the MM nurse). I find it very very good. It is divided into sections – questions to ask dr Medical terms and a section where you can record all the bloods like Pp neutrophil, white blood count, haemaglobin, kappa light chains etc. I ifnd it very helpful as I can keep a close…[Read more]

Hi Peter
Just dropped in to wish you a smooth hassle free transplant. Look forward to reading your progress. Frank is waiting for the phone call.

All the very best
Love jean x

Hi David hope you had a terrific birthday and have many many more. I'm with Helen I suffer with leg cramps at night and an old Friend (south African) told me to keep a mirror under my bed and when I got the cramp put my for on the cold mirror. It worked for me and although have not had cramp for some time the mirror is still,under the bed >:-)…[Read more]

Hi Peggy

Just wondering how you are getting on with SCT. hope all is going well

Love Jean x

Dear Sue

My heart goes out to you. My love and thoughts and hugs are with you both

Love Jean x

Hi Trish

Glad that you and Peter had a great time. It sounds wonderful and congratulations on your 40th. Grandchildren are brilliant we are looking forward to our next in 5 weeks. Hoe Peter goes from strength to strength

Take care
Love Jean x

Hi Tom. Think that is a good idea about dedicated thread. Thanks for PDF file

Megan hope Phil is feeling bit better today

Love Jean x

Hi Megan

So so good to read that Phil has turned the corner. Bloods sound good. Frank has no date yet just sitting by the phone. Your posting and others on stem cell transplants are so useful. I have a little notebook that I jot down tips and advice . So thanks to all who have contributed

Megan hope Phill is home soo enjoying marmite on…[Read more]