Hi Ali

We are just coming to the end of the third month and don't get me wrong it is tough but as others say (I hope) it will be worth it. Frank takes the Chemo tablets every Monday. He was told to take the in the morning but they made him feel anxious and 'funny' for about 18 hours. So on Monday week ago he decided to take them late on…[Read more]

Hi Ali

Sorry you have had to join us but this is the best place for support, to rant and for friendship. My husband is just starting his 4th cycle of CDT and the withdrawal of the Dex is by far the worse. His consultant tried to wean him off it, but for Frank, it just prolonged the withdrawal, so back to cold turkey. His first month was the…[Read more]

Dear Dai

Sorry that you are no better, you really have been in the wars. I hope the Day Care can get it sorted quickly and permanently and you are soon back to your old self

Love Jean x

Hey John couldn't get link to work!!!
Jean

Hi Pete

Thanks for your post. I appreciate everything that you have said about Support Groups and I am looking forward to going in October. I suppose, as Frank was not on treatment, I was like the ostrich – head buried in the sand – but if I'm honest I was scared to go to a group, as I did not want to hear or see what the future held. I'm…[Read more]

I agree Michele. My husband had SMM for 6 years and has just started treatment. I never felt inclined to go to a support group and Frank would not even talk about it, but now that treatment has started I feel the need to go. I will be going to my first one in Belfast in October.

As you say cope with Mm in your own way

Love Jean

Hi Louise

We have used quite a few travel insurance companies in the past. We had to find a new one when Frank turned 65. The one we have used for our past holidays has been Columbus direct. 02082569045. We found them very helpful – but be prepared to answer lots of questions. We used them for a cruise in the Caribbean. Lots of people on the…[Read more]

Thanks for posting this John. As you say looks hopeful. Be interesting to read more on it.

Good luck for your fund raising. You are doing a terrific job.
Best wishes
Jean

Hi Jill

Thanks for posting this I love reading positive posts like this. I'm glad your mum came through treatment with such good results. My hubby is on CDT and the Dex is as you say "hard work". My best wishes to your mum and long may it continue.
Take care
Love Jean

Great news Wendy and Helen party, party
Love Jean x

Have a wee vodka or maybe 2. Think I'm on 3rd glass of wine. Sons were up and thats my excuse. The main thing is that you an Elaine have a ball and enjoy every minute. Will be thinking oh you tomorrow. Go get them Tom !!
Love Jean x

Tom looking forward to hearing how you got on or is it "if I tell you I will have to kill you" :-S
Love Jean x

Helen

Ellen replied and said Chemo tablets can be taken whenever suits the person . She just reiterated that Thalidomide to be taken at night and Dex in morning. Thank goodness, hope next month will be as good as this one. Just have to get the Dex sorted now.:-P
Love Jean x

Thanks Helen I hope you are right as it has made a real difference to Frank – hope it is not a one off. He actually went out down to Marks and Spencer's. I will let you know what Ellen says.

Ta
Jean x

Thanks for that Tom. I have emailed Ellen to ask her. If I don't hear from her I will try our nurse. The only thing is Frank is so much better today than he's was by taking them early in the morning. Will see what they come backe with.

Thanks Michelle will phone tomorrow

Love jean x

Everything crossed Wendy for Thursday. You are one Gutsy lady. Whatever you decide – enjoy.
Helen I have been to Venice twice I just love it – a beautiful place and would love to go back – enjoy

Love Jean x

Dear Lynne

I am so sorry for the loss of John to this awful disease. And reading your posts of John's journey, you are so right to be proud of him. Lynne I really don't know what to say but just to let you know that I will be thinking of you in the weeks to come. Tom is right – you had years of good times to remember. My sincerest condolences…[Read more]

Hi Alan what a lovely post. I am so glad that you are in remission, your journey with this awful disease is inspiring. My hubby is on 6 cycles of CDT – he is coming to the end of the third – halfway there. If everything goes ok they will start STC.

You sound as if all your support networks are in place. Good luck and long long long may…[Read more]