jmsmyth replied to the topic Good News X Two in the forum General 12 years, 5 months ago
Dear Tom and Elaine
Absolutely the best news! Have a great alcohol free weekend >:-( (kidding) enjoy
Love jean x
jmsmyth replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
Lucky Elaine π
Jean
jmsmyth replied to the topic New myeloma suffer – would like to meet other suffers in the forum Under 50s 12 years, 5 months ago
Hi allison
You also have had a very rough time and hope that things can only get better. Welcome to our "family" (I'm sure you don't want to be here but they are a great bunch of people). If my hubby gets through CDT he will be having SCT.
My very best wishes to you
Jean x
jmsmyth replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
Tom you do make me laugh. π thanks. It must be bad as he's in bed and not watching football!
Ta love Jean x
jmsmyth replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
Thanks Dai and David. Franks has been good getting through his water (or at least he tells me) he has also been able to have G & T's
Thanks again
Jean x
jmsmyth replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
Dear Eva, Eve and Jo
Thanks for your answers. Seeing consultant tomorrow so will put them to her. Frank has just told me that he wants no one to know about the thrush. Is this a man thingg!!
Eve sorry to hear that Slim is in hospital. Hope he gets out soon, there's no place like your own home. You are so right Eve this is a real steep…[Read more]
jmsmyth started the topic Thrush??. in the forum Side-effects 12 years, 5 months ago
Hi
Frank is coming to the end of his first cycle of CDT. We seem to go from one problem to another. He was feeling unwell this morning and phoned his Myeloma nurse. She is going to contact his consultant but she thinks it's thrush. If it is thrush will it interfere with his treatment? I am so worried about all these side effects and I realise…[Read more]
jmsmyth replied to the topic Channel 4 documentary in the forum Side-effects 12 years, 5 months ago
Rachael is right. I was so upset when I read it under treatment earlier. Thanks Eve and Tom for your comments. Put a smile on my face!!
Love Jean x
jmsmyth replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 12 years, 5 months ago
Hi Jo
Hope things go well tomorrow at the clinic, I know what you mean about worrying. No matter what people say to me I get so up tight before we go – lets know hw you get on. Franks back is giving him merry hell. We did mention it to consultant and she said to wait and see how he is when we go on Thursday. It took her 14 months to find out…[Read more]
jmsmyth replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 12 years, 5 months ago
Judd
What a terrible time you have been through and so young. I'm sorry to have to welcome you to the site but you are in the right place so WELCOME. Although I have been a member of the forum for many years -6 to be exact – hubby diaganosed early – he has just started treatment past two weeks CDT. So I'm not experienced to give a lot of advice…[Read more]
jmsmyth replied to the topic Brocho – Bridget Rochfort in the forum General 12 years, 5 months ago
Hello Siobhan
I read onFB of the passing of your lovely mum. I was completely devastated as I was "talking" to her a few weeks ado. Like the others have said, I never had the pleasure of meeting your mum, but she was my friend and so vey helpful and supporting tome and us all even in her bad times. She had a great sense of humour and she wil…[Read more]
jmsmyth replied to the topic My lovely mum has been diagnosed with Multiple Myeloma in the forum Newcomers 12 years, 5 months ago
Rachael
Sorry that you have joined us but you are very welcome. You have come to the best place for support and information. I am new to the treatment aspect of this awful disease as my husband has just started first cycle of CDT, but if you have questions or worries there will be someone that can help.
I hope your mum does well on the…[Read more]
jmsmyth replied to the topic Bridget in the forum Off topic 12 years, 5 months ago
Devastated to hear the news of the passing of Bridget. Such a lovely lady who will be truly missed. Deepest sympathy to her family
Jean x
jmsmyth replied to the topic Annes Odyssey in the forum General 12 years, 5 months ago
Hi Roy
Thank you for you post. It is so good to read something positive. My very wishes to you, your wife and daughters
Love Jean x
jmsmyth replied to the topic My Dad in the forum Newcomers 12 years, 5 months ago
Hi Jennah
Haven't experienced Chemo in hospital with Frank (on tablet form) but when my brother was having it his wife used to txt me to tell me he was snoring his head off!!
Take care and best wishes to your dad π
Jean x
jmsmyth replied to the topic Protein?? in the forum General 12 years, 5 months ago
Hi Mari
I had just been saying to Frank a few minutes ago that I was going to phone Jackie our myeloma nurse tomorrow to clarify things but he said he would rather I didn't. He intends to speak to consultant when we see her next Thursday. Just hope Frank has no problem with reduced Thalidomide.
Thanks Mari
Love Jean xx
jmsmyth replied to the topic Protein?? in the forum General 12 years, 5 months ago
Hi Jo
Happy birthday. Hope you have a lovely day – 21!!!! You had sunshine – lucky you – we are blowing up for a storm. Hope you had a nice drive
The consultant said that the myeloma cells are changing and the predominant myeloma cell is not producing protein says that it is a sign that the myeloma is progressing. Told us the count had…[Read more]
jmsmyth replied to the topic Protein?? in the forum General 12 years, 5 months ago
Hey Vicki that's great news about Colin. Hope he goes from strength to strength. I thought that about the protein but I taped the conversation so I will listen to it and then ask her next Thursday.
All the very best
Jean x
jmsmyth replied to the topic Protein?? in the forum General 12 years, 5 months ago
Thanks Keith
It is the para protein. She was always please when it came down. But the decline has been dramatic and she said there was something going on. I emailed Ellen to ask her. So will see what she says.
Thanks
Jean
jmsmyth started the topic Protein??. in the forum General 12 years, 5 months ago
Hi All
Just back from consultant, she is putting Frank on half doseage of thalidomide. She was very reluctant to stop it, she said the thought the reaction was coming from withdrawal of the Dex. Will try that and hope it works and can increase the dosage
His blood were good. Calcium, WCC, HB,kidney function all normal. Β One thing was the…[Read more]