jmsmyth replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 9 months ago
Hi Bridget
I have just read your post and I just don't know what to say. Others have said Bridget but you are an inspiration to us all – your courage, compassion and your love of life. I will pray that they come up with something you can try. My love and prayers are with you.
God bless
Love Jean xx
jmsmyth replied to the topic Advice required in the forum General 12 years, 9 months ago
Thanks Elaine
Frank is convinced that it is muscular, As MRI and skeletal X-ray were ok. The dr gave him anti inflammatory tablets and he said they have helped a bit. Consultant won't be happy as she doesn't believe in those tablets. We see consultant in 10 days so as nothing else can be done he is going to wait.
Thanks again
Jean x
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Hi Jo
Still don't know. Frank and our doc say no. Consultant says yes. So waiting game till next visit to consultant. He is still in a lot of pain. We are supposed to be going to Spain on Monday but he says he will see how he's feeling on Monday. I would prefer to stay at home. Hey lucky you having sun. It is quite mild but windy and overcast.…[Read more]
jmsmyth replied to the topic Advice required in the forum General 12 years, 9 months ago
Hi Tom
Frank had a full skeletal X-ray and a MRI at last visit and consultant said there were no changes so he is back to thinking it is muscular. It has been going on so long. Seein consultant in 2 weeks so might get somewhere.
Love Jean x
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Hi Gill
Sorry that Stephen is having such a rough time. Hope the medication works soon. It sounds really bad. Our surgery is useless. The nurses guards the doctors like VIP's. Frank saw doctor and the said that He doesn't think it is shingles – the spots he had are gone. And not like you describe, they looked a bit like the Rosa rash that…[Read more]
jmsmyth replied to the topic Advice required in the forum General 12 years, 9 months ago
Hi Jean
This MM is a bu**er! My hubby has MM diagnosed Set 2006. Only treatment he has had is Zometa. About last 9 months has had pain in side. Consultant thought it was ribs. Sent him for a skeletal X-came back no change. His protein is at 30. But as other tests are stable they don't seem to be concerned. He still has bad pain in side but…[Read more]
jmsmyth replied to the topic Treatment Free 🙂 in the forum Treatment 12 years, 9 months ago
Well done Tom, you must be over the moon. Long may it continue!
Love Jea xx
jmsmyth replied to the topic week of firsts in the forum End of Life and Grief 12 years, 9 months ago
Dear Min
I too I'll be sad to see you go but you have a life to live and enjoy. Thank you for all your goodness , kindness and good advice and friendship.
Enjoy life and I hope that life will be kind to you. See you on face book
Tke care
Love Jean xx
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Hi Pamela
Good to hear from you and hope you are well. Thanks for the info. Frank is in bed and I went up and woke him to read what you had written, as the only info we were getting was from the site. It is good to have some info when you say IV is that introveinus (??) He was in so much pain today that he phoned the doctors to speak to him -…[Read more]
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Hi Jo
Will cross every thing for next month. I hate the build up to consultant visits – i get my knickers in a twist!! Derek's wife phoned to say that consultant says there's been a slight improvement. So thank God for that.
Keep well
Love Jean xx
jmsmyth replied to the topic Just to frighten you all!! in the forum General 12 years, 9 months ago
Yea Tom she does look posh. Good on you Mavis
Love Jean x
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Hi Jo
Thanks for your reply. I will tell frank about the cider vinegar. He still says its not shingles. I don't know about shingles but the skin is not sore, it is underneath and I can see him wincing with the pain. He has no faith in his doctor but I have persuaded him to speak to him tomorrow. I just hope they can get it sorted. My younger…[Read more]
jmsmyth replied to the topic coughs and colds in the forum General 12 years, 9 months ago
Hi David
Sorry to hear your not feeling too good. When Frank gets coughs or colds he takes Manuka honey. I read about it on the forum and did some research on it. Supposed tobe a natural anti biotic. It has worked for him, there are different strengths. Hope you feel better soon
Love Jean xx
jmsmyth replied to the topic Shingles in the forum General 12 years, 9 months ago
Thanks Mavis and Bridget for your replies. Frank has had this pain on and off for months – a long time said at first it was a pulled muscle – actually Frank told them it was a pulled muscle!! It was just tonight he was very uncomfortable and he wanted Volareen rubbed in (doctor had given him a rub to put on and he was doing a war dance round the…[Read more]
jmsmyth started the topic Shingles. in the forum General 12 years, 9 months ago
Hi all
Franks consultant is now saying that the pain in his side is shingles. the MRI showed nothing different. She prescribed him Pregabalin-Lyrca 25mgs. When he took them they sent him do lally. He read the side affects on the internet and decided that he was not taking them. He spoke to the Myeloma nurse and the said she would pass…[Read more]
jmsmyth replied to the topic Worth watching and reading in the forum Off topic 12 years, 9 months ago
I agree totally Bridget – brilliant. The first episode – wasn't sure – but as it progressed- brought back memories. The mid wife that my mum had was called Madge and she was a huge lady. My mum was in labour and the baby was breech – Madge needed a rest (!!!!) and plonked herself on the bed, the bed collapsed, my poor mum, told us later that she…[Read more]
jmsmyth replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 9 months ago
Oh Bridget I am so sorry to hear your news. You are such an inspiration to many on this forum and if anyone can get over this hurdle you can!! I wish you well and my prayers are with you.
Love Jean xx
jmsmyth replied to the topic snow or not to snow?? in the forum Off topic 12 years, 9 months ago
Hi all
Well there's a turn up fit the books! Here in N Ireland we always get the rough weather but at the moment the temp outside is in the balmy 7's or 45 in real money. Enjoy the snow. We will probably get it eventually!
Jean x
jmsmyth replied to the topic snow or not to snow?? in the forum Off topic 12 years, 10 months ago
Hi Bridget
Hope you are well. As I was reading your post I looked out the window and it was just starting to snow – very fine. Hope it stops as don't want to be snowed in like last year!,
Love Jean xx
jmsmyth started the topic Patient power. in the forum General 12 years, 10 months ago
Hi all
Just watched this video on The Patient Power web site. A patient who has has myeloma for 17 years talks about his experiences, trials and new drug combinations. Although Frank hasn't started treatment, it gave me a bit of a lift. Thought someone might be interested. Link is (hope link…[Read more]