Hi Hils

Never ever feel guilty. Everyone of this forum knows what your are going through. The only other thing that I can say – whicy was said to me when I joined the forum – Don' search the internet as a lot of the information is outdated and would scare the life out anyone. I get my info here and on the Myeloma Beacon. Your brother will…[Read more]

Hi I am sorry to hear about your brother. But as has been said this is a fantastic site with lots of advice support. I think it is important to realize that every one deals with this awfull disease in their own way. When my hubby was diagnosed all the family were brought together and told that no one was to do any research . He said that if he…[Read more]

Don't know about finding "Will" but your posts certainly made my "Giggle bag" come back. You lot are definatley raving lunatics!! But keep it up – I needed a good laugh and you all gave it to me.
Thanks
Jean x

Go for it Min!!

I took early retirement 2 years ago (2 years afer Frank was diagnosed) and I am loveing it. I thought in the beginning that we would get on each others nerves – but after a rocky start(nothing to do with me being at home – Franks attituded to this bl***y illness and mine were very different)but once we got that sorted it has…[Read more]

My thoughts are also with you Roz and your girls, especially on Friday.

God Bless
Love Jean xxxxx

Hi John

I am sorry that you have joined the site but You are in the right place. Welcome. As David says the people on this site are excellent. My husband was dignosed 4 years ago – (attended doctor for one thing and they found this bl**dy disease.) He was lucky it was found so early – he visits consultant every 2 months and they keep an eye…[Read more]

Happy new year to you David and all my friends on the forum, We went out with two of our sons and wifes to clebrate 2011 coming in and had a really good time although Frank fund it a bit of a strain. I hope the new year brings us lots of hope and my thoughts are with all my forum friends who are going through treatment. Happy healthy new year…[Read more]

Dear Jayne

I hope that by the time you read this you will have got through to the hospital and got an earlier appointment.

I know how you are feeling I went through all that you are going through (and I am sure that other carers did). At first I could not let Frank out of sight. For about 2 years I would not leave him to go out with…[Read more]

Dear Amelie

As has been said this horrible disease is so individual. 4 years ago my husband was not feeling well. Run down – no back pain but doc thought might have infection in kidneys. After battery of blood tests Frank was sent to haematologist and after a marrow biopsy myeloma was diagnosed. A bolt out of he**. He has smouldering…[Read more]

Dear David

Sorry I can't help. Frank has not started treatment so I don't know much about SCT or side affects. Just wanted to say that I am so glad you are feeling better. I have been following your posts and I think you are amazing.

I hope you have a fantastic Christmas and healthy new year and that your mouth starts to improve.

Love…

Dear Roz

I send my heart felt sympathy to you on the passing of Michael your beloved husband. My thoughts and prayers are with you. I know it will be difficult but please take care of yourself.

God bless
Love Jean xx

Dear Gaye

Thank you for your lovely words and for your support. Merry christmas to all and may the new year bring further advances in treatment for the terrible disease.

My thoughts and prayers are also with Michael, Roz and David.

God bless and A HAPPY HEALTHY NEW YEAR.

Love Jean xxx

Dear Bridget,

I echo your post. You are all a lovely group of friends who, as I have said often, have been my life line and kept me sane.

My love and best wishes to you all. A very very merry Christmas and a happy and healthy new new year to one and all.

I hope Santa is good to everyone.

All my love Jean xxx

I am going to miss this one. Tried to open it but message appeared that I did not have program. Awwww!!

Love Jean

Yep!!! Very good – made me laugh. Hubby thought I was having a fit.

Jean

Hi Donna

I am sorry to read that your dad has passed away. I have been following your posts and was saddened to here the news. My thoughts and prayers are with you and your family.

Love Jean

Hi Gina

My hubby is in a similar situation. disagosed 4 years ago. Protein goes up and down like a yoyo. Was at the consultant on Thursday and protein down to 26 (was 29 last time) but other bloods are stable so Frank is happy enough. We go back in February.

Hope your mum goes from strength to strenth.

Enjoy Christmas. Have a great…[Read more]

Hi Nikki

You are so right. It is difficult at the beginning but life has to go on as normal (as much as possible) I have to say that before this horrible disease we would both huff but not now. (Boy were we huffers) We are enjoying evrythng as much as we can. I follow Franks lead, as he is going through this I just take my cues from him.…[Read more]

Me too/ vry slow – like swimming through mud. Mind you have never done that !!!

Thanks Jean

Gill

What a terrible thing to be going through. I so agree with Min, although it takes a lot of energy to deal with these 'jobs worth'- kick up as much fuss and as you can I really can't understnad how they can get away with this. As Min says put it to watch dog – write an email to them – write to everyone that you think will listen and…[Read more]