Hi all

My husband Frank was diagnosed with smouldering myeloma in September 2006. He had all the usual. BMB, scans etc. the only treatment he had was Zometa, bone strengthening infusions. Last year in April my husband was turning 70. Although his blood results were good and felt ok his consultant decided to do a SCT. He went through this in…[Read more]

Jeff Frank takes the tablets twice a day and they are 75mg. He had horrendous pain from and after the shingles. He said he felt like a gorilla was crushing every bone in his body. Once he started the tablets he felt a lot better but still gets some pain but not as bad as what it was. Consultant said months ago he could have this pain for some time…[Read more]

Jeff not sure if this is related. My husband was prescribed Pregabalin for pain after a bout of shingles. His consultant told him not to stop them unless he discussed it with her. She said he would have to be weaned off them. He got up yesterday and felt terrible (he’s been feeling good for some time). He said he was feeling so weird and no…[Read more]

Eve so shocked to hear of Slims passing. My thoughts are with you and your family at this sad time. You were Slim’s rock and I’m sure he was glad that he had you in his corner. My love to you all

Jean xx

Hi David

Not sure about Tom posting on forum (not on much myself) but he’s been posting on Facebook. I know he had bloods taken last week and sees consultant on Thursday. Will post on Facebook that you are asking for him. Hope things are good for you
Jean x

Hi Rebecca

Frank went through SCT in March 2013. On leaving the hospital he was told he would have to have “the baby” injections, right from the start. Within a couple of days,the consultant sent him an email with a schedule of all the vaccinations he needed – with dates etc. A copy qhad also been sent to his GP – who contacted him when they…[Read more]

Hi Dawn

Sorry you had to join the forum but as said before you are in the right place for advice, info and friendship. My husband was diagnosed in September 2006 with smouldering myeloma. Like you it was discovered by chance. We had 7 years with only treatment being
Zometa infusion to strengthen bones. He had this for about 18 months then went…[Read more]

Damn predictive txt. Should read I’m there for Frank when he needs me

Mike damn predictive text. My spelling isn’t as bad as above
Jean

Hi Mike

Long long May tour remission continue. My husband smouldered from 2006 and had SCT March 2013. We were at co sultNt today said his protein was not dectable all bloods were god and to go away as he could not find anything wrong with him. Frank doesn’t come onto the site but when I read your response to Rebecca about drinking g the water…[Read more]

Hi Fiona

I also hate the word carer. I’m not there for Frank when he needs me, just like he’s there when I need him and I certainly do NOT consider him as my carer. I agree “family” might be. Better option

Best wishes
Jean

Hi Eve

What a terrible time you both have had and I’m so glad to read that he is doing well. Slim is a real fighter and I know you don’t like it said but I’ll say it anyway “he’s lucky to have a feisty woman rooting for him”. Hope he improves quickly so he can continue with treatment at the Marsden, they seem to know what they Re doing

Know what…[Read more]

Congratulations Ellen to you and all the team. A well deserved award

Regards Jean

Hi Maureen saw the registrar and she was happy with franks bloods. The MRI results were not back (he got it last Wednesday) she said that in most cases it’s a good thing as if there was something wrong the report would come up fast. She said she would phoe with the results as we are booked to go away next Thursday and I want the results before I…[Read more]

Great news Maureen. Always boosting to read. Glad you had a nice break. We are odd to consultant tomorrow. Really hate it. Always scared of what she will say
Take care
Jean x

Great news Jean. Hope Michael goes from strength to strength. Take care
Jean x

Hi Sindy

Sorry you had to join us but welcome to the site. They are. Great bunch of people here who will be there for you to help in any way. Have you a tarted treatment yet? My husband had SCT March 2013 and is in remission. Thank God. See you along the road

Jean

Hi

I’m like David been on forum since 2006 and I have never heard do it either. If you phone or email Ellen or Maggie, the Myeloma nurses I’m sure they will be able to help you. Details on site.

Best wishes
Jean

Hi Molly

Sorry you had to join us and I’m not sure it’s relevant but Frank and I lived I. South Africa for 10 years 3 of our 4 sons where born there. We came home back to Belfast and it took some time for Frank to get a job. We got all benefits and child allowance etc. as Eve says get advice and hope things go week

Jean x

Hi helen

Thanks for that. I’m in bed and when you post came through I went down stairs and read it to him. It has been a relief to him that you and Jane have had experience of this drug. He is sitting down stairs playing a game. Not the same man as yesterday when I posted he is more relaxed and prepared to go go on with the mds and not phone…[Read more]