Welcome Lisa, sorry you had to join us. My husband I'd just finishing 6 cycle of. CDT with the hope of getting a stem cell transplant. As Peter said the steroids react differently in people and he is right – don't troll the net, I did when Frank was first diagnosed and it scared the life out of me. This is the place to be to ask questions and…[Read more]

Thanks for that Jill. When I saw his legs I nearly had a fit. An elephant had nothing on him!! I remembered reading some time ago on the forum that someone had had swollen feet and legs during treatment. I hope your mum is doing well
Love Jea x

Hi Emma

Fantastic well done. How is you dad. Hope things are going well for him

Jean

Hi Nicola

Thanks for that and I will have a look. I have been massaging his feet with cocoa butter. He is in good enough form today but feet and legs are badly swollen. Frank finishes his 6 cycles of CDT in three weeks and if they suggest more treatment – don't know what he will say.

Hope your dad improvement increases every day.
Best…[Read more]

Thanks for the info Eve. I have coco butter so will give that a try. As far as the scrabble – I am playing with an old school friend who lives in Australia, and that is where I get some of the weird words. One game was so unusual I took a photo of it and sent it to my son in Kent. He also had never heard of some of the words. I used to look the…[Read more]

Vikki best of British luck for Colin on Monday. Hope all goes well. Will cross everything

Love Jean xx

Mary I cried most of the way through the counselling. I couldn't (and still can't ) cry in front of Frank. He has enough to worry about without seeing me upset. So when I talked to the counsellor it all just came flooding out. It's great to talk to someone who is not affected with Franks illness who will not judge me about anything that I say. I…[Read more]

Hi Mary

I have been screaming and ranting for 6 years. I have been to counselling twice and it really helped me. As Frank hopes to start STC soon I am feeling it all build up again (he's had a bad time with the CDT) I will be making an appointment to see one again. Don't know if you have been offered or even tried it but I felt it was a life…[Read more]

Hi Chris

Great to hear that things aren't too bad. Hope it continues ad you are up and running soon

Vikki and Colin good luck for Monday. Sending you good vibes

Love Jean x

Hi Chris

Good to hear from you and glad that you are feeling 'pretty good'. Hope everything goes great for getting the cells back. Oh Chris I have recorded Dallas and was saving it for bed tonight!!!never mind will still enjoy it. I'm old enough to remember the original Dallas and trying to decide who is the meanest the younger original JR or…[Read more]

Kerry Frank would not go to the counsellor. He won't go to Info days – just wants to know what his consultant tells him. It is good that Melvin will go and talk to someone. I think it would do frank good but when I bring it up it causes a row. So I don't talk about it. I had to go back to the counsellor about 18 months ago as things were getting…[Read more]

Hi Kerry

I am also a carer (how I hate that word) to my husband Frank and I know exactly where you are coming from. Please, you are not being selfish and do not beat yourself up. Myeloma causes an enormous upheaval in you and your family's life. I have had 6 years to try to get my head round it and believe me I'm still not there. It's the first…[Read more]

Welcome to the site Polly. My husband is on his 6th cycle of CDT. He injects Clexane every morning. At first it was a bit of a hassle for him but now it's 'old hat'. I hope things go good for you. Do keep in touch to Let us know how you are getting on

Jean

Hi Chris

Just want to wish you all the luck in the world for tomorrow, will be thinking of you. You will need the rest after the rest after the weekend you've had!! Good luck and the best of wishes

Love Jean x

Hi Helen
It's the dam Dex that is causing the most problems. He is ok when he takes it but when he stops he's not on the same planet as the rest of us. His Protein is still at 2 and this is supposed to be the last cycle. He said if its necessary he will continue with it. That really surprised me. Am phoning the myeloma nurse on Wednesday. She…[Read more]

Hi Vikki

Have you got a new date for the SCT. hope you are both bearing up. Love the photo

Helen glad to hear the whooping cough is getting quieter. I remember one of my boys had it and it was frightening listening to it. Keep getting better
Love Jean xx

Hi Vicki

Every month I get Franks readings and try to make snse of them. Last month PP wa 2, Kappa light chain 10.1, lambada light chain 7.6 an ratio1 .33 this month readings were respectively PP2, KLC 8.3 LLC 7.5 ratio 1.11. So I am assuming that as consultant doesn't seem worried that this is fine. In 6 years Frank has only had 1 bone marrow…[Read more]

Hi Vicky
Min is involved in widows groups. If you do a search on the site for her posts or even send her a private message. Full name is Min Cato and she is very helpful

Love Jean x

Hi all
Just putting my penny worth in. Years ago I was told about what was in public pools (maybe I'm paranoid) but I will not go into a public pool or jacuzzi. Now in saying that my sons do tell me "get a grip mum'. But that's me

Love Jea x